I sometimes wonder what I put you readers through.
One day it's all guns blazing, drink downing, House of Lords campaigning bravado.
The next day you get this.
Sorry.
On Monday afternoon and evening I was really unwell and was eventually sick.
We are still not sure what caused this but once again it was the uncertainty of being in a situation you don't fully understand or know where it's going to go.
My mum phoned up the excellent district nursing team and I spoke to a sister.
I explained my symptoms then had to run off to vomit while she was still on the line.
The nurses came round really quickly and gave me a strong anti-sickness injection.
The nausea quickly subsided but the drug knocked me out big time.
I felt like Mr T when he made it perfectly clear he wasn't intending to board any plane.
The sedation lasted ALL of Tuesday. I would wake up feeling groggy for about 20 minutes then have to go back to bed for about four hours at least.
I still have a strange feeling in my stomach but it is improving.
As I have written many times before I am not afraid of dying.
However, I am scared that the end stages will be long, drawn-out and unpleasant.
Sedation can really help but that loss of control, which is probably going to happen to me, is frightening.
For all the fun I've been having lately, the decisions I have made, the control I have taken back from this disease; that blip was a timely punch in the head that this situation is unlikely to unfurl in quite the way any of us would hope.
You can forget or kid yourself just how debilitating feeling unwell is.
I always want to be on my feet, out of bed, doing everything I can while I still have time.
Not so exhausted that I have to turn my phone off and leave my friends and family all wondering and worrying.
Lying in bed, not knowing if you are going to get better, or what exactly is causing you to feel sick, is scary.
The times you are awake but unable to function normally are the worst. There is too much time to think seriously about those end stages and with your stomach aching, your body feeling out of sorts, I did find myself getting a bit upset.
You find self-pity rearing its ugly and pointless head again.
My mind opens up again to the injustice and seemingly relentless tragedy that you have all shared over the last 18 months or so.
Please, when my time does run out, let it be as peaceful as possible.
I've had my fair share of unpleasant experiences - as have all my family and friends.
I'm writing this at 5.45am on Wednesday morning.
That is a good indication that the sedation has worn off and my body clock is desperately trying to readjust.
I feel tons better and have a quieter day planned ahead.
Adrian Sudbury was a reporter for both the Huddersfield Express and Chronicle Series and the Huddersfield Examiner. In November 2006 the 25-year-old was promoted to digital journalist, effectively editing the new-look Examiner website.
Just two days into his new role he became seriously ill and called in sick. A week later he drove himself to A&E and was eventually diagnosed with leukaemia.
It was then identified that he actually had two distinct types of the disease running at the same time. According to the medical literature he was the only person in the world to have this condition. As such, it was not possible to offer Adrian a prognosis.
Here he shared his experiences of the disease and his treatment up until his passing.
Comments (150)
You are a truly amazing man.
Hazel
Posted by Hazel | July 10, 2008 5:11 PM
Posted on July 10, 2008 17:11
adrian,
it is scary. hard for me to even wrap my head around, so i can't imagine how it must be for you. it isn't fair and i'm sure no one blames you for any amount of self-pity. you have started a chain of events that has wrapped around the world, and we will remain unbroken.
hugs and a good cider (my favorite thing to drink in england! i know, weak, huh?) :)
gillian, ne, usa
Posted by gillian | July 10, 2008 5:23 PM
Posted on July 10, 2008 17:23
Glad to know you are feeling better. I cant even begin to imagine how scary all of this must be for you. You sound like you have a wonderfull family and a lot of good friends and you are all making some wonderfull memories together. Keep up the good fight and stay well.
Posted by Sarah Berry | July 10, 2008 5:26 PM
Posted on July 10, 2008 17:26
Oh Adrian,
So sorry to hear you had a bad couple of days. Hopefully, a bit of a blip. Maybe over indulgence of good food and wine. Possible! Maybe time to cut back a little and look after that liver of yours. Could be its a little stressed out with the rich food, etc. Now and then perhaps we have to be a bit careful what we take into our system, and this may be one of those times. So eat sensibly for a couple of days and see how it goes. You can tell I'm a mum can't you.lol!
You are entitled to feel sorry for yourself you know - you're not in an easy place after all. You are bound to have those moments and it is difficult to know what to say to make it better.
However, glad to hear you're feeling a bit better this morning, it was just one of those things that happen now and then...
Relax and chill a bit, none of us can keep up a heady pace all the time and you may need some time to get some strength back.
Wish I could come up and give you a big hug and just sit with you a while. I'm with you throughout the day in my head though.
Have a peaceful night and please take it a little easy for a day or two...restore your energy.
