However, after two days of dropping down to 7.5mg this happened to my back...
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Yikes!
It was really bad. My skin felt hot all the time and it was starting to get itchy. I hammered it with steroid creams and moisturisers but it didn't seem to be shifting.
I even used "Udderly Smooth" which turns out is actually a real product! Thanks for that suggestion.
The flare also seemed to make me feel really tired.
I've always been able to keep my spirits up but when this happened I just felt crushed. I thought we had come as far as possible and I would have to accept looking like this for the rest of my life.
It wouldn't be so bad but every time I see myself it's a reminder of everything that's happened to me and a reminder that I am still ill.
Mercifully two days later it was better.
It was completely back to normal.
This condition is so strange. Now I just want to try 5mg and hope for the best.
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It's also still massive - why? Deflate, damn it! Come on!
Last night my stomach was unwell and I had the runs too. This was really worring because it could mean the graft versus host disease has spread to the stomach and gut.
Thankfully today it seems better so I'm less concerned.
My shins are quite itchy too.
There has been a flare at every steroid dose since 10mg and my skin has always come back under control.
I just hope it is the same this time.
On another note I found out today I didn't get that job.
If I was the editor it was exactly the same decision I would have made. I'm just unable to commit to the office hours.
I would have loved the job but this morning when I woke up shattered, bricking it and with a face hotter than my ex-Punto's head gasket, the last thing I would have wanted to do is drive to some conference or do a full day's work in an office environment.
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It’s not too painful but jogging and walking, especially uphill, is very difficult.
Have you ever been in the sea then dried your legs off in the sun? Sometimes my legs feel like a more uncomfortable version of that.
Other times it’s more like mild sunburn and at the moment it appears to be flaring up then dying down across different areas of the body.
My plan was always to make a full recovery, get back to work and start playing football again.
Now I just don’t think it’s ever going to happen.
Having your own immune system nibble away at you from the inside is a very unpleasant concept, not least because there is nothing I can do to stop it.
On a lighter note, I have always liked to think of myself as a metro-sexual kind of guy, someone who is down with my female friends and readers.
So this last picture is for you sisters:
The steds have actually given me stretch marks!
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