Adrian Sudbury was a reporter for both the Huddersfield Express and Chronicle Series and the Huddersfield Examiner. In November 2006 the 25-year-old was promoted to digital journalist, effectively editing the new-look Examiner website.
Just two days into his new role he became seriously ill and called in sick. A week later he drove himself to A&E and was eventually diagnosed with leukaemia.
It was then identified that he actually had two distinct types of the disease running at the same time. According to the medical literature he was the only person in the world to have this condition. As such, it was not possible to offer Adrian a prognosis.
Here he shared his experiences of the disease and his treatment up until his passing.Thanks again for every single incredible comment that is being posted. I really want to reply to you all but I am just not capable of doing it.
I just want you to know I read them all in the morning, throughout the day, and often at night too.
My doctor, and excellent local medical team, was speaking to me about it yesterday and I said: “How can all these positive thoughts from all over the planet not be lifting my spirits?�
I think they all understood.
The morphine derivative is helping control my headache and cough. The ridiculous mumps-like swelling is also starting to subside.
More great news about the campaign is on the cards too. Will give you all the details for a major event in London either tomorrow or first thing on Monday.
This post is really for fellow 'post bone marrow transplanters'.
It's been written for quite a while and is really a round-up of all the post-transplant complications I have encountered since being released from isolation.
I thought it might be useful for people who have undergone the same process.
However, as the doctors keep reminding me, everyone is different and you never know what is around the corner.
Remember, some people will encounter very few problems - if any at all.
Transplants do work and provide an excellent cure for many bone marrow disorders.
Firstly my tablets.
After a bone marrow transplant you have effectively wiped out your immune system and need to grow it again.
You also need to give your new developing immune system time to adjust to your body. Because of this you need drugs that suppress your immune response that are slowly tapered down.
The drug I had is called Cyclosporin.
The following tablets are taken as prophylactics - medicines that help prevent infection before one takes hold.
Erythromycin: An antibiotic which is effective against a whole range of bacteria.
Voriconazole: An antifungal agent. When I had pneumonia last year this was caused by a fungal spore that was either from a plant or just knocking around in my lungs.
Acyclovir: An antiviral agent.
All these tablets are taken at 10am and 10pm.
After my initial release from hospital my main symptoms were nausea and tiredness. I was absolutely shattered and can remember thinking I was never going to get stronger.
It was different to straightforward chemotherapy. I seemed to bounce back quite quickly after that. This was much tougher. I remember after a couple of weeks I would be making progress, then feel rough again. It was a case of two steps forward - one step back.
Sometimes I would just randomly be sick. Eat some food, or even the tablets, and it would just set off that vomit mechanism. My stomach felt a lot more delicate all of the time and my appetite was poor.
Had a few beers one night and then was just sick.
Anti-sickness tablets from the hospital helped.
They say the average transplant patient will be back in three times with infections and that's exactly right for me.
The first two were in the summer and directly linked to my Hickman line. Each time I would be at home and start to get that freezing sensation that goes hand in hand with a fever.
On both occasions I was in hospital for the best part of a week while antibiotics took care of the infection.
The last one is the “cold� that brought me back in for another week prior to Christmas.
With the exception of Graft verus Host disease - which I've written about extensively - they were the most serious problems but I suppose all to be expected.
Here are some of the weirder things I encountered.
Hair growth:
It took ages to come back and then came back in some crazy places - like on my cheeks. The steroids then seemed to make it grow in a peculiar way too. It's coming back now but darker and thicker.
Acne:
At one point my skin broke out in what looked like acne. Drs said it was probably linked to over active hair follicles. This was - thankfully- treated with a short course of tablets.
Fingers and toes:
While on the steroids the edges of some of my fingers and toes developed infections. It was quite painful for a while and made walking incredibly difficult. This was treated with an antibiotic called Clindamycin. Fingers seemed to catch on everything.
Also connected to the steds were unbelievable pains in the middle of the night. These included crazy cramps in my feet an intense pain in my bones. A reminder that these drugs can seriously damage your joints and bones. I also found I needed to take a leak at 4 or 5am every day.
People in our situation do feel like we rattle after taking so many drugs on a regular basis.
The steroids are still taken at around 8am in the morning.
I am often reminded of the old song “I know an old lady who swallowed a fly.�
GvHD leads to steds which increase chance of infections so in turn you need more antibiotics.
The steds also mean you need to take Lanzoprazole to protect the lining of your stomach.
Cyclosporin caused my blood pressure to rocket so yet more tablets were required to keep this under control.
I was also taking Glivec until I relapsed.
That is quite a pharmacy to be carrying around on visits - not to mention the E45 and moisturising creams for the dry skin.
The latest.
Now being in a palliative setting the game changes slightly.
I have stopped taking Glivec - obviously.
Disatinib - the potential 'miracle cure' which caused me to be sick, gave me splitting headaches, internal eye bleeding and the bottom half of my face to bloat up like Desperate Dan - has also, funnily enough, been stopped.
The mild tablet chemotherapy hydroxyurea had been sent back to the pharmacist.
As have the antibiotics.
This leaves me with steroids, cyclosporin, voriconazole and acyclovir. I am also coming off the anti-depressant fluoxetine because, I have said many times before, I know I not depressed, just have a lot on my plate to deal with.
Although this post is a bit flat I wanted to squeeze it in because it's a good reference point for people going through a similar time.
Best wishes to you all and thanks again for your continued support.
All the best mate. Truly, you are one of the few people who has genuinely made a positive difference to the world with your ceaseless campaigning.
Long may your words stand as a beacon to everyone affected by this terrible, terrible illness.
You can leave people any number of material goods, but if you don't leave them a good example then you leave them nothing. You, my friend, have left the world a great amount.
Hi Adrian! You've articulated what happens post transplant in a clear and succint way. As a former microbiologist, I'm dead impressed about your knowledge of antivirals, antifungals and antibiotics. All this aside though, I am glad you are hanging in there and I will be sending a lot more positive thoughts and prayers your way. Can't wait to read your post on Monday for the big reveal.
XO Elizabeth
Hi Adrian, so glad your headache and cough are under control and you are feeling a bit better. You are in my thoughts and prayers daily.