Much love as always
Barbara xx
Posted by Barbara | July 10, 2008 5:30 PM
Posted on July 10, 2008 17:30
Dear Adrian, I'm so sorry you are having such a bad time, you don't deserve it. No-one can predict the sort of demise anyone is going to experience, but I trust to God that you like all the people I have love and regard for, you will not suffer. I'm sure that your Doctors and the people around you will not allow this to happen. The surest thing in life, is that we all will die sometime, but it's how our lives are ended that is something we don't seem to give too much thought to. I believe that there is something after death, I don't know whether I believe that there is a Heaven, but I sure do believe that in this present life, it certainly must seem like Hell for many people. You are constantly in my thoughts, as are your family. Tomorrow is another day, and I hope sincerely you will feel able to enjoy it.
With love
Sandra
Posted by Sandra Shave | July 10, 2008 5:31 PM
Posted on July 10, 2008 17:31
Hi Adrian, so sorry to hear you have been feeling so ill. I'm sure it is just a blip that you will get through. Hope you continue to feel better and are soon back to drinking those pints of 'health juice'.
Nikki ;)
Posted by Nicola Sloanes | July 10, 2008 5:31 PM
Posted on July 10, 2008 17:31
Adrian,
I'm a long time reader of your blog but a first time poster. Your documentation of your horrible 'journey' with this disease is an inspiration to all of us and the bravery you have shown throughout your ordeal is a credit to you as a person. We can all only hope that when your time runs out, and let's hope that it's not for a long time yet, you are afforded the comfort of going peacefully. Surely it's the very least you deserve for all of your hard work.
Keep fighting and we'll keep reading and hoping.
All the best.
Posted by Cillian | July 10, 2008 5:34 PM
Posted on July 10, 2008 17:34
Dear Adrian, So sorry to hear that you have been feeling so ill, but delighted to learn that you are tons better. Perhaps you have been overdoing things and a few days conserving your strength by resting more will prove to be beneficial. You are constantly in mine and my family's thoughts.
With love
Sandra
Posted by Sandra Shave | July 10, 2008 5:35 PM
Posted on July 10, 2008 17:35
Hello Adrian,
I'm a African America woman living in Portland Or- the most beautiful state in the US. Ive been reading your blog for some time now and find your courage amazing and inspiring.You are in my prayers and I am amazed that you continue to use your life to give hope and help others, when this
illness continues to rob you of your health.You are showing us all how to truly live and I just wanted to thank you for that. I'm a Buddhist and chant Nam-Myo-Ho -renge-kyo. If you chant this, you will find some peace of mind that will help you to get through your day a little smoother. I
hope that helps a bit. I will keep reading and checking in on you. Please take care. The best to you and your family. Your friend Thea
Posted by thea wendelgest | July 10, 2008 5:37 PM
Posted on July 10, 2008 17:37
Hi Adrian
I have been in bed ill with a virus for two and a half weeks which has left me completely wiped out with no energy as I lost my appetite for quite a while, I whole heartedly know that frustration of being stuck in bed whilst the rest of the world goes on around you I cannot stand being still unless it is of my choosing i.e. eating or in the pub!. Luckily for me I will get better but at the time when you are missing out on holidays (mine had to be cancelled) you just feel so miserable and ask yourself WHY ME which considering what you are going through sounds pretty pathetic but also just very human. I really do hope that the time you have left is not too difficult I can only offer hope as I am not religious so my prayers would fall on deaf ears! what ever happens I am sure you will tackle it with courage and dignity as will your family.
Thinking of you and let us hope this weather improves so you can get outside and feel the suns therapeutic rays.
Keep your chin up you are doing great.
Jx
Posted by jaqui phillips | July 10, 2008 5:38 PM
Posted on July 10, 2008 17:38
It is so upsetting for all of your cyber groupies to hear you suffering...it is SO unfair. Is there nothing you are willing/able to try that you haven't already to beat this thing?
I will be so sad not to see your amusing entries here anymore.
If not, i also truly hope that the end is peaceful - you deserve that much.
Keep writing!
Thinking of you xx
Posted by Kara | July 10, 2008 5:42 PM
Posted on July 10, 2008 17:42
You can't possibly be "Guns blazing" all of the time and we all know that. (how I wish that you could!) It's that old roller coaster called life and you are taking one heck of a ride. Hope you are feeling up to the old antics soon. You don't seem to let the pitty pot get you for too long, God knows I would, so I give you A LOT of credit for your optimisim when faced with these challenges. May God comfort you.
My thoughts and prayers are with you.
Tela
Posted by Tela | July 10, 2008 6:01 PM
Posted on July 10, 2008 18:01
Adrian, I'm glad you're feeling better. Stay strong, you're amazing.
