Adrian Sudbury has been a reporter for both the Huddersfield Express and Chronicle Series and the Huddersfield Examiner. In November 2006 the 25-year-old was promoted to digital journalist, effectively editing the new-look Examiner website.
Just two days into his new role he became seriously ill and called in sick. A week later he drove himself to A&E and was eventually diagnosed with leukaemia.
It was then identified that he actually has two distinct types of the disease running at the same time. According to the medical literature he is the only person in the world to have this condition. As such, it has not been possible to offer Adrian a prognosis.
Here he shares his experiences of the disease and his treatment.Thanks again for every single incredible comment that is being posted. I really want to reply to you all but I am just not capable of doing it.
I just want you to know I read them all in the morning, throughout the day, and often at night too.
My doctor, and excellent local medical team, was speaking to me about it yesterday and I said: “How can all these positive thoughts from all over the planet not be lifting my spirits?”
I think they all understood.
The morphine derivative is helping control my headache and cough. The ridiculous mumps-like swelling is also starting to subside.
More great news about the campaign is on the cards too. Will give you all the details for a major event in London either tomorrow or first thing on Monday.
This post is really for fellow 'post bone marrow transplanters'.
It's been written for quite a while and is really a round-up of all the post-transplant complications I have encountered since being released from isolation.
I thought it might be useful for people who have undergone the same process.
However, as the doctors keep reminding me, everyone is different and you never know what is around the corner.
Remember, some people will encounter very few problems – if any at all.
Transplants do work and provide an excellent cure for many bone marrow disorders.
Firstly my tablets.
After a bone marrow transplant you have effectively wiped out your immune system and need to grow it again.
You also need to give your new developing immune system time to adjust to your body. Because of this you need drugs that suppress your immune response that are slowly tapered down.
The drug I had is called Cyclosporin.
The following tablets are taken as prophylactics – medicines that help prevent infection before one takes hold.
Erythromycin: An antibiotic which is effective against a whole range of bacteria.
Voriconazole: An antifungal agent. When I had pneumonia last year this was caused by a fungal spore that was either from a plant or just knocking around in my lungs.
Acyclovir: An antiviral agent.
All these tablets are taken at 10am and 10pm.
After my initial release from hospital my main symptoms were nausea and tiredness. I was absolutely shattered and can remember thinking I was never going to get stronger.
It was different to straightforward chemotherapy. I seemed to bounce back quite quickly after that. This was much tougher. I remember after a couple of weeks I would be making progress, then feel rough again. It was a case of two steps forward – one step back.
Sometimes I would just randomly be sick. Eat some food, or even the tablets, and it would just set off that vomit mechanism. My stomach felt a lot more delicate all of the time and my appetite was poor.
Had a few beers one night and then was just sick.
Anti-sickness tablets from the hospital helped.
They say the average transplant patient will be back in three times with infections and that’s exactly right for me.
The first two were in the summer and directly linked to my Hickman line. Each time I would be at home and start to get that freezing sensation that goes hand in hand with a fever.
On both occasions I was in hospital for the best part of a week while antibiotics took care of the infection.
The last one is the “cold” that brought me back in for another week prior to Christmas.
With the exception of Graft verus Host disease – which I’ve written about extensively – they were the most serious problems but I suppose all to be expected.
Here are some of the weirder things I encountered.
Hair growth:
It took ages to come back and then came back in some crazy places – like on my cheeks. The steroids then seemed to make it grow in a peculiar way too. It’s coming back now but darker and thicker.
Acne:
At one point my skin broke out in what looked like acne. Drs said it was probably linked to over active hair follicles. This was – thankfully- treated with a short course of tablets.
Fingers and toes:
While on the steroids the edges of some of my fingers and toes developed infections. It was quite painful for a while and made walking incredibly difficult. This was treated with an antibiotic called Clindamycin. Fingers seemed to catch on everything.
Also connected to the steds were unbelievable pains in the middle of the night. These included crazy cramps in my feet an intense pain in my bones. A reminder that these drugs can seriously damage your joints and bones. I also found I needed to take a leak at 4 or 5am every day.
People in our situation do feel like we rattle after taking so many drugs on a regular basis.
The steroids are still taken at around 8am in the morning.
I am often reminded of the old song “I know an old lady who swallowed a fly.”
GvHD leads to steds which increase chance of infections so in turn you need more antibiotics.
The steds also mean you need to take Lanzoprazole to protect the lining of your stomach.
Cyclosporin caused my blood pressure to rocket so yet more tablets were required to keep this under control.
I was also taking Glivec until I relapsed.
That is quite a pharmacy to be carrying around on visits – not to mention the E45 and moisturising creams for the dry skin.
The latest.
Now being in a palliative setting the game changes slightly.
I have stopped taking Glivec – obviously.
Disatinib – the potential ‘miracle cure’ which caused me to be sick, gave me splitting headaches, internal eye bleeding and the bottom half of my face to bloat up like Desperate Dan – has also, funnily enough, been stopped.