Nikki ;)
Been praying for you day and night... I just wanted to let you know that .... again.... you are in our thoughts and prayers always....
sending HUGS across the miles..
nancy B
Hi Adrian, Dropped you a line a few days ago when I had been reading your blog for a short time and thought Id let you know that youve now inspired me to give blood (along with my husband who has a rare blood type and doesnt know that hes coming along too!!) - hasten to add that he has given blood before, but a while ago now. I can't tell you how much youve inspired me over the last few weeks! I check your blog every day, passing on news to my friends and work colleagues, and panic a bit when theres nothing from you (I'm not a stalker....honest!) Suffice to say when I check and theres nothing from you I tend to have repetative strain injury from revisiting my computer every few minutes (I really do sound odd don't I?) Can I add at this point that I am supposed to be on the computer studying for a degree so it may be a bit of work avoidance too. (Its not at all but I think I sound a bit less odd by saying that.) Anyway.. at the risk of sounding like a stalker again you are in my thoughts a lot and I keep sending out positive vibes to you and mention you in my prayers. Love and light to you again. Val
How do you find the strengh to do all this. I keep thinking of you and check this blog about 4 times a day to find out how you are getting on. My husband thinks I am obsessed which I probably am I am just hoping and praying for a miricle and when you have gone will miss your blog however I am hoping someone will carry it on so we can help arrange village or town lectures on bone marrow donor or something like that. I am sure with all us noisy parkers reading your blog you could put us to some use.
Best of luck. Hope you are feeling a little better and that you enjoy being at home with your mum and dad I know they will treasure these lasting moments with you.
Hi Adrian, as I have commented before it is difficult to know which is worse the disease or the medication. I recognise many of the medication that you have mentioned from helping my beloved brother take his many tablets. It will be his memory on Monday, 3 years will have passed but it seems like yesterday since we were watching him go through all of this. I know our comments are incapable of lifting your spirits but I hope it gives you some comfort to know that your faceless friends are wishing you strength. Chris
Hi Adrian
You dont know me - I first heard about you on Radio 5 live with Victoria and since then I read your blog loads. I signed yor petition, I lost my fiancee 3 years ago to leukaemia, his was very aggressive and we only knew for 5 days before he sadly died.
You are one top top bloke and I'm sending love and hugs to you and your family - I know they'll be treasuring every minute they're with you,
take care
Jane xx
Oh Adrian - you had me at 6 years old again, listening to that song that I have not heard of in years! I remember the song getting faster and faster as it goes on and on - and that ending! LOL. What a lovely memory - I had forgotten it. THANKS!
And
Just a thought. Here I am, across the pond in a small town, Soddy Daisy (yes, really!) just north of Chattanooga, Tennessee in the USA, being incredibly affected by your journey and I wonder where everyone else is from? What other small corners of the earth you have touched? We know there are so many.
Anyone care to share where you are? I am sure we can about cover the map!
love and light
Annie
Hugs lovely boy. xxxx
Thanks for the wealth of information. Have a good weekend.
Anna
I just don't even know what to say, but am thinking about you. Am doing The Great Scottish Walk tomorrow in Edinburgh for Cancer and wanted to let you know you will be in my thoughts. xxx
really glad that cough, headache and swelling are under more control. would be immensely proud to buy you a beer and take you out in liverpool tonight.
just wanted to send you positive thoughts and hope you have a good night's rest and wake up tomorrow morning feeling good.
looking forward to your next post and the news on the campaign.
very best wishes
peter
Hi Adrian
I've been reading you blog for a while now and felt I couldn't leave without leaving a message. I'm a few weeks away from qualifying as a physio, and have am on a palliative care placement at an amazing hospice. Every single day I have been left amazed and inspired by each and every patient, family member, member of staff I have met. I've sat with people in their darkest hours and been absolutely floored by their strength, and it's a strength I can see in you through reading your words. I would give anything for this part of the world to not exist. It has however taught me so much, as a person as well as a physio, for which I will be eternally grateful.
You are an absolute star my friend. I will do anything I can to help your campaign. All my love and best wishes xx
Just wanted to thank you really. You have educated myself, and many others about so many things that I don't think unless being directly affected by, I would ever have known. I have been researching and of course reading your posts daily. I am going on Wednesday to donate blood, and looking into joining the registry. I was so scared thinking about it...would I have to leave my children? (I don't do that), will it hurt? (oh wait, I had two kids!!) And then I thought, What a small sacrifice to potentially save someone? It would be ridiculous not to wouldn't it?!
I also want you to know that I am looking at things (my life) much differently now because of you. Though these are obviously not good times, because of you, I feel different, dare I say happier? I am spending more quality time with my boys, (4 and 5). I just appreciate what I have. You are responsible for that Adrian. You are great!!
Sorry for the long post. Are you still with me?
In my thoughts, Victoria
Hello again...
I keep looking at my packed fruit bowl and thinking about you for some reason!!?? It makes me smile...I try to attack it on a daily basis...but salt and vinegar quavers keep winning! Keep strong adrian..until your next blog...
Glad the headaches have eased a bit...
Jo :-}
x
Hey Adrian,
I just read your latest blog, been checking seems like on the hour! I am so glad to hear the morphine is helping a bit and making you more comfortable. Just want to tell that I am praying for your comfort and that you continue to floor me with your wonderful spirit and courage! Stay strong and feel blessed in knowing that we all care for you and feel touch by you in our own lives. Once again, your a gift my friend....
Stay strong brother, Michael
Peoria,az USA.
Hi Adrian,
First read about you from my desk at work in Colorado. What is it about you and your story that has found it's way around the world and touched so many people's hearts? Truly inspirational and incredibly unfair all at the same time. I read your blog frequently and find myself hoping each day is better than the last for you. Let your mom and dad care for you the way that only a mom and dad can. Providing you comfort will give them peace knowing they were there for you when you needed them. Keep writing and spreading the word of donorship, the world wants and needs to hear your voice! :)
Hi Adrian, I'm pleased to hear that you're feeling up to reading your messages. Having poured so much time, effort, determination and information into your blog, it's fitting that in return you can continually read and digest exactly how much people think of you and admire and appreciate all that you've done and achieved. You've written honest and insightful accounts of what you've experienced and your talents have created such a powerful campaign.
Like everyone else, am thinking of you.
Hi Adrian,
In a previous comment, Annie said "What other small corners of the earth you have touched? We know there are so many." I totally agree with that: i'm from a little village in Brittany, France and i keep thinking of you, i think it's my third comment here, hoping there will be a miracle for you someday... soon...
All the best
Karine
Hi Adrian
I've been checking your blog for a few weeks but I'm a first time poster. Intrigued and excited about Monday's news and just wanted you to know that yet another person has been touched by your sensitive and moving blog. I've been on the BM transplant register for quite a few years and a while ago, I wasn't able to give blood because of medication I was taking. I'll try and offer my red stuff to the transfusion service again to see if it's good enough for them, asap!
Thinking very positive thoughts; hope you are pain free right now.
Vic x
Hi Adrian,
I've been reading your blog for some time now. I've often wanted to add a comment but never known really what to say (which hasn't been said already by the numerous friends you have around the world!) You are one popular guy! However, I'm only from down the road in Donny! You have made such an impact on my life and just want to say what an inspiration you are. I've signed the petition and would love to be able to donate blood/bone marrow however, I've looked into it and because I have ITP I'm unable to do so at this time but if the time comes when I can, then believe me I will. Sending you my love and support. Look forward to reading your news on Monday x
Dear Adrian
Yet again your stamina and sheer determination never ceases to amaze me. You are truly an inspiration......I just hope your medication can give some respite from these awful symptoms....
