Can you help support two great blokes and two great charities?

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BenOlie500.jpg
Ben Hunter and Olie D'Albertanson

Every day is getting harder now.

I'm going to need some sort of hospital attention either today or tomorrow.

My eyes are struggling to read what I'm writing, the exhaustion brought on by the anaemia runs so deep and is seemingly insurmountable and finally I have started having, dull drawn-out headaches.

The last problem could be due to a number of reasons but I fear it is linked to the new drug Dasatinib which I started taking over the weekend.

My hands are shaking a little bit as I sip my glass of water and dread the impending number of tablets I've got to get into me.

My resting heart rate, writing this in bed, is over 115 beats a minute as it struggles to push the limited blood and oxygen supply around my body.

The good news is that on Friday my consultant prescribed some new antibiotics which have really helped clear my chest.

My croaky voice, you may have heard in the previous post, looks like it is improving.

Let's be honest - this is a dreadful, maybe even tragic, situation that I find myself in.

But every day checking the comments that are now flooding in from all over the world is such a support.

I am sorry that I am incapable of replying to you all but know that all your voices, often of complete strangers, wishing me, my family and friends well, is a mountain of comfort.

It's great being part of this global community and I suppose in many ways we are all in this together now. Sorry about that!

Again thank you to you all.

Have a look at what Ben and Olie are planning too.

Ben Hunter

Ben speaks: "Please consider sponsoring my Mont Blanc my climb to raise money for The Anthony Nolan Trust. The target is £3,000 but it would be great if we could get more. None of the money raised will go towards the cost of the trip, all will go to the charity.

I originally thought this up to cheer AD up during some heavy times, but now it is a thank you to the Anthony Nolan Trust, who's lifesaving work has allowed AD to have the time to achieve so much.

Since 1974 we have helped to give over 5,800 children and adults a new chance of life.
The Anthony Nolan Trust

I have done long treks before but this will be my first attempt at mountaineering.

At 4,808m (nearly 16'000ft) Mont Blanc is the highest mountain in Europe and the 11th Highest in the world. I will be using a professional mountain guide and climbing in a team of 3-6 people and will be doing the climb in June 2009 (training started a few months ago.)

The plan is to drive my folk's camper van down to Chamonix to embark on a week of intensive training and acclimatisation, then when weather conditions are right, set off for the summit.

Wish me luck!"

Click here to support Ben's quest.


Olie speaks: "Hi everyone,

I have secured us places to run the London half marathon on October 5th for Leukaemia Research.

I want to try and raise as much money as we can for this to keep AD's campaign up and running.

This is the just giving site I have set up - if we just use this one page we can collect all the money in one go. Please spread the word to as many friends and colleagues as possible.

Click below to sponsor Olie.

http://www.justgiving.com/baldysblog

Thanks lads.

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65 Comments

Times are hard, but I've given my £10 as times are obviously harder for others.

Hi Adrian, I've been reading your blog periodically ever since I heard about it a some months ago and I can't get you out of my head! I have a huge lump in my throat writing this and know that you've heard it many times before but you are an amazing person and I hope you feel proud of what you have done. Through your strength and determination you've spread the message about the need for more bone marrow donors and have rightly achieved the recognition that this cause deserves.

I've signed the campaign and the petition, and have sponsored your friends Ben and Olie (sorry not megabucks!) and have been telling all my family and friends to read your blog and take action too. I'm giving blood this afternoon, and am going to register for bone marrow donation while I'm there.

When you're feeling really crap, just think of the amazing things that have come out of your situation; you have educated me, I have educated my friends and family and when my children are older I will tell them about you and how important it is to be a donor...on and on it goes...and I'm just one of the people reading your blog.

Sending very best wishes to you, and to your family and friends

Rosie x

Hello Adrian,

I have been following your story since the Daily Mail article about you but I've never posted because I just don't know what to say that hasn't already been said. If tears were bone marrow then I would have cured the world by now. I've shed so many for you and the utterly devestating situation you and your family find yourselves in. However, every time I find myself blubbing I turn on the computer to find you having tea with the Prime Minister or flirting with Natasha Kaplinski! I half expected to see you picking up a gong from the Queen this weekend! (I will definitely lobby for one for you next time if she forgot!)