The mild tablet chemotherapy hydroxyurea had been sent back to the pharmacist.
As have the antibiotics.
This leaves me with steroids, cyclosporin, voriconazole and acyclovir. I am also coming off the anti-depressant fluoxetine because, I have said many times before, I know I not depressed, just have a lot on my plate to deal with.
Although this post is a bit flat I wanted to squeeze it in because it’s a good reference point for people going through a similar time.
Best wishes to you all and thanks again for your continued support.
Comments (110)
All the best mate. Truly, you are one of the few people who has genuinely made a positive difference to the world with your ceaseless campaigning.
Long may your words stand as a beacon to everyone affected by this terrible, terrible illness.
You can leave people any number of material goods, but if you don't leave them a good example then you leave them nothing. You, my friend, have left the world a great amount.
Posted by Dan | June 21, 2008 6:45 PM
Posted on June 21, 2008 18:45
Hi Adrian! You've articulated what happens post transplant in a clear and succint way. As a former microbiologist, I'm dead impressed about your knowledge of antivirals, antifungals and antibiotics. All this aside though, I am glad you are hanging in there and I will be sending a lot more positive thoughts and prayers your way. Can't wait to read your post on Monday for the big reveal.
XO Elizabeth
Posted by Elizabeth Solaru | June 21, 2008 6:45 PM
Posted on June 21, 2008 18:45
Hi Adrian, so glad your headache and cough are under control and you are feeling a bit better. You are in my thoughts and prayers daily.
Nikki ;)
Posted by Nicola Sloanes | June 21, 2008 6:46 PM
Posted on June 21, 2008 18:46
Been praying for you day and night... I just wanted to let you know that .... again.... you are in our thoughts and prayers always....
sending HUGS across the miles..
nancy B
Posted by Nancy | June 21, 2008 7:07 PM
Posted on June 21, 2008 19:07
Hi Adrian, Dropped you a line a few days ago when I had been reading your blog for a short time and thought Id let you know that youve now inspired me to give blood (along with my husband who has a rare blood type and doesnt know that hes coming along too!!) - hasten to add that he has given blood before, but a while ago now. I can't tell you how much youve inspired me over the last few weeks! I check your blog every day, passing on news to my friends and work colleagues, and panic a bit when theres nothing from you (I'm not a stalker....honest!) Suffice to say when I check and theres nothing from you I tend to have repetative strain injury from revisiting my computer every few minutes (I really do sound odd don't I?) Can I add at this point that I am supposed to be on the computer studying for a degree so it may be a bit of work avoidance too. (Its not at all but I think I sound a bit less odd by saying that.) Anyway.. at the risk of sounding like a stalker again you are in my thoughts a lot and I keep sending out positive vibes to you and mention you in my prayers. Love and light to you again. Val
Posted by val | June 21, 2008 7:14 PM
Posted on June 21, 2008 19:14
How do you find the strengh to do all this. I keep thinking of you and check this blog about 4 times a day to find out how you are getting on. My husband thinks I am obsessed which I probably am I am just hoping and praying for a miricle and when you have gone will miss your blog however I am hoping someone will carry it on so we can help arrange village or town lectures on bone marrow donor or something like that. I am sure with all us noisy parkers reading your blog you could put us to some use.
Best of luck. Hope you are feeling a little better and that you enjoy being at home with your mum and dad I know they will treasure these lasting moments with you.
Posted by Henny | June 21, 2008 7:17 PM
Posted on June 21, 2008 19:17
Hi Adrian, as I have commented before it is difficult to know which is worse the disease or the medication. I recognise many of the medication that you have mentioned from helping my beloved brother take his many tablets. It will be his memory on Monday, 3 years will have passed but it seems like yesterday since we were watching him go through all of this. I know our comments are incapable of lifting your spirits but I hope it gives you some comfort to know that your faceless friends are wishing you strength. Chris
Posted by Chris | June 21, 2008 7:29 PM
Posted on June 21, 2008 19:29
Hi Adrian
You dont know me - I first heard about you on Radio 5 live with Victoria and since then I read your blog loads. I signed yor petition, I lost my fiancee 3 years ago to leukaemia, his was very aggressive and we only knew for 5 days before he sadly died.
You are one top top bloke and I'm sending love and hugs to you and your family - I know they'll be treasuring every minute they're with you,
take care
Jane xx
Posted by Jane | June 21, 2008 8:04 PM
Posted on June 21, 2008 20:04
Oh Adrian - you had me at 6 years old again, listening to that song that I have not heard of in years! I remember the song getting faster and faster as it goes on and on - and that ending! LOL. What a lovely memory - I had forgotten it. THANKS!
And
Just a thought. Here I am, across the pond in a small town, Soddy Daisy (yes, really!) just north of Chattanooga, Tennessee in the USA, being incredibly affected by your journey and I wonder where everyone else is from? What other small corners of the earth you have touched? We know there are so many.