Thinking of you...
xxx Reiki hugs xxx
dawny
Hello Adrian.I keep searching for the right words but the only one which keeps coming into my head whenever I think of you is "AWESOME" You have touched the lives of so many people worldwide and trust me you have made a difference. An earlier comment used the expression "one top bloke" and as far as I am concerned that is how I will always think of you. I hope you find some painfree peace and please allow your loving family to treasure every moment of caring for you. Good luck and very best wishes from Diane xx
Adrian,
Been reading the blog for a couple of weeks now after seeing an article on you in the Daily Mail I think. Amazing how you find the courage and energy to do the amazing campaign when you are coping with so much.
God Bless
Adrian,
Saturday afternoon here in Canada. Was just in a café with my wife, talking about our week, and you. There must be sparks all over the globe by now with people who think of you on a regular basis. Hoping for you to feel better, and feel connected to a bright, thoughtful fellow who we wish we could comfort and support more.
Happy to know we can reach out to you and let you know we're sending good energy and healing thoughts your way.
Take care friend,
H
Wow. I think I lucked out because I didn't get infections and only had one Hickman line. I have had terrible reactions to my medications though, particularly my prednisone. I also have the hair on my face etc. Gawd that sucks.
My liver was also attacked and I've needed surgery on strange unmentionable places because of my Graft/vs/Host.
It's been a rough ride and I've almost hit 2 years post transplant. I'm really hoping things pick up soon.
It's been very interesting hearing your experiences with it.
Wishing you the best, love and more love
from Canada.
Just wanted you to know that, like many others, I'm thinking of you and your struggle, and wishing you..... well, what am I wishing? That you could be well again? That this wasn't happening to you, or anyone else, for that matter? Or the strength to bear this, and the peace of acceptance and that you know you've been loved, admired, and the inspiration of everyone that has been touched by your plight.
God Bless, Adrian
xx
Hi Adrian
Thank you so much for updating this blog despite all that is going on. Pleased that the morphine derivative is doing its stuff and you are a bit more comfy. Had to laugh at your Desperate Dan description as I was going to post something about Cow Pie the other day but didnt know how battered you were feeling at the time and whether it would have been a joke too far...should have known better :-)
Was talking to my husband's sis today, who as has been mentioned before, finds herself in a similar place to you. As well as all the sadness, anger, worry and distress going on, there is something else - a sort of peace maybe, or perhaps an acceptance, I dunno how to describe it, maybe you do - that has arrived with this stage of her illness. I desperately hope that you too are finding this 'whatever it is'....
How are the black eyes? Mine's still pretty ace, but suspect the green stage is on the way - a particularly attractive look eh? Time to sign off, so sending you another gentle hug and lots of love.
Cheryl xxx
PS shall be nagging our football club (Notts County) to run another piece on their website about bone marrow donation next week, fingers crossed.
Hi Adrian,
Hope you're feeling well today and just wanted to say I'm thinking about you and praying for you.
Annie, I'm in Cedar Park, Texas -- a suburb of Austin. Never heard of Soddy Daisy before -- what a name! I bet it's pretty there, though. That part of the country is very nice!
I think about you every day (weird, since I only know you through this wonderful blog) but i am wishing you peace, comfort and many laughs.. you're quite a gift.. kindly, kimberly
Reading through all the amazing comments, poems and personal accounts you receive after each post restores my faith in humankind - yet another profound and positive effect your blog is having! I also agree with all those people who say - as far as your looks are concerned, you really do have nothing to worry about!! :)
...Thought I'd let you know, I went to see my local MP yesterday, about your campaign. This was on the basis that he's my rep. in parliament and this has become an issue which concerns me, personally. Not really sure what I was doing - or what I thought I'd achieve, I suppose I felt a "multi-pronged" approach may put even more pressure on the government to act!
It turns out the MP knew all about your story and campaign - and is right behind it! Long term, he agrees with your objective; a talk to SIXTH FORM age students in order to ensure a constant stream of new potential donors. In the short term, he's pledged his help with setting up donor recruitment events in our area, in conjunction with large local employers and the Anthony Nolan Trust. So there you have it - politicians do work for us!! I will be doing my best to publicise the events as soon as they've been set up.
Now, a quick query - is there a 'physical' paper equivalent to the e-petition? Is there anything which can be printed off and pushed under people's noses to sign? (which obviously counts towards the same thing) I'm thinking about people who may be a tad technophobic - or even don't have a computer!!
I hope you're feeling more comfortable and are in better spirits. You really are truly amazing and widely loved.
Love and best wishes to you and your family
Charlotte xx
Hi Adrian
How do you do it! I checked your blog this morning and again when I arrived home tonight and there you were. Thank goodness! I'm relieved you feel slightly better today and amazed, as I have been throughout, that you are still thinking of others. What a blessing you are to all who read this. As I've said before, you have changed lives in ways you wouldn't even realise. I've been with a group of friends this evening for dinner and I got the conversation round to you, told them about your campaign and what you are managing to achieve. They all listened, and I surprised myself and them with the passion with which I spoke. Hopefully they too will talk to others and word will continue to spread. And so it goes on...
Well, I hope you have a better day tomorrow, and lap up all the love around you. It's only right you have some fuss after the hectic past few weeks! Thinking of you constantly and sending good vibes! Special love to you Adrian, and love and best wishes to your family. Barbara xx
I spent yesterday lunchtime at work reading Lea's transplant blog, so your latest post only confirmed the sheer scale of the challenge faced by transplant patients, if only in terms of the huge amount of medication required, and the horrible symptoms and side-effects suffered. I am massively grateful that I have only experienced the other side of the deal, as a donor, am ever more sure that donation is a walk in the park by comparison, and can only encourage more people to give it a go and give someone a chance of beating this thing.
Best wishes Adrian - I think of you a lot and hope you're doing okay.
Hi Adrian
Just wanted to drop by and say hi as I've been following your story for a while now. I have a beautiful 9 year old daughter with a brain tumour who was on chemo for 18months and then off treatment for two years and then she relapsed last summer and is back on chemo again. We therefore know how lonely, frustrating and unfair it can all feel at times. You are truely an amazing person and remember that alot people will live to an old age but never make an impact on the world as you have. May God Bless you.x
I just wanna give ya a hug
hugsssssssssssssssssssssssssssss
Hi Adrian,
I've read your blog for a couple of months now. I'm aware that you've heard it so many times before and it's been written so many times on here too but thank you for taking the time to write this blog, to be so honest about how you're feeling and sharing with us your ups and downs.