Posted by Nina | July 10, 2008 6:02 PM
Posted on July 10, 2008 18:02
hope your day was good lots of people are thinking of you,sending you big hug xx pam
Posted by pamela | July 10, 2008 6:09 PM
Posted on July 10, 2008 18:09
I was sick as a child, and I still have that fear and unease about the drugs that try to help, but leave you feeling unable to control things. I sympathize. And throwing up? I am such a pro, such an experienced barfer! I have 4 children and my morning sickness got worse with each pregnancy. I tried to fight my own pity party, and once I dragged myself to the front door, determined to be *strong.* I inhaled the fresh air and made up my mind to get passed the nausea and walk. Without any warning whatsoever, without a gag or churn, I vomited copiously all over the mat. Gee, I could have died from choking, while laughing and crying at the same time.
I am sorry. For the pain and the lack of normality, for the unknown, I am sorry. I hope, for you, for all of us, when our time runs out, that we feel at peace, that we feel held in arms, like a trusting baby, assured of being loved and ready to go forward.
Best.
Posted by Natalie | July 10, 2008 6:17 PM
Posted on July 10, 2008 18:17
Hi Adrian, I am sorry that you have been feeling rough over the past couple of days. No one deserves this least of all you. I want to thankyou for your comments about considering your blog readers as friends. It is both difficult and a privilage for us your faceless friends to support and offer very inadequate words of comfort during this dreadful time that you and your family are going through. It is very unlikely that any of us will ever meet you or indeed each other but we all share a common bond, our admiration for you and our desire to bring this campaign to a successful conclusion. Keep strong Chris
Posted by Christine | July 10, 2008 6:18 PM
Posted on July 10, 2008 18:18
I believe you are putting us through life. Life through your eyes. And we wouldn't read if we thought it was disturbing or horrible.
Your life is beautiful. Pubs and swollen faces and scratch marks on your back.
Those anti-nausea drugs are amazing. I would GLADLY sleep for hours after being nauseous than be awake and nauseous. Maybe you're still nauseous in your sleep but you can't tell because you are knocked out.
Posted by Yolanda | July 10, 2008 6:22 PM
Posted on July 10, 2008 18:22
Once again Adrian you have hit the nail on the head. It's now not the fear of cancer, or of dying.
What the big IT is.... is fear of losing control and not being able to make even elementary choices. Even the mundane ones we all take for granted like what to eat, when to kip, whether to walk down to the paper shop.
First the damned disease limits life choices and then starts to take control.
Just remember that right now it can't stop
you writing, or thinking about writing. It can't stop the things IT has no control over.
Like me and your other new friends around the world writing back.
Nor can it stop you "feeling tons better" this morning.
And stop worrying about what you are putting readers through. There'd be a big queue if we could take it in turns to have a puking session for you while you went happily about your business!
Remember you are still THE MASTER of your destiny even if fate dealt you a bum deal.
Best wishes, hope you had a good day.
Posted by Hounslow Jan | July 10, 2008 6:24 PM
Posted on July 10, 2008 18:24
This is a scary thing, no doubt. I hate it for you. It's unfair that someone like you should have to suffer for one second, and I know that you are so sweet and selfless that your main concern is dragging your family and friends through the agony with you. Don't feel that way. When my grandfather was dying, I sat there with him and held him when he was sick, I cleaned him up, I talked to him, sat by him while he slept so he'd know that he wasn't alone and that he wouldn't be alone when he woke up. This was not my gift to him, but his gift to me. It eased my mind that I was able to give someone that I loved some sort of comfort when they needed it. I know when you "Fell back" to your parents, they breathed a huge sigh of relief. I can't say it doesn't hurt my heart to think about you shuffling off, but I'm thankful that I've gotten to know you, even in this small way, and that I've been able to tell you how wonderful I think you are and to read all these comments from well wishers from around the globe who agree with me that you are something very special. It's okay to be afraid, but don't ever feel the need to apologize to the people who love you. Stay strong, and don't board that "plane" til you're damn good and ready. Do you remember (of course you must!) the time you wrote about the dream you'd had?? Where you were on the plane and dangling your legs and just laughing and laughing?? That's the picture I'm going to keep in my mind. Adrian, just laughing and laughing and moving on to his next adventure....
Posted by Lacey | July 10, 2008 6:25 PM
Posted on July 10, 2008 18:25
hi,
I am so sorry you are feeling shitty at the moment - I can only imagine is normal in your situation and dont you ever feel sorry for putting us through anything- we are humbled that you share all your times with us - both goodand bad. I hope your next few days will improve and you will feel perky again!