Anyone care to share where you are? I am sure we can about cover the map!
love and light
Annie
Posted by Annie | June 21, 2008 8:07 PM
Posted on June 21, 2008 20:07
Hugs lovely boy. xxxx
Posted by Hannah PATTERSON | June 21, 2008 8:11 PM
Posted on June 21, 2008 20:11
Thanks for the wealth of information. Have a good weekend.
Anna
Posted by Annajon | June 21, 2008 8:31 PM
Posted on June 21, 2008 20:31
I just don't even know what to say, but am thinking about you. Am doing The Great Scottish Walk tomorrow in Edinburgh for Cancer and wanted to let you know you will be in my thoughts. xxx
Posted by Catherine | June 21, 2008 8:41 PM
Posted on June 21, 2008 20:41
really glad that cough, headache and swelling are under more control. would be immensely proud to buy you a beer and take you out in liverpool tonight.
just wanted to send you positive thoughts and hope you have a good night's rest and wake up tomorrow morning feeling good.
looking forward to your next post and the news on the campaign.
very best wishes
peter
Posted by peter leonard | June 21, 2008 8:45 PM
Posted on June 21, 2008 20:45
Hi Adrian
I've been reading you blog for a while now and felt I couldn't leave without leaving a message. I'm a few weeks away from qualifying as a physio, and have am on a palliative care placement at an amazing hospice. Every single day I have been left amazed and inspired by each and every patient, family member, member of staff I have met. I've sat with people in their darkest hours and been absolutely floored by their strength, and it's a strength I can see in you through reading your words. I would give anything for this part of the world to not exist. It has however taught me so much, as a person as well as a physio, for which I will be eternally grateful.
You are an absolute star my friend. I will do anything I can to help your campaign. All my love and best wishes xx
Posted by Laura | June 21, 2008 8:50 PM
Posted on June 21, 2008 20:50
Just wanted to thank you really. You have educated myself, and many others about so many things that I don't think unless being directly affected by, I would ever have known. I have been researching and of course reading your posts daily. I am going on Wednesday to donate blood, and looking into joining the registry. I was so scared thinking about it...would I have to leave my children? (I don't do that), will it hurt? (oh wait, I had two kids!!) And then I thought, What a small sacrifice to potentially save someone? It would be ridiculous not to wouldn't it?!
I also want you to know that I am looking at things (my life) much differently now because of you. Though these are obviously not good times, because of you, I feel different, dare I say happier? I am spending more quality time with my boys, (4 and 5). I just appreciate what I have. You are responsible for that Adrian. You are great!!
Sorry for the long post. Are you still with me?
In my thoughts, Victoria
Posted by Victoria Stanbury | June 21, 2008 9:05 PM
Posted on June 21, 2008 21:05
Hello again...
I keep looking at my packed fruit bowl and thinking about you for some reason!!?? It makes me smile...I try to attack it on a daily basis...but salt and vinegar quavers keep winning! Keep strong adrian..until your next blog...
Glad the headaches have eased a bit...
Jo :-}
x
Posted by Jo | June 21, 2008 9:05 PM
Posted on June 21, 2008 21:05
Hey Adrian,
I just read your latest blog, been checking seems like on the hour! I am so glad to hear the morphine is helping a bit and making you more comfortable. Just want to tell that I am praying for your comfort and that you continue to floor me with your wonderful spirit and courage! Stay strong and feel blessed in knowing that we all care for you and feel touch by you in our own lives. Once again, your a gift my friend....
Stay strong brother, Michael
Peoria,az USA.
Posted by michael celiberti | June 21, 2008 9:10 PM
Posted on June 21, 2008 21:10
Hi Adrian,
First read about you from my desk at work in Colorado. What is it about you and your story that has found it's way around the world and touched so many people's hearts? Truly inspirational and incredibly unfair all at the same time. I read your blog frequently and find myself hoping each day is better than the last for you. Let your mom and dad care for you the way that only a mom and dad can. Providing you comfort will give them peace knowing they were there for you when you needed them. Keep writing and spreading the word of donorship, the world wants and needs to hear your voice! :)
Posted by Kathy in Colorado | June 21, 2008 9:12 PM
Posted on June 21, 2008 21:12
Hi Adrian, I'm pleased to hear that you're feeling up to reading your messages. Having poured so much time, effort, determination and information into your blog, it's fitting that in return you can continually read and digest exactly how much people think of you and admire and appreciate all that you've done and achieved. You've written honest and insightful accounts of what you've experienced and your talents have created such a powerful campaign.
Like everyone else, am thinking of you.
Posted by Cheryl L | June 21, 2008 9:15 PM
Posted on June 21, 2008 21:15
Hi Adrian,
In a previous comment, Annie said "What other small corners of the earth you have touched? We know there are so many." I totally agree with that: i'm from a little village in Brittany, France and i keep thinking of you, i think it's my third comment here, hoping there will be a miracle for you someday... soon...