Your blog is the first place I come and look at when I'm on the internet. It's made me laugh, it's made me want to reach into the PC somehow and give you a massive hug and also it's brought on sudden dust outbreaks in my eyes too.
Above all else, I'm in awe of you and the selfless way you've plugged away with this fantastic campaign. You've achieved more in just a few weeks than I'm sure you ever hoped possible. I've been on the register for a few years now but busy trying to convert some mates into it and hopefully they'll do the same with theirs and so on...
Look forward to hearing about the big event. It's bound to good and if we can all help to publicise it any more, you know we'll all do our best.
I'm rubbish at articulating what I really want to say but you're bloomin' fantastic and I'm thinking of you, your family and friends a lot and sending tons of love your way.
Take care and long may the headache, cough and swelling be on the wane.
Toni xxx
Hi Adrian! I am learning so much from your blog. Most importantly though, I am learning how important it is to be surrounded by family and friends. Let your Mum and Dad take care of you. Draw strength from them. You are so blessed to be able to go home. I hope you have a comfortable night :-)
Love and blessings to you and your Family
You all remain in my prayers.
Janet
Somerset West, Cape Province, SOUTH AFRICA
Hi Adrian
You know that photo you posted yesterday? It was Paul McCartney (c.1976) to a tee. Go on, have another look and tell me I'm wrong...!
But that's not the reason I'm writing again. I just wish you could see what a difference your words have made to me. You've provided me with a guide for life, and a guide for facing the next.
Prolific motivational author Orison Swett Marden wrote: "The greatest thing a man can do in this world is to make the most possible out of the stuff that has been given him. This is success, and there is no other."
You have absolutely lived this maxim with wit, style and dignity, and that is why there are so many of us out here in cyberland embracing you and thinking of you. You've no need to thank us for writing to you: it's our privilege to be here with you.
Love, Amanda
my prayers are with you and your family...i have said this before and I truly hope someone puts all of you blogs in a book for us to have for a life of inspirations; when we think we are having a rough time. thank you for the courage to keep us updated....may God hold in the palm of His hand..bless you dear Adrian..a friend
Every entry into your blog is another learning experience for the rest of us. We truly have no idea the things you have to deal with when it comes to treatment and medications and the aftermath. My admiration for you and all cancer survivors grows daily Adrian! We probably all know someone who's struggled with cancer, but do we really know what they're going through? Are we doing all we can to help them through this?
I can easily see why they'd want to put you on anti depressants! It really IS alot to have on your plate all the time. The fact that you're able to keep such a good attitude is truly remarkable. You, dear Adrian, are a rock star of epic proportions!
As always, love and prayers to you and your family, and hope that you're feeling a whole lot more comfortable than the past few days have been.
Beth
usa
Hi Adrian,
Your posttransplant information is so well explained and was a good review from my immunology and medical classes. I am sure you will help countless others prepare for and make it through that stage. I am always so impressed by your warm thoughts towards others, so many of whom you haven't met. Your level of generosity is rare, I believe.
So glad you have some relief from the splitting headaches, vomiting and swollen neck/jaw. I hope your eyes are healing alright too.
I have great hope that your days will get better (good trend you could use) each day and you can think about fun ways to see your friends and family rather than focusing on new symptoms.
There isn't a name in Latin for your journey - triathalon doesn't cut it...duodecahedron (no, wait, that is a geometric shape!). Well, I am so glad that you got some trophies - you deserve them!
I am glad to hear you get to read the posts, because although our good vibes are out there crossing oceans, rivers, streams, either way, I am glad you see how many and how far and wide they come from.
Love and Smiles for you,
Margaret
(USA)
Truly you are an inspiration to many! As the mother to a 16 year old boy who battled Leukemia at the age of 4, I truly appreciate everything you've done and everything you've gone through.
Please know - I'll keep you in my thoughts and prayers. Your courage and your positive attitude will not be forgotten.
Lots of hugs from Maryland!
Maren Trammell
Hi Adrian,
I just wanted to make a suggestion to you..sorry...peanut gallery :). I would suggest not taking yourself off of the fluoxetine. I also take fluoxetine and started taking it after my tumor was found. It is extremely helpful and benefical to a stressed out mind. It really helps take the edge off of stress/anxiety and emotional turmoil. Even though you have never been diagnosed as clinically depressed it is, I am sure, still helping you. I just felt like I needed to say something as a cancer survivor and a fluxotine taker. Please reconsider, doll.
Rachel from Connecticut
"I am also coming off the anti-depressant fluoxetine because, I have said many times before, I know I not depressed, just have a lot on my plate to deal with."
I've had to say that SO many times to doctors! It frightens me how often they just want to dole them out as a matter of course. Hey Dr dude, i'm just young and ill and trying to deal with a lot of symptoms that never leave me alone, I have enough common sense to know i'm not depressed!
- My favourite one was Prozac, pretty much fine before it but suicidal after two weeks on it... reverse psychology in med form? ha ha, never again.
Well Mr Suds, you're as wise as you are inspiring. And addictive, your blog obviously comes in opiate form! I think if miracles came from people wanting them for somebody, you'd be pogoing round an LA mansion by now.
I'll honestly say that if I can do an iota of the good that you've done (in the last few weeks alone) by the time my i'm outta here, i'd be very well sated.
Millions hanging on your every word? By golly I think the man's got it! :-)
On that overly English note, 'til the next Sir!
JJ x
Adrian, What an amazing and lovely person you are. I don't think this disease is what made you that way. You had to have been that kind of person from the start. I think it was born in you. I think we are all born with a mission, however long or short our journey here is. I'm not sure I think you (or anyone) were born with THIS mission. I think our mission is to take what ever life hands us and squeeve everything good we can out of it. I am sad to say I have not always done that. You are doing exactly that. You are turning it into a journey that will hopefully save lives, awaken people to how easily they can matter to someone else's life, and change the out come. I am so very grateful I discovered "Baldy's Blog. That you have shared your journey with me has changed my life. I am a better person and will constantly strive to be a better person by looking around me and seeing what I can do to make someone else's life better no matter how large or small everyday. Everyday I will look for some way to make someone else's day better and be grateful for the teacher (you!).
My prayers are with you constantly. I also look at your blog several times a day to see if you are still able to share yourself and your journey and am grateful for everytime you are there, you teach me something new all the time. My prayers are also with your family while they travel this road with you. I know that God will give them what they need to travel this road with you. HE will give them love always, and strength. They will be forever gratelful to have you in their life and I will be forever grateful for how you touch mine. I live in a small city in Clinton, Mississippi USA and I am telling you this just so you will know how far your generosity and selflessness has reached. To your mama and daddy and Carrie I want to say God has blessed you with an amazing and lovely son and brother in your life and I know you already know that. I just wanted to let you know that MANY of us know that too in the way he has touched ours. Take of eachother and Adrian, THANK YOU
You are truly inspirational to have shared so much of your journey. I have told my friends about your blog and they in turn tell their friends and slowly but surely your message reaches far and wide all over the world and will continue to do so, helping so many who are suffering and inspiring so many more to donate.