Always right behind you, somewhere out there,
Love
Jenny x
Posted by Jenny Craig | July 10, 2008 6:33 PM
Posted on July 10, 2008 18:33
just take care of yourself we will all busy ourselves continuing with you campaign
jane xx
Posted by jane bailey | July 10, 2008 6:34 PM
Posted on July 10, 2008 18:34
there are no words except to say we are all with you even tho we dont know you personally.you are unique and we will keep kickin parliaments arse after you've gone.your legacy will stand dont you worry us yorkies have some grit eh?i really wish for a miracle for you cos you above all deserve one.we are all rooting for you honey.xx
Posted by lynn fawcett | July 10, 2008 6:46 PM
Posted on July 10, 2008 18:46
Good to hear from you - hope you have a better few days
sue
Posted by sue | July 10, 2008 6:46 PM
Posted on July 10, 2008 18:46
you completely amaze me as to how well you are doing. I check on you every day to see what extraordinary thing you have accompolished.
wish you well.
Julie
USA
Posted by Julie | July 10, 2008 6:54 PM
Posted on July 10, 2008 18:54
Glad you enjoyed your weekend, the company of loved ones - and a dose of good old fashioned booze :-) ...but sad to hear you've felt so unwell since - I really do feel for you. You deserve a break, the very least anyone in your situation could ask for is a peaceful end. You convey your fear and feelings with such vividness and poignancy, it floors me!
I wasn't the internet-savy type myself before all this. I'd never even read a blog, let alone commented on one! (Now I'm hooked!) Seriously though, it's taking me on a bit of a journey too - I've never experienced such depth of emotion - or desire to act upon it! It's incredibly upsetting but enriching in equal measures - you have brought out the very best in everyone who follows your story.
Regarding your earlier post; I think your extended network of friends are pretty hardcore - this as a long term campaign and we're behind you 100%! We'll go the distance until your talks are implemented! It's also rather special to feel that maybe, in some small way, although we've never met you, we're helping and supporting you personally, too.
...Oh - and Lord Harrison of Chester, eh? Great to see the 'Sudders Effect' reach the Lords - and a little bizarre; my dad used to work for him years ago, when he was an MEP. Small world.
Hope you feel loads better by now. Love to you and those around you, Charlotte xx
Posted by Charlotte Newall | July 10, 2008 6:59 PM
Posted on July 10, 2008 18:59
Adrian,
You are in my thoughts and prayers. I started reading this blog a few months ago and find myself checking to see how you are everyday. You are an inspiration to all. May we all follow in your footsteps from now on.
Take Care and God Bless!!
Kim (NY - USA)
Posted by Kim | July 10, 2008 7:12 PM
Posted on July 10, 2008 19:12
Adrian you really are an incredible young man and you must not be concerned about sharing the good and the not so good.If it is of some value to you, which I hope it is, then please feel free to carry on writing from the heart.There is so much of you in your messages that I, and no doubt countless others, feel as though I have actually met and come to know you.Sharing feelings with caring strangers can be therapeutic so please be assured there are many of us more than willing to listen from a distance. Best wishes to you and your family. Love Diane
Posted by Diane Rowbottom | July 10, 2008 7:14 PM
Posted on July 10, 2008 19:14
NEVER worry about what you have put others through, rather give yourself a pat on the back for waking us all up. For making us aware of your campaign, about your disease(s) and about bone marrow donation!
what a crappy time you have just been through but it's GREAT that you are feeling tons better!! thank you for sharing so deeply and honestly with your blog readers.
God bless. You remain in my prayers, along with your Family & Friends.
Janet
SA
Posted by Janet Reid | July 10, 2008 7:19 PM
Posted on July 10, 2008 19:19
Hi Adrian,
I am Shiney from India, today I got a mail from Lesley asking me to sign a petition, which I cant as I am in India .I had contacts with Lesley and may be she mailed me by mistake.
But only today I am hearing about you for the first time.You may not read this mail..you will be getting hundreds a day.
I dont want to write what I am going through reading about your life, feeling so helpless and so sad...simply crying.
Actually I dont have any reason to live,just wondering if I can exchange my life with you.
Just sad that I can never see you sitting here in a far away country.May be I cant face you if I ever meet you...I will go mad with grief.
You had a decent life, I am never happy with my life till now...so try to be happy thinking that there are somany unhappy people in this world who have no reason to live.
I wish I was in your Poppy's place, must have NEVER left you.
Crying and crying made my eyes and face swollen,difficult to control.
Wish you all luck in the whole world.
Shiney
Best Wishes
Posted by Shiney | July 10, 2008 7:27 PM
Posted on July 10, 2008 19:27
Dear Adrian
It takes courage and sense not only to face your death so honestly, but to share it so openly with us all. By your doing this it will help many understand these last stages that we are all going to deal with sometime in some way. Sometimes it's difficult for those close to the person dying to ask too many questions - so, another great 'Thank You' to you for giving us a window into something normally not seen, heard or felt.