I wish I had known that you were going to do Sky News as I live just down the road from Sky and I would have loved the opportunity to meet you in person! You have taught me so much about living I just wanted to say thank you really.

My husband is a cancer survivor and an amateur mountaineer and I am an overweight mother of three who has just turned 40 and started running so we will be supporting Ben and Olie's campaigns.

I wanted to ask you what you would like to happen to your campaign in the future? I believe at 40 I am too old to become a donor? However I do have time on my hands which I would gladly use to work for your campaign, a journalist friend at a national newspaper and several PR contacts. I would really like to offer to help in any practical way I can. If you think any of this is useful please let me know or give my details to your family.

So I send you and your family all my love. I am thinking about you and praying for you daily. Although we have never met, I think of you as a friend.

It has been an absolute priviledge to stand next to you in spirit and to share your journey with you. Very few people leave this earth having made a real difference to the lives of others and having left a lasting legacy. You are such a person and I am so happy that your family will have all the wonderful footage of you conquering the world with your campaign.

Sending you love and peace.

Sara

Adie! How did you find a party photo where I am not drunk and stumbling about? Remarkable.
With this exposure I just have to succeed, so no more junk food.. tomorrow I start my early morning running routine, knowing how much I hate early mornings.. and running, this is for you Adie!

To the Sheffield Star, who continues to burn bright and inspire us all.
I'll keep fighting your campign.
Thinking of you & sending you big hugs.
Caz Xxx

Have pledged my cash for both you guys. They're both serious challenges - great job and good luck!
As an aside, I know neither of you are local, but if we can help you raise funds by including information about your efforts in our Examiner campaign coverage let me know (Ad has my contact details).

Adrian,

Keep fighting! I know it's hard, but just reading what you've written, and seeing you keep on going gives everyone whom you've touched so much inner strength. You are truly amazing, no matter what you think, and the voice, the work you'll leave behind is so strong that it'll resound through the years into eternity. I truly believe that with every fiber of my being.

I can't even imagine what you're going through, and it's still impossible for me to believe that such a strong soul, such an amazing spirit, was assaulted by such a terrible, unfeeling disease. I'm sending all my hopes and prayers to you and your family.

Keep up the fight. Everyone is cheering you on.

Lots of love and support from Japan.

Hey Adrian,
You have achieved something extremely amazing - making people sit up and take notice. When Pete (my husband who had aml) reached the stage you are at now, he became very almost accepting his lot albeit with great sadness . He was so sick of all the medication / tests / being monitored, that I think it was a kind of relief to know it was going to be over. Don't know if people will be able get there heads round that but that is how it was. From all of us who did not have the spirit to do what you have done - THANK YOU. Tell your family how much you love them x

Wow what amazing parents you have they are also so brave I was in tears I don't know how they collected that award. They brought up a truly wonderful son and daughter you are a credit to them as well as them to you. I know they will continue your legacy. You sound like you have wonderful support of your family and wonderful friends if not a little crazy. They could have done something a little less extreme I still would have sponsored. You must be so proud. Even if your life is pittifully short it was by the sounds of it rich with love and affection from family and friends more than some people have in a much longer life. You have achieved so much I know you wanted to achieve more and for that I am so sorry. I am thinking and praying for you I look everyday in dread and can't believe you are still blogging. So I keep relpying. I am praying for a miricle. I got one my parents were told I was dead and were sent home over 31 years ago when I was a new born. I am still here I consider that a miricle and firmly believe they do happen. I hope that this happens for you but if it was not meant to be God wanted you. They always say the best die young lets hope he lets us keep one!

Henny

Adrian,

Great to hear you have started the new drug. Maybe you can now really give Mr. Luke Emia a kick up the arse. Best of luck with it. You really are an inspirational guy. I will certainly sponsor your friends. Who knows maybe this time next year you could be cheering them on. Miracles do happen and why not happen to you. I can't think of anyone who deserves it more.

Have signed the petition x

Adrian

I have been following your blog. You are an inspiration and too young to leave this world. Please know you have effected (positively) many people - most of whom you do not know.

You are a true warrior!

Jennifer
Tampa FL USA

Hi Adrian

I'm sorry to hear that you are feeling quite poorly now. I have been reading your blog for a while now and think what you have done regarding bone marrow donors is brilliant. I really don't know where you have found the strength from to do everything you have done. You're the best.