Our thoughts are with you.
Fiona and family
Gladstone Australia
Hi Adrian,
Just checking in with you to let you know we think of you often. Thank you for keeping your blog updated to let us know what today's "adventure" is. I am closing my eyes and sending you a warm hug - - - - did it get there? Love to you Adrian. Keep out of pain as much as possible.
Ryan has been cooking a lot this weekend and running his model train. Love to you, Amy Patrick
Hi Adrian
So pleased your pain is being managed now, and I am looking forward to further news on the campaign on Monday.
Adrian if love, prayers and willpower could cure you, you would live to be a 100. Your cyber family are willing you to get better every day. It is strange than none of us have met, yet we all want one thing, just for you to be well.
Bless you
Ree
Hi Adrian
I am glad to read that your headaches and swelling are getting better. I want to say how fabulous you are to share your experiences with us. You have done and continue to do, invaluable work in getting the story of blood cancers, bone marrow transplants and the complications and mortality from the diseases and the treatments.
I admire the very accurate way you have reported these issues through your blog....you have demystified many aspects of the diseases and especially bone marrow donation. You will leave a legacy from which many people will benefit.
Thankyou for sharing your life with us, thankyou for your intelligence, humour, humanity and strength.
Warmest wishes to you and you family,
Clare
Hi Adrian, hope this Sunday morning finds you feeling ok and pain free. Your piece on post transplant for people like me who haven't a clue was great to read. As always you tell it how it is with the facts and great humour which is amazing. Some great writing, this blog should be put in a book form for the education of young people,and as an information tool for everyone! Hope you have a good Sunday....
Love to you and yours
Nickix
Hi Adrian
I have read your blog daily since you appeared in the Daily Mail and although very cheesy it reminds me of the great JFK quote ' ask not what your country can do for you - ask what you can do for your country '.
You have been selfless in your campaign Adrian and with your personal emotions, no indulgence in self pity, but have used your situation to help thousands of others.
Your regular blogging brings comfort to me and for the first time, I have felt less alone as the mother of a sufferer. Family and friends have been great but do not understand the continuous, grinding medical implications and still ask crazy questions like 'Is he better this week?'when he has a year and a half of treatment still left.I've directed as many as possible to your blog as you answer so many of their questions for me so want to say thank you from the bottom of my heart.
Hoping you are comfortable today and wrapped in the love of your family, I hope you really understand that you are one amazing guy.
love and hugs
Sally x
Adrian,
I hope you have had a restful night and that you and your family are enjoying the company of one another. I'm glad the headaches have subsided.
You write so well...the information and education that you have given to so many people is outstanding. I wonder....could the blog be turned into a book with proceeds going towards Anthony Nolan?
Your words a truly inspirational - as I have said before, any support we can give to the campaign, we will.
Take care.
Diane x
Adrian - you are giving the world a reality check, god bless you for that.
I love the fact that you tell it as it is, leukaemia, cancer has become such a part of everyday life that we forget what an enormous thing it is and what thousands of people are going through every day.
You may be feeling weak but you're voice is one of the strongest i've heard in a lot of years.
Keep on blogging
Lorraine x
(fellow cmler)
Hi Adrian,
I struggle to find the words to express just what an incredible, inspiring and amazing individual you truly are..
They say that "Actions are the measure of the man"..
Well...your tireless campaigning to help others is an incredible testimony to the incredible and special individual that you are.
I am so blessed to know a little of you through your blog.. and hope that the posts from us provide a little sunshine to you.
I had a fabulous evening with friends last night.. lots of wine and laughter and it actually made me think of you, because, from your posts it sounds like the kind of evening you would have loved too.
Love, hugs and prayers
Laura
XX
hi fella
stay positive
stay strong
keep going
an u fight it
mate
baz an dawn.......
You and your family are constantly in my thoughts. My mum is having a 2nd BMT a week on Wed.
I think you are a very brave and couragous person.
xxx
Hi Adrian
The drugs lists sound all too familiar - keep taking them and who knows what the future holds.
Best Wishes as always to you and your family.
Liz
Oh yes.. also forgot to mention that yesterday's evening also reminded me of you because it involved dancing... yes I remember reading about Sudders busting some moves on the dance floor!!!! ;)
XX
I've been following your blog for a while and just wanted to send you a message to let you know I am thinking of you and sending support. Your blog is a most inspiring one and your determination and strength come through every message you write.
Hi Adrian, I've been checking each day for any updates and feel so sad to see how your body has been betraying you. I've been avoiding going onto disatinib despite my oncologist wanting me to go onto it due to the side effects. It's a particularly sad day today for me as another person I have found absolutely inspirational, Jane McGrath, wife of Glen McGrath the Aust cricketer, died this morning after a really long fight to beat cancer. There are just some people in the world you hope beat this f'ing cancer. And you are certainly one of those people. Take care and a big hug from the other side of the world,
Steph from Australia.
Hi Adrian, just wanted to say that I've just ran "The Race for Life" and you were the person for whom I did this. I must confess it was more of a shuffle than a race! I'm so pleased to know that your medication seems to be stabilising your extreme problems, and long may it do so. Thinking of you and praying for a miracle. Keep strong.
Lots of love
Sandra Shave
Reading your latest post I was reminded of the favorite quote below from someone who sadly lost their fight with cancer earlier this year felt it was something you might relate to and smile at!
"Life is not a journey to the grave with the intention of arriving safely, in a pretty and well preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming to all in the universe: 'WOW! WHAT A RIDE!'"
Enjoy the love wand warmth from those around you.
Hi Adrian,
I have been following your journey for some time now and have a favour to ask you.
I am a counsellor and will be starting my M.A. in January next year. My dissertation has to be based round some new research re counselling and I was wondering if you would allow me to use your amazing blog and people's responses as the basis of my thesis.
I know that you are having a very tough time and that you have many much, much more important things to think about so a quick 'yes' or 'no' would be fine. I will truly understand if it's a 'no' and no explanations needed.
You are, as always, a constant in my thoughts and prayers.
Sending you much love and good energy.
Julia xx
Hi Adrian,
Really happy to hear that the morphine is helping you. I hope you remain as alert and pain-free as possible for a while longer, and that you can continue to share your journey with us.
Hang in there. You are an inspiration to us all.