So often it's not the act of dying that is scary, it's all the stuff that goes with it that just sucks big time!
I sincerely hope that your passing is gentle and kind to you all.
Love and hugs to all of you and a special big one for your mom.
love and light
Annie
Posted by Annie | July 10, 2008 7:30 PM
Posted on July 10, 2008 19:30
Hi Adrian
Don't ever worry about what you may be 'putting us through' or making us feel (unless it is to make us feel guilty that we aren't being active enough at spreading the word about the campaign to educate and recruit to the donor schemes).
I for one read your blog out of a real interest for my 'virtual friend'. To find out first hand what you are going through, and how you are comabating it. To give virtual support through the lows and to join you in celebrating the highs.
And I feel that I am one of many thousands doing the same!
Take care!
Andy...
Posted by Andy Jenkins | July 10, 2008 7:44 PM
Posted on July 10, 2008 19:44
Be brave. I've been reading your blog and I am amazed with your strenghth and will to live. I've friends and relatives that have through this.
I had a bad day at work and the I read your blog, and I realize that my problems are so insignifficants.
keep walking
Posted by Natascha | July 10, 2008 7:48 PM
Posted on July 10, 2008 19:48
Much love to you Adrian..
From someone who is very happy to be in Adrian's army :)
In your last post, you included the readers of your blog in the same group as your family and friends and as one of them I am honoured that you did..
For me, as am sure for many of those reading this, the same is true of the way we feel about you.. you are much loved by us (In fact I do believe that being a "Sudders groupie" is officially a worldwide phenomenon.. in fact it wouldn't even surprise me to learn that they've even applied to have the phrase added to the Oxford English dictionary!!!!!!!!!!!) and it has been a privilege and and honour to share your journey in some small way.
Am sending you the biggest hug you can imagine.. and sending lots of love, sunshine and prayers your way.
I was listening to a song called "True colours" by Cyndi Lauper, which reminded me of you..
Because your True colours really are "Beautiful like a rainbow"..you have sought nothing but to help others, despite what you have been going through.. and have touched the lives of so many..
Love to you
X
Posted by Laura Staveley | July 10, 2008 7:53 PM
Posted on July 10, 2008 19:53
Dear Adrian
Make your wishes known - I am sure you have already done this - but make sure that all of your carers know what you want and how you want to be treated. Write it down. Make sure everyone has a copy.
Each and every one of us is sending you and your family so much love and positive energy. You are in our hearts and our minds, our thoughts and our prayers. We wish we could do more.
Hope you are feeling more yourself now.
Lots of love,
Elaine
XXX
Posted by Anonymous | July 10, 2008 8:00 PM
Posted on July 10, 2008 20:00
I am thinking of you Adrian, I hope you start to feel a little more with it soon.
Love, hugs and smiles sent your way
Jo
x
Posted by Jo | July 10, 2008 8:03 PM
Posted on July 10, 2008 20:03
Think about you daily, Praying you reach all your goals.
Posted by Julie Ruegsegger | July 10, 2008 8:04 PM
Posted on July 10, 2008 20:04
Thinking of you, your a true hero
Posted by Stephen | July 10, 2008 8:16 PM
Posted on July 10, 2008 20:16
Its hard to know what to say to you, those early hours of the morning are not a great companion to have in times of uncertainty. In those hours the mind tends to assume the worst rather than the best and doubt hides in every dark corner. The best answer may actually be just to get up - someone in your "army" somewhere is probably on line and thinking about you! If the last 18months have shown you anything then it must be that you can't predict what happens next, try and conserve your energy for the times with your friends and family and don't assume the worst will follow.
We are all thinking of you and those who love you.
Posted by margaret | July 10, 2008 8:30 PM
Posted on July 10, 2008 20:30
Hi Adrian,
I did try to leave a message last evening, but there seemed to be a problem with the blog.
I don't know what we are going to do with you! You are mentioned in Parliament and the House of Lords, and then you frighten the life out of us because we haven't heard from you for a few days, or when we do, we find out how ill you have been.
What I wanted to say last night was, that I feel I know so many of your cyber family, just from their posts and the comments they make. I am sure, when you "shuffle off" as you put it, we will stay in touch and with your family.
Adrian, since reading your blog, which has only been since May, I feel I am a much nicer person. I first found you when I was in the gym. I could see this lovely face on the tv screen,(breakfast TV) so plugged my ear phones in, and listened to what you had to say whilst I was on the treadmill!! From then on you have inspired me and I feel very proud to be part of your extended family.
I am too old to be a donor, but I have told my 15 year old granddaughter about you and hopefully I have sown a seed in her mind.
I am pleased you are feeling better today. It must have been very scary for you and your Mum and Dad when you became so ill.