Love and best wishes to you.
Julie xx

Just read your last blog from friday as well as this latest one. You have to give the new drug a try. Any glimmer of hope is worth it. My daughter was hours away from dying through pneumonia last year when her immune system was suppressed and was saved at the last minute through the introduction of another antibiotic - it caused problems and complications but she is ok now. You've fought so hard and I know it must be difficult to take this latest development in - and hard to fight - but do it. Your life is so precious - to you - and to all of us now - but most especially to your family. Might be presumptuous of me to write like this but it's how I feel about it.

This is the first time I have commented on a blog but I just wanted to say what an inspiration you are. Please keep fighting on! You deserve every bit of love and goodwill that people are sending your way and you deserve a long and happy future.
You seem to have handled your illness with maturity, a good sense of humour and a selfless determination to help others. Thank you for sharing your journey with us and thank you for the countless people that your campaign will help in the future. I know you didn't ask for this and it is very unfair for it to happen to you but you have turned round what is usually a purely negative illness into something with a glimmer of hope for others.
You should be very proud.

Good luck for the future and keep fighting on.

Hi

Just donated!

I'm glad that your chest has cleared. I hope the platelets go well and that you start feeling better with your new drugs.

Take care

Love Rachel x

Hi Adrian,

It's been a couple of weeks since I've managed to checked your blog so firstly may I say WOW! 170,000,000 people?!! Now that is impressive to say the least, imagine even if you were only successful in making 0.5% of those people listen then that would still be 'just' 8.5 million people... as you said, these figures are mind boggling! To sit here and type that what you are doing is amazing seems almost degrading to your work; it's far more than that and you don't need me to tell you how important and phenominally powerful it is - I would just like you to know that you have reached and therefore educated me on something I was unaware of before. You have also inspired me to be a more positive person, I cannot imagine for one second that I would have had the strength, character and good humour to deal with this how you have. Keep on fighting to the last second Adrian, the world needs people like you for as many moments as it can. Your contribution to the world is likely to be worth a hundred 80 year lives. In fact, if you reached 170m in one week, how many people do most people reach in the average lifetime? I would do the maths but I don't want to bore you anymore than I already have! You were saying in an earlier post how you regret the hurt caused to your family, but if I were them I would take so much comfort from the fact that they knew somebody amazing. It's better to have loved someone amazing and lost them than to have loved an average person for a lifetime. I made that up, don't you know, but it's true isn't it. Anyway, thank you for being such an inspiration and I hope you continue making the most in a bad situation.

Warm wishes,

Mark


I'm so sorry you're feeling rotten. I hope the headaches are a temporary thing and that the visit to the hospital helps you feel better!
XX
Lacey

I can't imagine what it would be like to have my son talk to me about his funeral. Your parents must be extremely strong, although I wouldn't blame them a bit if they were tired of everyone saying that. Losing a child before its "time" cannot be a situation that any parent could be strong enough for. Praying for you every day and looking for you in everything I do....

God give you courage.....

love

therese

Another long-distance friend from the US, writing to say "hello." I, too, have been following your story over the past month, and I hate to hear that you're feeling so bad these past few days. You have an incredible spirt and will to live but your body's just not keeping up any longer...that stinks. You've fought the battle well, and now, surrounded by the many people who love you so much, maybe it's time to rest and be taken care of. I'm so glad you've got family and good friends to support you during the most difficult parts of the journey - they will carry you through.

Wishing you peace, and God's blessings for you and your family.

~ Mary Anne, Ohio, USA

So sorry to hear you're so poorly - I've been following your blog since I first saw it online. I've told everyone about it, and asked them to sign your petition. Unfortunately I can't be a bone marrow doner as I have a back problem but I'll try and 'spread the word'.

Once I'm paid I'll sponsor Ben and Olie - not much unfortunately, but every little helps!

Good luck with your fight,
Love and hugs
xxx

Hi Adrian. I'm delighted to be able to help a little bit. After enjoying your blog from the start, and crying along with thousands of others for the last few weeks, it's a real pleasure to be able to sponsor your friends. Being a Yorkshire girl I do have to consider every last pound and ensure they're spent wisely, but this will be the best few pounds I've spent in many years. I find myself thinking of you and your family constantly these days. Wishing you luck, happiness and strength, Sally.