All the best
Karine
Posted by Karine | June 21, 2008 9:21 PM
Posted on June 21, 2008 21:21
Hi Adrian
I've been checking your blog for a few weeks but I'm a first time poster. Intrigued and excited about Monday's news and just wanted you to know that yet another person has been touched by your sensitive and moving blog. I've been on the BM transplant register for quite a few years and a while ago, I wasn't able to give blood because of medication I was taking. I'll try and offer my red stuff to the transfusion service again to see if it's good enough for them, asap!
Thinking very positive thoughts; hope you are pain free right now.
Vic x
Posted by Vic | June 21, 2008 9:36 PM
Posted on June 21, 2008 21:36
Hi Adrian,
I've been reading your blog for some time now. I've often wanted to add a comment but never known really what to say (which hasn't been said already by the numerous friends you have around the world!) You are one popular guy! However, I'm only from down the road in Donny! You have made such an impact on my life and just want to say what an inspiration you are. I've signed the petition and would love to be able to donate blood/bone marrow however, I've looked into it and because I have ITP I'm unable to do so at this time but if the time comes when I can, then believe me I will. Sending you my love and support. Look forward to reading your news on Monday x
Posted by Sarah | June 21, 2008 9:46 PM
Posted on June 21, 2008 21:46
Dear Adrian
Yet again your stamina and sheer determination never ceases to amaze me. You are truly an inspiration......I just hope your medication can give some respite from these awful symptoms....
Thinking of you...
xxx Reiki hugs xxx
dawny
Posted by dawny | June 21, 2008 9:49 PM
Posted on June 21, 2008 21:49
Adrian,
You are an amazing man. Thank you for sharing your journey and courage with all of us. I am sending you love, prayers and positive thoughts from a small town in Indiana.
Carla
Posted by Anonymous | June 21, 2008 10:26 PM
Posted on June 21, 2008 22:26
Hello Adrian.I keep searching for the right words but the only one which keeps coming into my head whenever I think of you is "AWESOME" You have touched the lives of so many people worldwide and trust me you have made a difference. An earlier comment used the expression "one top bloke" and as far as I am concerned that is how I will always think of you. I hope you find some painfree peace and please allow your loving family to treasure every moment of caring for you. Good luck and very best wishes from Diane xx
Posted by Diane Rowbottom | June 21, 2008 10:38 PM
Posted on June 21, 2008 22:38
Adrian,
Been reading the blog for a couple of weeks now after seeing an article on you in the Daily Mail I think. Amazing how you find the courage and energy to do the amazing campaign when you are coping with so much.
God Bless
Posted by Colin | June 21, 2008 10:47 PM
Posted on June 21, 2008 22:47
Adrian,
Saturday afternoon here in Canada. Was just in a café with my wife, talking about our week, and you. There must be sparks all over the globe by now with people who think of you on a regular basis. Hoping for you to feel better, and feel connected to a bright, thoughtful fellow who we wish we could comfort and support more.
Happy to know we can reach out to you and let you know we're sending good energy and healing thoughts your way.
Take care friend,
H
Posted by Howard | June 21, 2008 10:48 PM
Posted on June 21, 2008 22:48
Wow. I think I lucked out because I didn't get infections and only had one Hickman line. I have had terrible reactions to my medications though, particularly my prednisone. I also have the hair on my face etc. Gawd that sucks.
My liver was also attacked and I've needed surgery on strange unmentionable places because of my Graft/vs/Host.
It's been a rough ride and I've almost hit 2 years post transplant. I'm really hoping things pick up soon.
It's been very interesting hearing your experiences with it.
Wishing you the best, love and more love
from Canada.
Posted by Baldylocks | June 21, 2008 10:52 PM
Posted on June 21, 2008 22:52
Just wanted you to know that, like many others, I'm thinking of you and your struggle, and wishing you..... well, what am I wishing? That you could be well again? That this wasn't happening to you, or anyone else, for that matter? Or the strength to bear this, and the peace of acceptance and that you know you've been loved, admired, and the inspiration of everyone that has been touched by your plight.
God Bless, Adrian
xx
Posted by Pennie | June 21, 2008 10:53 PM
Posted on June 21, 2008 22:53
Hi Adrian
Thank you so much for updating this blog despite all that is going on. Pleased that the morphine derivative is doing its stuff and you are a bit more comfy. Had to laugh at your Desperate Dan description as I was going to post something about Cow Pie the other day but didnt know how battered you were feeling at the time and whether it would have been a joke too far...should have known better :-)
Was talking to my husband's sis today, who as has been mentioned before, finds herself in a similar place to you. As well as all the sadness, anger, worry and distress going on, there is something else - a sort of peace maybe, or perhaps an acceptance, I dunno how to describe it, maybe you do - that has arrived with this stage of her illness. I desperately hope that you too are finding this 'whatever it is'....