Well, as always, my love to you and your family and I hope this message gets through.
Bless you Adrian, stay strong and believe me when I say we are all with you on this long journey. I hope you don't have any more scary moments.
Ree
Posted by Ree | July 10, 2008 8:36 PM
Posted on July 10, 2008 20:36
Darling, darling Adrian: What you are putting us through? You have given us all the gift of life and hope..you are now giving us the gift of passing, death. You tell us where your mind goes so that we can go with you as much as possible, and for those that cannot stand it, simply don't read that post...For me, I live for every word. A possible look into the world my father now lives in that he cannot bare to share with me? It is a cruel place, but maybe more tolerable when you remember, and you really must REMEMBER...
IT IS NOT KEYBOARD TO KEYBOARD...IT IS HEART TO HEART......
MUCH MUCH LOVE, THERESE
Posted by Therese Prophet, Mesa AZ | July 10, 2008 8:41 PM
Posted on July 10, 2008 20:41
Adrian, I have been reading your blog for the past few mothns, although I wanted to write to you I could never bring myself to do it, what would I say?. Now as I read this post, I just wanted to say remain strong, know that you have made a great impact not only in your part of the world but mine and so many others as well. I live in the U.S.A., and as I read your posts there is only admiration and respect for all you are doing despite feeling sick and tired all the time, for that you are an angel. I just wanted to say that, I will continue to pray for you, I pray that God makes your remaining days on this earth as peaceful and loving as you deserve/wish them to be. Remember there are millions of people praying for you. May God's unconditional love guide you and keep you.
Paola
Posted by Paola | July 10, 2008 8:55 PM
Posted on July 10, 2008 20:55
Dearest Adrian - so sorry to hear you've been feeling poorly again but very glad that it has subsided and you are feeling better. As is typical with you, you have been worried about what you put us through, which just goes to show what a special person you are.
Perhaps you've been overdoing things but with the party atmosphere you seem to have at home, not to mention that amazing Wimbledon final, it must be really difficult not to ?!
You continue to be such an inspiration to me - I talk and think about you every day, wondering how you are, hoping that you are continuing to enjoy a happy and peaceful time with everyone you love. I'm so touched that you look on all of us as a kind of family, too, even though you are right to say it is kind of strange, but the feeling is mutual.
Sending you lots of love and energy, and wishing you many, many more lovely moments.
Jane, La Palma
Posted by Jane | July 10, 2008 9:07 PM
Posted on July 10, 2008 21:07
Adrian, 'fear, frightening,scary,upset, tragedy' it all sounds so deeply human and real. Especially for a 27-year old.
When I think of fear I hear the words of Joni Mitchell. But - even as a doctor - I still DON'T understand...
I Think I Understand
by Joni Mitchell
Daylight falls upon the path
The forest falls behind
Today I am not prey to dark uncertainty
The shadow trembles in its wrath
I've robbed its blackness blind
And tasted sunlight as my fear came clear to me
I think I understand
Fear is like a wilderland
Stepping stones or sinking sand
Now the way leads to the hills
Above the steeple's chime
Below me sleepy rooftops round the harbour
It's there I'll take my thirsty fill
Of friendship over wine
Forgetting fear but never disregarding her
Oh, I think I understand
Fear is like a wilderland
Stepping stones or sinking sand
Sometimes voices in the night
Will call me back again
Back along the pathway of a troubled mind
When forests rise to block the light
That keeps a traveler sane
I'll challenge them with flashes from a brighter time
Oh, I think I understand
Fear is like a wilderland
Stepping stones and sinking sand
Take care, Ann
Posted by Ann Van de Velde | July 10, 2008 9:09 PM
Posted on July 10, 2008 21:09
I wish you peace, Adrian.
India
Posted by India | July 10, 2008 9:13 PM
Posted on July 10, 2008 21:13
Adrian, I have spent the last 5 weeks on a palliative care placement, and if I've learnt one thing, it's that people are amazing things and you have more control over what is happening to your body than you think. If you want to fight, that's all you have to do, likewise, if you don't, then you don't, but the outcome will be what you decide. I treated a man who according to all known medical fact and science, should have passed away weeks ago, but he has unfinished business and is determined to see it out. And I'm sure he will. Keep on truckin' matey, we're all behind you xx
Posted by Laura | July 10, 2008 9:14 PM
Posted on July 10, 2008 21:14
Adrian,
Thanks for being so honest about your symptons again. You've had me in tears again but only because of the inevitable end to your illness, knowing that you know and accept this, but feeling really frustrated that it's going to actually happen to YOU. Your post today got to me because you were really upset by the latest development. Maybe you just had one of the horrible viruses that's doing the rounds at the moment - let's hope so!
