One of the hardest aspects - after having hopefully overcome two-types of leukaemia - is explaining to people that this post-transplant complication is potentially just as life-threatening.
My new bone marrow has engrafted successfully. It is making new red blood cells, platelets and white blood cells - the cells that help fight off infection. Unfortunately, these new white blood cells are starting to attack my skin. If left alone they could attack other organs of the body including the liver and lungs.
Chronic Graft versus Host Disease (cGvHD) leads to the death of a significant number of transplant patients every year. If it can't be cured then the sufferer can be left with seriously debilitating long-term consequences.
The good news is there are a number of treatments now available. Many of them are cutting edge and more research is required to understand exactly how they work. The treatment I have just started also frankly sounds mental! It involves a kind of dialysis machine, chemicals, UV light and Rotherham.
I hope this post will explain in a bit more detail the nature of cGvHD and the treatment that offers me a 50% chance of long-term cure. On a personal note, I have to say I am worried about the future. I've just got this really bad feeling that I'm not going to fully get over this.