These last weeks, or however many seem to keep unfurling ahead of me, are dotted with incidents of dropping off to sleep, random drowsiness, disorientation and distraction.
Writing this blog is something I still love but it is becoming increasingly challenging to construct.
The latest update is I've been given a syringe driver. This means drugs are constantly put into my body throughout the day. This is why I'm so drowsy and when talking to people, it makes it really difficult to concentrate on what some people are saying.
I appreciate this is something which we have all experienced plenty of at some time in our lives.
I'm on a mixture of painkillers, anti-anxiety and anti-sickness drugs.
It's important that much of my time now is spent with myself and my family rooted at the centre.
My friends all appreciate that but still want to see me none the less and when that can be arranged I will make every effort to mkae that possible.
In the night, I have a full time nurse from 10pm through to 7am. Should I start to feel to feel sick or unable to fall asleep due to anxiety, they are there to immediately administer an injection.
But over all, quality of life continues to deteriorate. Walking up the stairs is difficult as is picking things up with my right hand.
Again, my parents have been excellent throughout.....constant love and an iced drink, day or night.
Thank you so much for joining Facebook and keeping in touch with the campaign. I believe that this is going to be a really effective way of you all keeping in touch.
This is going to be a long term project. I'm not a Facebook member, but I understand my international friends can sign up to this one.