How are the black eyes? Mine's still pretty ace, but suspect the green stage is on the way - a particularly attractive look eh? Time to sign off, so sending you another gentle hug and lots of love.
Cheryl xxx
PS shall be nagging our football club (Notts County) to run another piece on their website about bone marrow donation next week, fingers crossed.
Posted by Cheryl Thompson | June 21, 2008 11:16 PM
Posted on June 21, 2008 23:16
Hi Adrian,
Hope you're feeling well today and just wanted to say I'm thinking about you and praying for you.
Annie, I'm in Cedar Park, Texas -- a suburb of Austin. Never heard of Soddy Daisy before -- what a name! I bet it's pretty there, though. That part of the country is very nice!
Posted by Lacey | June 21, 2008 11:18 PM
Posted on June 21, 2008 23:18
I think about you every day (weird, since I only know you through this wonderful blog) but i am wishing you peace, comfort and many laughs.. you're quite a gift.. kindly, kimberly
Posted by kimberly | June 21, 2008 11:18 PM
Posted on June 21, 2008 23:18
Reading through all the amazing comments, poems and personal accounts you receive after each post restores my faith in humankind - yet another profound and positive effect your blog is having! I also agree with all those people who say - as far as your looks are concerned, you really do have nothing to worry about!! :)
...Thought I'd let you know, I went to see my local MP yesterday, about your campaign. This was on the basis that he's my rep. in parliament and this has become an issue which concerns me, personally. Not really sure what I was doing - or what I thought I'd achieve, I suppose I felt a "multi-pronged" approach may put even more pressure on the government to act!
It turns out the MP knew all about your story and campaign - and is right behind it! Long term, he agrees with your objective; a talk to SIXTH FORM age students in order to ensure a constant stream of new potential donors. In the short term, he's pledged his help with setting up donor recruitment events in our area, in conjunction with large local employers and the Anthony Nolan Trust. So there you have it - politicians do work for us!! I will be doing my best to publicise the events as soon as they've been set up.
Now, a quick query - is there a 'physical' paper equivalent to the e-petition? Is there anything which can be printed off and pushed under people's noses to sign? (which obviously counts towards the same thing) I'm thinking about people who may be a tad technophobic - or even don't have a computer!!
I hope you're feeling more comfortable and are in better spirits. You really are truly amazing and widely loved.
Love and best wishes to you and your family
Charlotte xx
Posted by Charlotte Newall | June 21, 2008 11:40 PM
Posted on June 21, 2008 23:40
Hi Adrian
How do you do it! I checked your blog this morning and again when I arrived home tonight and there you were. Thank goodness! I'm relieved you feel slightly better today and amazed, as I have been throughout, that you are still thinking of others. What a blessing you are to all who read this. As I've said before, you have changed lives in ways you wouldn't even realise. I've been with a group of friends this evening for dinner and I got the conversation round to you, told them about your campaign and what you are managing to achieve. They all listened, and I surprised myself and them with the passion with which I spoke. Hopefully they too will talk to others and word will continue to spread. And so it goes on...
Well, I hope you have a better day tomorrow, and lap up all the love around you. It's only right you have some fuss after the hectic past few weeks! Thinking of you constantly and sending good vibes! Special love to you Adrian, and love and best wishes to your family. Barbara xx
Posted by Barbara | June 21, 2008 11:44 PM
Posted on June 21, 2008 23:44
I spent yesterday lunchtime at work reading Lea's transplant blog, so your latest post only confirmed the sheer scale of the challenge faced by transplant patients, if only in terms of the huge amount of medication required, and the horrible symptoms and side-effects suffered. I am massively grateful that I have only experienced the other side of the deal, as a donor, am ever more sure that donation is a walk in the park by comparison, and can only encourage more people to give it a go and give someone a chance of beating this thing.
Best wishes Adrian - I think of you a lot and hope you're doing okay.
Posted by Tony Dolton | June 21, 2008 11:54 PM
Posted on June 21, 2008 23:54
Hi Adrian
Just wanted to drop by and say hi as I've been following your story for a while now. I have a beautiful 9 year old daughter with a brain tumour who was on chemo for 18months and then off treatment for two years and then she relapsed last summer and is back on chemo again. We therefore know how lonely, frustrating and unfair it can all feel at times. You are truely an amazing person and remember that alot people will live to an old age but never make an impact on the world as you have. May God Bless you.x
Posted by sarah m | June 21, 2008 11:59 PM
Posted on June 21, 2008 23:59
I just wanna give ya a hug
hugsssssssssssssssssssssssssssss
Posted by Kay | June 22, 2008 12:26 AM
Posted on June 22, 2008 00:26
Hi Adrian,
I've read your blog for a couple of months now. I'm aware that you've heard it so many times before and it's been written so many times on here too but thank you for taking the time to write this blog, to be so honest about how you're feeling and sharing with us your ups and downs.