Hello brave boy. I was speaking about you to friends at a dinner party last night, some of them doctors, when my husband said that he thought it was necessary to take cells from the spine for transplants. Needless to say I enlightened (gently because he's nearly 70) him. Two of the doctors thought the same!!!!!! Education is obviously absolutely essential. We brought out a laptop and everyone there signed your petition - small result, but I keep talking. Like others I do have a concern when you haven't posted for a couple of days, without being a stalker. You are in my thoughts and heart. With what you have done/are doing you must be one of the greatest forces for good currently on the planet. I hope your Mum is getting lots of hugs and you are enjoying being 'looked after'. Glad the 'mumps effect' is reducing and you are slightly more comfortable.
Hugs xx
Hello Adrian,
Just checking in again to say I hope you are having a happy Sunday with your family and are pain free today. Thinking about you A LOT and sending out lots of good, positive vibes. I went to church this morning and lit a candle for you. Don't know if that sort of thing floats your boat but just want to keep doing something to say "we are still here with you and are cheering you on".
Thank you for the recent posts. You are making me laugh, making me cry, educating me and making me look long and hard at my own life. Most importantly, you are making me take action regarding the bone marrow register and blood donation.
I often think of you at night and hope that you are sleeping well. I had a serious illness a few years back and I found the night time terrifying when I couldn't sleep and it was too quiet and my brain had too much time to think etc etc. I suppose I'm trying to say that we are here for you ALL the time. Someone somewhere in the world is logging on to the blog to be with you 24 hours a day.
Now I have made myself sound like a crazy woman (just can't express myself in words like you can !)I will go and make the lunch and raise a glass in toast to you.
Take care, love and hugs
Sara
I can't wait to see what news you have for us now.
Adrian you are such a great man. I like many others check on here regularly waiting for your next inspirational posting.
I think we should be called Adrian's groupies'. Well hope that brings a smile. Just think Adrian you have hundreds, if not thousands, of women in awe of you. Now not many men can say that.
Take care and enjoy the time with your family and that great group of friends you have.
Amanda xo
hi Adrian thought you might like to know iam from North Devon and think of you often as do so many others all over the world sending love to your loved ones and to you xxx
Dear Adrian-I have been following your blog for weeks but haven't left a comment until now. A dear friend lost the battle with AML and I was her primary caregiver- everything you write brings back all the precious memories and the pain and laughter (at the most ridiculous moments) to me and she lives on in my heart and those of so many others. I am not sure that "lost the battle" is really appropriate--she was a winner but it seems people project their loss on the person moving on to the great adventure. I remember vividly how difficult it was for us to get strait answers out of the Dr.s--no one wanted to tell us the battle was over--one day we got a report-the Dr. left and we just looked at each other --she told me she new she was dying and wanted to know how long-what would be most likely to happen-we talked perhaps the most intimately two people can--she was not afraid --told me she felt comfort from God and was just curious about what was ahead-on the other side-she was 49. When I got the Dr.s back in and told them we did not want to hear possibilities any longer just give us the strait truth they were uncomfortable but did what we asked. Barbara was relieved to have her own inner voice confirmed---I was shattered. But we have both moved in different directions and I am eternally grateful for the gift of her friendship and trust. I pray for you daily and admire your courage, honesty and integrity. I pray your miracle will come inwhat ever form you desire---how brave and loving you have been and what an impact you have made in this incredible painful journey you and your family and friends have traveled. I wish you and those who love you peaceful rest and laughter.
Hugs and kisses for a selfless soul!
Sending you best wishes from Trinidad
xox
tash
Hi Adrian,
Just thinking of you and wanted to send you love and good wishes for the week ahead.
romy
Adrian
Have been following your blog for just a few weeks now after seeing you on BBC breakfast. I don't know what to say to to you, except that you truly are an inspiration. You are obviously much loved and you have made a difference in this world with your campaign, and will continue to make a difference for a very long time. I wish you all the best, you are in my thoughts daily.
Love, Mazza xxx
Hi Adrian - I've just chanced upon your blog after a random Google search. I'm extremely moved by your courage and words.
Wishing you well
Stephie from Singapore
hi adrain
just wanted to say i am thinking of you - everyday and spreading your message to as many people as possible...
hugs and kisses
beth xxx
Adrian,
Glad you are feeling a bit better and your headache and cough are now better. Becky has got her Prom on Friday, its doing my head in!! What with the false nails, fake tan and hair extensions.... Not to mention the dress!!! If you wish to see a photo of her I will be putting one on her caringbridge site on Sunday. (got work Sat) Thinking of you Love Dawn xxx
PS Becky`s site is: www.caringbridge.org/visit/rebeccaaldridge
FOR CHARLOTTE NEWELL
Hi Charlotte,
I'm a colleague of Adrian's and helping with his campaign (the boring bits!). Just trawling through the fab blog comments and came across yours re: request for paper copies of the petition. The only problem with sending petitions all over the place is that we need to be able to easily retrieve them by July 23 (when the online version closes) so we can count up signatures and deliver them to Government.
Can I suggest instead that you write a template letter (I will even do this for you if you like) asking the Government for basically what the petition demands - standard education across the UK about organ, blood and bone marrow donation for sixth form students.
This letter can be given out to people to send to their MP - it's basically a case of simply signing it - and the MP seems really supportive so he could pass this on to Government. It will really give weight to his efforts in the same way a petition would.
I hope you see this post. If so, drop me an email at katie.campling@examiner.co.uk and I will sort you out with the template.
Hi Adrian
I am really pleased to hear that some of the horrible side effects are subsiding and I hope you are enjoying spending this time with your family and friends.
Today I ran the Jane Tomlinson Leeds 10k (ouch!). My charity was Jane's Appeal which essentially funds cancer charities and hospices in the local area. This was my first ever "race" and I have to say I have a new found respect for Jane having completed the race today - I have no idea how she managed to
achieve all she did when she was so ill. What a total legend that lady was!!
As we were just about to start we all cheered and clapped in memory of Jane and I was suddenly struck by the similarities between the two of you.
Both of you struggling with a personal tragedy and illness yet still smiling, still thinking of others, still trying to make the world a better place before you leave it. What amazing people!
So through cyber space I salute you, Mr Sudbury. I shout, cheer and whoop for you and all your courage and achievements. I only hope you have some small understanding of all that you have achieved and the amazing legacy you will also leave.
All the best. Looking forward to hearing the news about the campaign in the coming days.
xxx
Adrian,
I have been following your truly amazing, but heartbreaking story over the past few months. There really are few words to describe you, you have totally blown me away with your bravery, courage and such determination.
I signed your petition right at the beginning and see it is going so very well, which you really do deserve.