I think you know that we all care about you big time and just hope for calmness for you but with awareness.
Just remember that every time you smile,every one of your blog family smiles back.
Adrian, you are very special and you, your family and your friends are always wished love, peace and soothing thoughts.
Loads and loads of hugs.
Christine M.
Posted by Christine M. | July 10, 2008 9:28 PM
Posted on July 10, 2008 21:28
"However, I am scared that the end stages will be long, drawn-out and unpleasant."
This is the honest and heart felt comment which gives you and your blog the effect it deserves .
Love Dan
Posted by Dan | July 10, 2008 9:35 PM
Posted on July 10, 2008 21:35
As a local reporter for the Irvine Herald in Scotland, I am asking readers in issue dated July 18 July to sign the petition, it seems such a simple request and hopefully our readers will be as inspired by Adrian's honest and refreshing writing. I feel very humble to read it and send him love from his Ayrshire readers.
Posted by Lorraine Howard | July 10, 2008 9:51 PM
Posted on July 10, 2008 21:51
Dear Adrian,
I am so sorry you are having such a hard time. This really stinks! I and, I am certain, many people are upset by your posting because we have come to consider you a dear friend. We care about you and please know that when you are feeling bad, we are thinking of you and praying for your peace. Also, thank you for trusting us with your private ordeal. Your friends and family have been a wonderful part of your journey but their love and devotion will bring you through the tough times. Let them help you if they can. Hope you see a brighter day tomorrow. With love and admiration,
Kathy from USA
Posted by kathy from USA | July 10, 2008 9:59 PM
Posted on July 10, 2008 21:59
Oh Adrian, I hope by the time you get this you are feeling a lot better than you have been. I've tried to post to you for a while now and haven't been able to get through so I hope you get this. I, along with all the other stalkers/friends etc hope you have good quality times for a long time yet. I dont know what else to say but I hope you still have lots of time to have fun/wine/beer ...in that order or any other order for that matter. It is strange but we do all feel like your family (was reading from a previous post) and if you don't mind I've decided I want to be a mad old aunty if thats ok. Much love, light, good thoughts and anything else positive is sent to you and yoursxxxVal
Posted by Anonymous | July 10, 2008 10:10 PM
Posted on July 10, 2008 22:10
Adrian,
Please don't ever apologize for what you write. We all want to know how you really are, the good and the bad. When I read this, I'm glad to know that you are feeling better and that you have a quiet day planned. You are educating us all on so many levels about so many different things. It is your honesty that touches me and keeps me coming back because you write from the heart and it is genuine. I can not imagine what you are going through and then you are able to write about it and share it.
When your body takes on a life of its own and you don't know what is going on, and on top of that you feel horrible, I think you have every right to have some self pity.
I wish you well, Adrian. Sending you peaceful thoughts.
--Caitlin
Posted by Caitlin Magee | July 10, 2008 10:16 PM
Posted on July 10, 2008 22:16
Adrian
Hang on in there, we are all sending you positive energy and above all hoping your wish for a peaceful journey be granted....
Words cannot express how overwhelmingly proud I am to be sharing your journey.....
much love
xxxreiki hugsxxx
dawny
Posted by dawny | July 10, 2008 10:20 PM
Posted on July 10, 2008 22:20
Adrian-
I live a world away from you and yet you have entered my heart as if you were my own family.
I check on you every day and always hold hope that you are having a peaceful day.
I've never met you, but know I will never forget you. You are an inspiration.
Please continue to fight!
With lots of love,
Deb
Posted by Deb Dybvig | July 10, 2008 10:23 PM
Posted on July 10, 2008 22:23
Thinking of you and yours and wishing you a peaceful and pain free night. xx
Posted by CAROLINE | July 10, 2008 10:27 PM
Posted on July 10, 2008 22:27
Hello friend,
I'm so sorry to hear you have been feeling rubbish- self-pity and its ugly head are completely normal and jusified I think though. I wish, as am sure we all do, that there was something we could do to make things even a bit better. I guess all I can say is that we (all your many many friends-both virtual and real) are keeping you and yours firmly in our thoughts, every single day, and are wishing with all our strength that you are as ok as you can be. We are in this together mister (although you blatantly have the ropey end of the deal) and I hope this can provide at least some comfort.
Loads of love,
Nic xx
Posted by Nic | July 10, 2008 10:37 PM
Posted on July 10, 2008 22:37
Adrian, the Superhero that has shared his great political feats with the world and invited us all into your home, your bathroom, your sickbed...I wondered when such a post would manifest; one in which you exposed your fear, dropping your Superhero suit just long enough for us to catch a glimpse of the real man behind the spandex. My admiration of you is beyond words and I can't tell you how I ache in reading today's post. The amazing rawness of it making my own stomach churn.