Your blog is the first place I come and look at when I'm on the internet. It's made me laugh, it's made me want to reach into the PC somehow and give you a massive hug and also it's brought on sudden dust outbreaks in my eyes too.
Above all else, I'm in awe of you and the selfless way you've plugged away with this fantastic campaign. You've achieved more in just a few weeks than I'm sure you ever hoped possible. I've been on the register for a few years now but busy trying to convert some mates into it and hopefully they'll do the same with theirs and so on...
Look forward to hearing about the big event. It's bound to good and if we can all help to publicise it any more, you know we'll all do our best.
I'm rubbish at articulating what I really want to say but you're bloomin' fantastic and I'm thinking of you, your family and friends a lot and sending tons of love your way.
Take care and long may the headache, cough and swelling be on the wane.
Toni xxx
Posted by Toni | June 22, 2008 12:35 AM
Posted on June 22, 2008 00:35
Hi Adrian! I am learning so much from your blog. Most importantly though, I am learning how important it is to be surrounded by family and friends. Let your Mum and Dad take care of you. Draw strength from them. You are so blessed to be able to go home. I hope you have a comfortable night :-)
Love and blessings to you and your Family
You all remain in my prayers.
Janet
Somerset West, Cape Province, SOUTH AFRICA
Posted by Janet Reid | June 22, 2008 12:43 AM
Posted on June 22, 2008 00:43
Hi Adrian
You know that photo you posted yesterday? It was Paul McCartney (c.1976) to a tee. Go on, have another look and tell me I'm wrong...!
But that's not the reason I'm writing again. I just wish you could see what a difference your words have made to me. You've provided me with a guide for life, and a guide for facing the next.
Prolific motivational author Orison Swett Marden wrote: "The greatest thing a man can do in this world is to make the most possible out of the stuff that has been given him. This is success, and there is no other."
You have absolutely lived this maxim with wit, style and dignity, and that is why there are so many of us out here in cyberland embracing you and thinking of you. You've no need to thank us for writing to you: it's our privilege to be here with you.
Love, Amanda
Posted by Amanda | June 22, 2008 12:54 AM
Posted on June 22, 2008 00:54
my prayers are with you and your family...i have said this before and I truly hope someone puts all of you blogs in a book for us to have for a life of inspirations; when we think we are having a rough time. thank you for the courage to keep us updated....may God hold in the palm of His hand..bless you dear Adrian..a friend
Posted by a friend | June 22, 2008 1:55 AM
Posted on June 22, 2008 01:55
Every entry into your blog is another learning experience for the rest of us. We truly have no idea the things you have to deal with when it comes to treatment and medications and the aftermath. My admiration for you and all cancer survivors grows daily Adrian! We probably all know someone who's struggled with cancer, but do we really know what they're going through? Are we doing all we can to help them through this?
I can easily see why they'd want to put you on anti depressants! It really IS alot to have on your plate all the time. The fact that you're able to keep such a good attitude is truly remarkable. You, dear Adrian, are a rock star of epic proportions!
As always, love and prayers to you and your family, and hope that you're feeling a whole lot more comfortable than the past few days have been.
Beth
usa
Posted by Beth | June 22, 2008 2:09 AM
Posted on June 22, 2008 02:09
Hi Adrian,
Your posttransplant information is so well explained and was a good review from my immunology and medical classes. I am sure you will help countless others prepare for and make it through that stage. I am always so impressed by your warm thoughts towards others, so many of whom you haven't met. Your level of generosity is rare, I believe.
So glad you have some relief from the splitting headaches, vomiting and swollen neck/jaw. I hope your eyes are healing alright too.
I have great hope that your days will get better (good trend you could use) each day and you can think about fun ways to see your friends and family rather than focusing on new symptoms.
There isn't a name in Latin for your journey - triathalon doesn't cut it...duodecahedron (no, wait, that is a geometric shape!). Well, I am so glad that you got some trophies - you deserve them!
I am glad to hear you get to read the posts, because although our good vibes are out there crossing oceans, rivers, streams, either way, I am glad you see how many and how far and wide they come from.
Love and Smiles for you,
Margaret
(USA)
Posted by Margaret | June 22, 2008 2:59 AM
Posted on June 22, 2008 02:59
Truly you are an inspiration to many! As the mother to a 16 year old boy who battled Leukemia at the age of 4, I truly appreciate everything you've done and everything you've gone through.
Please know - I'll keep you in my thoughts and prayers. Your courage and your positive attitude will not be forgotten.
Lots of hugs from Maryland!
Maren Trammell
Posted by Maren Trammell | June 22, 2008 3:15 AM
Posted on June 22, 2008 03:15
Hi Adrian,
I just wanted to make a suggestion to you..sorry...peanut gallery :). I would suggest not taking yourself off of the fluoxetine. I also take fluoxetine and started taking it after my tumor was found. It is extremely helpful and benefical to a stressed out mind. It really helps take the edge off of stress/anxiety and emotional turmoil. Even though you have never been diagnosed as clinically depressed it is, I am sure, still helping you. I just felt like I needed to say something as a cancer survivor and a fluxotine taker. Please reconsider, doll.
