February 2008 Archives

Graft Versus Host with the Most (Part 29)

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It's back.

The steroid dose is now down to 12.5mg a day and the chronic Graft versus Host Disease (cGvHD) has started to bubble up to the surface of my skin.

The affected areas at the moment are my thighs and elbow pits. It's a horrible experience but bearable. At this stage I think it can still be managed by moisturisers and steroid cream.

ElbowcGvHD.jpg


What is difficult to deal with is that I know it's only going to get worse.

The treatment at Rotherham may have helped but it certainly has not cured me.

The pessimist in me would be keen to point out that I'm actually worse off today than I was before my bone marrow transplant.

Now I've got leukaemia, cGvHD, a terrible immune system, normal energy levels and a head like a Space Hopper.

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