I am 17 and truly believe that people my age do need to be educated about donation now as the decision is then ours for when we turn 18. I gave blood very soon after my 17th birthday and am definitely considering becoming a bone marrow donor when I turn 18 (whilst my name is already on the organ donor list) The word really does need to be spread to people my age, even just to explain the sheer importance of donation; especially as so many of my friends and I'm sure others, don't understand the urgency for such resources, ie blood and bone marrow. When I comment to them about giving blood, some just say, “Oh, but I hate needles, so I couldn't� but when I say to them “Yes, but if you needed blood to save your life, I bet you would be willing to receive it,� to which they all answer…“yes.�
This is then a similar situation for potential bone marrow donors, however, people really must try to think of others when making such life changing decisions about donation.
Adrian, you should be so proud of yourself, as I'm sure you're parents will be, and the thousands of others following you from around the world. The awareness you have created is totally outstanding, and I'm sure it's only just the beginning, .
You, yourself, are a life saver, at present and far, far in to the future. You are a such special person.
My thoughts really are with you and your family.
All best wishes,
Leah x x x
Adrian,
I have been checking your blog every day for updates for a while now. There aren't enough words to describe how much of a fantastic inspiration you are to a huge amount of people. I just wanted to send you, your family and friends my love, thoughts and prayers.
Keep up the brilliant work and look after yourself.
Peace, Love and Empathy
Tracy x
Hello Adrian, I was diagnosed with chronic myeloid leukeamia in 2000. I had a bone marrow transplant in 2001. I was very fortunate, because I have two sisters and one of them was a perfect match. I too spent many many hours, weeks and months on P3 and infections used to raise their ugly heads regulaly. All the medication you talk about rings a bell! I used to be on 33 tablets a day. Over the years the words catastrophic infection have rung in my ears a few times i.e RSV & CMV. But I write to you feeling in awe of your courage and inner strength, with how you have lifted yourself above your diagnosis, to think of others, dedicating your time and effort , which I know WILL be an effort, to help anyone in a similar position as we found ourselves in. I followed your blog from the start and have found your character and sense of humour have never faltered through the good and bad times you have had to encounter (I'm impressed). I can't tell you how gutted I was when I heard your news,I know all too well how it feels to have that 'relentless' black cloud above your head while you wait for the routine tests to show clear. I really do appreciate how very fortunate am I to be here seven years later after my BMT, I wish so so much that you had had the same outcome as I so far have had. All I know is that anyone who is faced with this illness will only have to think of you and your relentless positive mental attitude (which I think is vital)and with providing in detail the information of what to expect will make their treatment alot less stressful than it would have been. With my thoughts and best wishes.
Dear Adrian,
Thank you so much for posting your situation on a frequent basis. You are going through so much and I really appreciate that you are taking time for us also. I am sure many if not all of us need to know how you are everyday. Keep up your spirits by laughing and enjoying your family and friends. You have had a very rich life and you are blessed. I wish you a good day tomorrow.
sincerely,
kathy from USA
Hi Adrian,
Like so many others I am with you every step of the way. I lost my boyfriend to Leukiemia last year and although your case is different the emotions are very much the same.
Thank you for what you have done and what you continue to do. I wish more of us had your strength.
Vikki
Dear Adrian, Wishing you a peaceful and pain free night. Love to you and your wonderful supportive family. I continue to pray for a miracle. xx
one in a million thats all i can say
Hi Adrian:
How amazing you are to write such informative, educational posts and let us all know how you are doing. I take comfort reading the comments and seeing the great things that people write to you. Here's a funny story, my daughter and I were traveling back from North Carolina today and there was a poster for a cancer foundation started by Jim Valvano. My daughter looked at it and said, "Mom, is that your friend on the internet?" Meaning you! It was too funny and I thought you would get a kick out of it. I said, "No, his name is Adrian and he lives in England." Glad to hear that the headaches are lessened and you sound a bit more comfortable. Thinking of you every day and sending out thoughts for your comfort.
Best wishes,
Caitlin
from the Rocky Mountains of Denver, Colorado, USA
You are an incredible inspiration! Your strength and dedication to making a difference is inspiring. You are a strong person who has handled this situation with amazing grace, dignity and honesty. You will never know how many lives you have impacted and hopefully saved by your brave and determined campaign. My thoughts and prayers go out to you.
Adrian I am away and writing on my mobile phone at the moment but I wanted to send you all my love, am still reading your blog - even with this terrible 'middle of nowhere' wap connection! Its like being out in the sticks here!
Your bravery still amazes me, and grats on the Westminster event too!
Thinking of you,
Caroline x
Adrian: I have been reading your story for a long while now but I have never commented since I thought it would be overwhelming for you to read a note from every person world wide that are thinking and praying for you.
But I saw something yesterday in the big island of Hawaii where we are on vacation. They were having a big bone marrow sign up in front of the KMart in Kona. Kmart is the local big discount store. It is so significant because Hawaii is made up of many different cultures and they will probably add many people of different nationalities to the list world wide. I think you have a lot to do with the increased awareness of bone marrow donations. Your life, blog and example will save many people. I am very sad that it will not save you. I keep you in my prayers every night and thank God there are people like you in this world. Aloha. Linda
Dear Adrian I have been reading your blog for a few months now and am amazed every day at your strength and attitude it has certainly helped myself and friends through a very difficult time. My friends 3 yr old son and a pupil of my nursery was diagnosed 2months ago with leukaemia (philadelphia chromosome).We are searching for a donor with the local school holding a blood donor session tomorrow afternoon the whole village will be turning out not only to help him but the many others you mention. We fully support your campaign about young people being informed and my 14 yr old son as school counseller is going to raise the issue at the next meeting. The video showing the donation is excellent and has dispelled many fears everyone should see it. I know you are going to succeed in your campaign and look forward to hearing more news. Big hugs to you what a truly gorgeous person you are Debbie
Hi Adrian
have been reading all about you after I saw you with Natasha on ch5 news. You are so incredibly brave.
I have a heart transplant over 20 yrs ago. Swallowing pills is a small part.
Keep Smiling...Desi :-)
Hi Adrian,
I was diagnosed myself with ALL (Acute Lymphoblastic Leukaemia) a few years ago and reading your blog remined me about what an important cause you are campaining for and reminds me of the highs and lows of treatment.
Luckily I didn't require a bone marrow transplant but saw many people during my 12 month treatment recieve one and go on to live a completely normal life just by somebody giving a tiny blood sample.
In addition to the bone marrow itself its important for people to realise that blood donations are also a vital part of treating leukaemia patients. Without these no patients would actually even make it to the transplant stage.
All the best with your current treatment keep your chin up.
Adam.
Hi Mate
Just you hang on in there - there will be good days too! Your mum and dad will be happy your home with them so thay can look after you - like parents want to! I know your weaker but just remember you have so so many people wanting to wish you and your family the best and you could email any person on here when ever you fancy a wee bleather!