Rachel from Connecticut
Posted by Rachel | June 22, 2008 3:15 AM
Posted on June 22, 2008 03:15
"I am also coming off the anti-depressant fluoxetine because, I have said many times before, I know I not depressed, just have a lot on my plate to deal with."
I've had to say that SO many times to doctors! It frightens me how often they just want to dole them out as a matter of course. Hey Dr dude, i'm just young and ill and trying to deal with a lot of symptoms that never leave me alone, I have enough common sense to know i'm not depressed!
- My favourite one was Prozac, pretty much fine before it but suicidal after two weeks on it... reverse psychology in med form? ha ha, never again.
Well Mr Suds, you're as wise as you are inspiring. And addictive, your blog obviously comes in opiate form! I think if miracles came from people wanting them for somebody, you'd be pogoing round an LA mansion by now.
I'll honestly say that if I can do an iota of the good that you've done (in the last few weeks alone) by the time my i'm outta here, i'd be very well sated.
Millions hanging on your every word? By golly I think the man's got it! :-)
On that overly English note, 'til the next Sir!
JJ x
Posted by JJ | June 22, 2008 3:29 AM
Posted on June 22, 2008 03:29
Adrian, What an amazing and lovely person you are. I don't think this disease is what made you that way. You had to have been that kind of person from the start. I think it was born in you. I think we are all born with a mission, however long or short our journey here is. I'm not sure I think you (or anyone) were born with THIS mission. I think our mission is to take what ever life hands us and squeeve everything good we can out of it. I am sad to say I have not always done that. You are doing exactly that. You are turning it into a journey that will hopefully save lives, awaken people to how easily they can matter to someone else's life, and change the out come. I am so very grateful I discovered "Baldy's Blog. That you have shared your journey with me has changed my life. I am a better person and will constantly strive to be a better person by looking around me and seeing what I can do to make someone else's life better no matter how large or small everyday. Everyday I will look for some way to make someone else's day better and be grateful for the teacher (you!).
My prayers are with you constantly. I also look at your blog several times a day to see if you are still able to share yourself and your journey and am grateful for everytime you are there, you teach me something new all the time. My prayers are also with your family while they travel this road with you. I know that God will give them what they need to travel this road with you. HE will give them love always, and strength. They will be forever gratelful to have you in their life and I will be forever grateful for how you touch mine. I live in a small city in Clinton, Mississippi USA and I am telling you this just so you will know how far your generosity and selflessness has reached. To your mama and daddy and Carrie I want to say God has blessed you with an amazing and lovely son and brother in your life and I know you already know that. I just wanted to let you know that MANY of us know that too in the way he has touched ours. Take of eachother and Adrian, THANK YOU
Posted by Debra | June 22, 2008 4:50 AM
Posted on June 22, 2008 04:50
You are truly inspirational to have shared so much of your journey. I have told my friends about your blog and they in turn tell their friends and slowly but surely your message reaches far and wide all over the world and will continue to do so, helping so many who are suffering and inspiring so many more to donate.
Our thoughts are with you.
Fiona and family
Gladstone Australia
Posted by Fiona | June 22, 2008 5:11 AM
Posted on June 22, 2008 05:11
Hi Adrian,
Just checking in with you to let you know we think of you often. Thank you for keeping your blog updated to let us know what today's "adventure" is. I am closing my eyes and sending you a warm hug - - - - did it get there? Love to you Adrian. Keep out of pain as much as possible.
Ryan has been cooking a lot this weekend and running his model train. Love to you, Amy Patrick
Posted by Amy Patrick | June 22, 2008 6:19 AM
Posted on June 22, 2008 06:19
Hi Adrian
So pleased your pain is being managed now, and I am looking forward to further news on the campaign on Monday.
Adrian if love, prayers and willpower could cure you, you would live to be a 100. Your cyber family are willing you to get better every day. It is strange than none of us have met, yet we all want one thing, just for you to be well.
Bless you
Ree
Posted by Ree | June 22, 2008 6:45 AM
Posted on June 22, 2008 06:45
Hi Adrian
I am glad to read that your headaches and swelling are getting better. I want to say how fabulous you are to share your experiences with us. You have done and continue to do, invaluable work in getting the story of blood cancers, bone marrow transplants and the complications and mortality from the diseases and the treatments.
I admire the very accurate way you have reported these issues through your blog....you have demystified many aspects of the diseases and especially bone marrow donation. You will leave a legacy from which many people will benefit.
Thankyou for sharing your life with us, thankyou for your intelligence, humour, humanity and strength.
Warmest wishes to you and you family,
Clare
Posted by clare | June 22, 2008 7:01 AM
Posted on June 22, 2008 07:01
Hi Adrian, hope this Sunday morning finds you feeling ok and pain free. Your piece on post transplant for people like me who haven't a clue was great to read. As always you tell it how it is with the facts and great humour which is amazing. Some great writing, this blog should be put in a book form for the education of young people,and as an information tool for everyone! Hope you have a good Sunday....