It is unfair, the illness. The unknown. It is a huge injustice that I, as a God-believing middle aged American woman, find hard to make sense of. But I always look for the good out of the bad. Adrian, you have given me a HUGE sense of today. You have given me the ability, the necessary ability, to embrace every moment. I am sure you have given this gift to MANY, MANY people that you will never meet.
Adrian, we are all here with you. The journey is yours but we stand along the sidelines and cheer, and smile, and hope the very best out of the very worst you have been through.
I come here every day. I don't bring beer, or jokes, or food...but I come to be a part of Adrian's world. A world I could not live in, but marvel at the Superhero who does.
Posted by april | July 10, 2008 10:55 PM
Posted on July 10, 2008 22:55
aww bless your heart Adrian, I feel useless that I can find no new words of comfort for you, you remain (as always) in my thoughts and in my prayers that whatever lies ahead for you, you continue to find the strength and courage to face it, and that God keeps your family in His loving care, hugs to you all
Posted by Kay | July 10, 2008 10:57 PM
Posted on July 10, 2008 22:57
Hi Adrian,
Considering everything you're dealing with it seems to me what you're going through mentally is totally normal. I'm sure it's easier to forget about things when you're charging off on the next leg of your crusade. It stands to reason you're going to have days where you just feel like crap. I know one thing, you're handling it alot better than most of us could.
Just know we're thinking about you, sending some prayers your way, wishing you comfortable and happy days, and wishing for good meds on the days that aren't so good.
And it may sound crazy......but we've grown to love you as well and you've become part of OUR families. Hang in there friend, do what you have to do to stay comfortable, keep those docs guessing on the liver tests, and have as much damn fun as you can.
Long live King Adrian..........
from one of your loyal army of servants
Beth
USA
Posted by Beth | July 10, 2008 10:58 PM
Posted on July 10, 2008 22:58
I know it may sound cliched, but you are so very brave. Brave for fighting for bone marrow drives, and brave for fighting the disease for as long as you are. Just remember that when you get down. You are a strong person inside no matter what, no matter what your body is telling you. I'm immensely in awe of you and what you have been able to accomplish.
-Mary
Posted by Mary | July 10, 2008 10:59 PM
Posted on July 10, 2008 22:59
Dear Adrian - read your blog from the 9th and just wanted to say that I hope you are feeling better by today - you are a wonderful person to be doing everything you are. Ann x
Posted by Ann | July 10, 2008 11:07 PM
Posted on July 10, 2008 23:07
Well Baldy? what can I say , nothing probably just Thanks for the support for the likes of me. AML M0 chemoed out, 18 months remission no donor in world to suit so wing and prayer it. As I said before I have been a bone marrow donator since the very first day Anthony Nolan started .quite strange that things turn out like this. Just a great thank you for all you have done and are going to do. I can say that my work friends are now all donors thanks to you and me , and that can only be better for the future. Keep fighting mate we need you
Andy Mobberley
Posted by Andy | July 10, 2008 11:11 PM
Posted on July 10, 2008 23:11
Hi Adrian,
Annie from Tennessee, USA, has been sharing with me all the many things you are doing to bring awareness to the importance of bone marrow donations. I dropped in to read first hand and to personally thank you! You see, I can remember clearly the day my mom called to say "there are no matches". I can still hear the tone of her voice as I tried to reassure her that help would come. Unfortunately for her, that help never came. We are with you in spirit and dedicate ourselves to this same cause in our area.
Adrian, you have deeply touched my heart and I send you my heartfelt best!
Greg Stephens
Birmingham, Alabama, USA
Posted by Greg Stephens | July 10, 2008 11:12 PM
Posted on July 10, 2008 23:12
hi Adrian,
I cant thank you enough for sharing your pain and experience.you are awesome and have helped me to understand and deal with the pain and frustration that I know my mother experienced with her losing battle against cancer.she tried to protect us from her pain and it was not until after she was gone that we knew just how she really felt. she was independant to the last and did it her way. It seems like you have it sussed with your friends and family.
I think you have started something fantastic.God bless!
Posted by diane | July 10, 2008 11:19 PM
Posted on July 10, 2008 23:19
I pray that your strength rebounds from this recent episode. I can only imagine that I would be feeling every single emotion that you've had, and then some, were I in your situation. You are so tremendously brave and inspirational, and I pray with all that I have that you will NOT experience any prolonged feelings of illness!!! You are in the thoughts and minds of so many - I know that our collective prayers (thoughts/vibes, etc.) are bound to be heard.
I hope you're back to the beer in no time. God bless.
Posted by Monica C. | July 10, 2008 11:30 PM
Posted on July 10, 2008 23:30