Keep strong and i hope you have a good day soon
Derek
ummm.... yeah... after reading all of those pills (okay, i stopped after the one that sounds like chlamidia)... the things i'm left with is...
1.) the old lady that swallowed a fly song
2.) don't catch what you have (haha... catch it... because cancer is contagious. too soon?)
3.) i hope you have really good insurance
thank you for continuing to post. i send you virtual beer. and/or chamomile tea.
Hello Adrian,
Like many others I have been checking your blog for weeks now after seeing you on the BBC website and am finally adding my tuppance worth.
I'm a Brit and have been living in Orange County, Calif. (just outside Los Angeles) for about 20 years now and you make me proud to be British! I have lost close family members to leukemia (dad) and cancer (mum and brother-in-law) and currently my sister-in-law here in Calif. is in remission from an aggressive form of Mantel Cell Lymphoma. I watched her go through a successful bone marrow transplant but believe me I thought we were going to lose her! What incredible strength she showed and what incredible strength you show!
You inspire me and millions of people, Adrian!! Your parents along with the rest of your family must be so proud of you!! Truly!
I continue to pray not only for a miracle but that your day-to-day suffering is minimal.
What amazes me are the comments posted to you. Aren't they incredible? They bring a lump to my throat!! To know that there are people who care gives us all hope! What a difference you have made in this world, Adrian!!
Good luck with the campaign (I signed the petition) and the British Government! If anyone can make a success of this - it's you!
All the best,
Jane, Irvine, Calif. (originally Ilford, Essex!)
Not much to say really just that I wish you weren't feeling so sick and that I am thinking of you and would like to send you big polar bear hugs from Juneau, Alaska :)
I found myself cleaning my teeth this morning and trying so hard to refrain from crying yet again as I told mum what I had read. Last nite, captured by your words, I stayed awake into the early hours to catch up on the latter of your journey, and I found myself reading things i'd hoped not to read......the outcome we had all so not wished for.
Today, I feel deep sorrow and heartache. Im angered by life's unfairness and how there are no answers as to WHY? What I say will be inadequate and what I feel, doesn't even compare to the depth of your emotions Adrian, I am just so sorry. Throughout, you have asked for no sympathy but its difficult not to feel this way because, we too have travelled with you on your heartfelt, truthful journey. Through seeing you, hearing your voice and you responding to our posts, people now see you as a friend rather than a stranger.
Last time I wrote, I mentioned that mum had been ill with breast cancer and that her friend had been diagnosed as terminal. They are both doing well just now but once again, for reasons unknown, my family and I, find ourselves surrounded by more cases of illness and upset. This is I guess, part of life, and will continue to be much harder for some more than others. With regret, you have been one of the unlucky ones, however you've found inner strength to bear your situation. As a figure of inspiration, you have strayed from self pity and instead, have been so giving to others. You are in every sense of the word, courageous.
Your story is one that we as humans, may perhaps obscure from, because it's easier to avoid sadness than to know of it. But myself, along with thousands of others, have chosen to have insight into this particular chapter in your life. The response alone says so much about you as a person. You've had a profound effect on us all and are widely loved for being you, your truly amazing. My approach towards life has changed and I can 'thank you' for playing a part in this. I have become more accepting of the fact that life for all of us is impermanent, it's like an illusion. Through you, I have seen how one person can evoke such immense emotions, a colossal tidal wave of love and human kindness that has travelled across oceans. All because you made that first ripple in the water.
I truly hope your smiling just now, and circled with the love and warmth of your family.
They have been blessed with one of life's *angels*.
Natalie Willacy, 24 (Preston)
Hey Adrian
I read this quote and thought of you.
"We must never forget that we may also find meaning in life even when confronted with a hopeless situation, when facing a fate that cannot be changed. For what then matters is to bear witness to the uniquely human potential at its best, which is to transform a personal tragedy into a triumph, to turn one's predicament into a human achievement"
Viktor E. Frankl,
Might be worth checking out his books.
Also if your still having headaches have a look at EFT I suffer too mith my bone marrow disorder and EFT really helps clear the headache and cloudiness.
Hope things are going well.
Love Melanie
Hi Adrian, I've been reading your blog for some time now and I felt I just had to post a message. You are one of the most inspirational people I have ever come across. Your courage and strength in dealing with this is amazing.
You are really making a massive difference and when there is finally enough people on the bone marrow register prepared to save lives it will be down to what you are doing now. You are always in my thoughts and prayers.
Elaine Cooper,
County Durham
Just checking in with you again.please take it easy now lay back on the lawn and watch the clouds float by..we are all thinking about you amazed at you humour and drive.love to you and your family.x
Adrian, I wish I could put in to words just how incredible you are, I think of you often and wish that a miracle could happen to heal your pain. Thank you for making the world a better place! Please let us know how you are?
Hey Adrian,
Just checking in after being gone awhile. Thanks for your continued honesty about your condition and treatment. I believe that you are providing valuable information for people considering transplant. I am sorry that your are having such a horrible reaction to the Dasanatib (sp.?) I remember Tom having nausea and emesis issues for two years post-transplant. One doctor said that it might be a reaction to one of his post-transplant protocol drugs. So we started reading the side effects of each drug he was on and they ALL listed nausea and some sort of stomach upset. I hope you get some relief from the swelling and sickness.
I believe some are put on this earth by God to be a marking post for the rest of us. These souls are in our midst to remind us, prove to us how much like angels we can be. And so you are one of the chosen.
I'm glad you are feeling a bit better.
hi Adrian!
Sorry i did'nt write for such a long time but we have been dealing with lots of things through this months!But you are always in my prayers!!A big hug from Italy
Hi Adrian well done with the campaign its looking good. I just wanted to say that my friends 3 yr old son (mentioned in previous post) has been matched with a donor thanks to this amazing register. Without the transplant he would not survive as his condition is so rare. I want to say thank you so much for your amazing efforts and we fully support you and the campaign. Wishing you well you are a great inspiration.Debbie Callway
Hi Debbie - that is great news! Please pass on my regards to your friend's family.
Hopefully if this campaign is successful that will be increasingly common for all those people in urgent need of a bone - sorry - stem cell transplant (Ann is quite right!)
Best wishes,
Adrian
Dear Baldy's Blog readers,
I just found out - totally unexpected - that here Adrian in his kind answer to Debbie was talking about one of my simple suggestions posted much, much later than June 21 (on July 19!). It made me feel very warm inside that he really read all the comments and suggestions we wrote on his blog, and thought about them too. Thanks Adrian!
It is a pity that because of historical reasons Registers are still called 'Bone Marrow Registers' instead of 'Stem Cell Registers'. Because on the other hand, the term 'Cellular Therapy' (stem cells, dendritic cells, donor lymphocytes, mesenchymal stem cells,...) is on the move!
Ann