Love to you and yours
Nickix
Posted by Nicki | June 22, 2008 7:42 AM
Posted on June 22, 2008 07:42
Hi Adrian
I have read your blog daily since you appeared in the Daily Mail and although very cheesy it reminds me of the great JFK quote ' ask not what your country can do for you - ask what you can do for your country '.
You have been selfless in your campaign Adrian and with your personal emotions, no indulgence in self pity, but have used your situation to help thousands of others.
Your regular blogging brings comfort to me and for the first time, I have felt less alone as the mother of a sufferer. Family and friends have been great but do not understand the continuous, grinding medical implications and still ask crazy questions like 'Is he better this week?'when he has a year and a half of treatment still left.I've directed as many as possible to your blog as you answer so many of their questions for me so want to say thank you from the bottom of my heart.
Hoping you are comfortable today and wrapped in the love of your family, I hope you really understand that you are one amazing guy.
love and hugs
Sally x
Posted by Sally | June 22, 2008 8:42 AM
Posted on June 22, 2008 08:42
Adrian,
I hope you have had a restful night and that you and your family are enjoying the company of one another. I'm glad the headaches have subsided.
You write so well...the information and education that you have given to so many people is outstanding. I wonder....could the blog be turned into a book with proceeds going towards Anthony Nolan?
Your words a truly inspirational - as I have said before, any support we can give to the campaign, we will.
Take care.
Diane x
Posted by Diane Watt | June 22, 2008 8:50 AM
Posted on June 22, 2008 08:50
Adrian - you are giving the world a reality check, god bless you for that.
I love the fact that you tell it as it is, leukaemia, cancer has become such a part of everyday life that we forget what an enormous thing it is and what thousands of people are going through every day.
You may be feeling weak but you're voice is one of the strongest i've heard in a lot of years.
Keep on blogging
Lorraine x
(fellow cmler)
Posted by Lorraine Rollo | June 22, 2008 10:06 AM
Posted on June 22, 2008 10:06
Hi Adrian,
I've been reading your blog for a while, starting at the beginning...
I am thinking of you every day.
You are truly fantastic in every way and have inspired me to look into bone marrow donation in Germany.
Party on...
Birgit
Germany
Posted by Anonymous | June 22, 2008 10:07 AM
Posted on June 22, 2008 10:07
Hi Adrian,
I struggle to find the words to express just what an incredible, inspiring and amazing individual you truly are..
They say that "Actions are the measure of the man"..
Well...your tireless campaigning to help others is an incredible testimony to the incredible and special individual that you are.
I am so blessed to know a little of you through your blog.. and hope that the posts from us provide a little sunshine to you.
I had a fabulous evening with friends last night.. lots of wine and laughter and it actually made me think of you, because, from your posts it sounds like the kind of evening you would have loved too.
Love, hugs and prayers
Laura
XX
Posted by Laura Staveley | June 22, 2008 10:23 AM
Posted on June 22, 2008 10:23
hi fella
stay positive
stay strong
keep going
an u fight it
mate
baz an dawn.......
Posted by BARRY CLEMENTS | June 22, 2008 10:34 AM
Posted on June 22, 2008 10:34
You and your family are constantly in my thoughts. My mum is having a 2nd BMT a week on Wed.
I think you are a very brave and couragous person.
xxx
Posted by Jenny | June 22, 2008 10:59 AM
Posted on June 22, 2008 10:59
Hi Adrian
The drugs lists sound all too familiar - keep taking them and who knows what the future holds.
Best Wishes as always to you and your family.
Liz
Posted by Liz Boffey | June 22, 2008 11:00 AM
Posted on June 22, 2008 11:00
Oh yes.. also forgot to mention that yesterday's evening also reminded me of you because it involved dancing... yes I remember reading about Sudders busting some moves on the dance floor!!!! ;)
XX
Posted by Laura Staveley | June 22, 2008 11:01 AM
Posted on June 22, 2008 11:01
I've been following your blog for a while and just wanted to send you a message to let you know I am thinking of you and sending support. Your blog is a most inspiring one and your determination and strength come through every message you write.
Posted by ambermoggie | June 22, 2008 12:03 PM
Posted on June 22, 2008 12:03
Hi Adrian, I've been checking each day for any updates and feel so sad to see how your body has been betraying you. I've been avoiding going onto disatinib despite my oncologist wanting me to go onto it due to the side effects. It's a particularly sad day today for me as another person I have found absolutely inspirational, Jane McGrath, wife of Glen McGrath the Aust cricketer, died this morning after a really long fight to beat cancer. There are just some people in the world you hope beat this f'ing cancer. And you are certainly one of those people. Take care and a big hug from the other side of the world,
Steph from Australia.