Hello, I wanted to post and tell you that I have been following your blog for about a month now, I saw your story and tv and it touched my heart so profoundly, I have not commented before , BUT I felt like I wanted to today, just to let you know that I was and am thinking of you and praying and praying for you each and every day.... I wanted you to know that you have touched my life from across the miles ( I live in the US) , I belong to a group called Chemo Angels that supports people with cancer, through cards, letters, email and sending small gifts... I have been doing this for about 5-6 years now and have been greatly blessed by my experience with my "buddies".... I am inspired by your courage, and your ability to keep on going....
please KNOW THAT... I will continue to pray for you and I trust the Lord hears ALL of our prayers, he does... God bless you and your family ... sending HUGS across the miles....
Nancy B.

I too have AML, although I was fortunate enough to be put into remission. I'm praying for you, and my heart breaks for you. You are leaving behind a wonderful legacy... a alot of people are behind you, and that is something to be proud of!

Hi Adrian,

Upon hearing your story a few months ago, i have taken a keen interest in not only you and your story, but your cause. I have to say that before you, i was quite ignorant on the method of bone marrow donation. i have now educated myself (with your help) and am prepared to do whatever it takes to help someone in need.

Your strength is unlike anything that i have ever seen, and is truly an inspiration. Not a day goes by that i dont think of you, and check up on you via your blog. You have faced decisions most of us would only fear, with courage and grace.

As you are surrounded by your lovely family and fabulous friends, please know that you have had an impact on so many people, not only in the UK, but where i live in the USA as well. I hope that gives you some kind of comfort.

I will continue to support you and your cause, and check up on you daily. I wish you the best, and wish i could just give you a hug.

xo - Karen

Lovely amazing Adrian,

I'm so sorry to hear how you're really struggling right now. And in the midst of it all you find time to say sorry to 'us' out here that you can't reply to us!

You are right when you say that you are part of a global community. There is a strong belief that We Are One. We are all with you Adrian in the only ways that we can be and in return, we are blessed to have you among us.

Every day you make this world a better place for all of us Adrian.

Take care amazing Adrian, I'll be back tomorrow to read all but in the meantime I'm still with you, we're all still with you.

Kate & Co xxxxx


Hi Adrian, yes we are one big global community, thanks to you. We are all spreading the word and the knock on effect is amazing, and that is all down to you! I can't begin to imagine how you are feeling or what you are going through but your post gives a pretty good idea of how tough things are getting. I would like to echo the comments on the above post from Rosie, in that I have spoken to my 11 year old about you and hopefully he will be one of those who gets educated about this at school when the time comes. Friends,colleagues and family have also had info and requests passed on, and so the ball keeps rolling, and will continue to do so. To Ben & Olie, nice one! I will be sponsoring you and good luck. Adrian, I hope you can draw strength from all that you have achieved, and knowing that this global community is behind you all the way.

Love to you and yours.

Nickix

Hi Adrian, Can I just say I didn't even know what a blog was until I read about you in our local news paper ! But since I found out about you a few week ago I have been checking in (much to the amusement of my 11 year old as I try to remember the address - I don't know how to bookmark it- think that is the correct term!) I haven't got any words of wisdom I'm afraid (friends and family will agree with me on this one!) but I just wanted you to know that you have made such an impression on me. I can't donate bone marrow due to back problems but will sponsor your friends,I've told your story to work colleagues who are passing the word on to others. I read a message from someone to you a few days ago who wished you love and light, I thought this was a beautiful phrase and at the lack of anything else productive or world shattering to say..this is what I also wish for you. Val

Adrian, not sure what to say apart from thank you, i have just been through an autologous transplant for nhl slightly different cause no chance of Gvhd due to using your own cells but alot of the chemo and remainder is the same, just before i went into hospital someone told me of your website and i read and watched everything from start to finish with the upmost respect, you without knowing it made a difficult time slightly easier, thank you and my best wishes, steve

Adrian-

I have read your posts for months now almost daily, I am in Colorado is the USA. There are so many things that I would love to say but mainly, you have touched lives in the USA and beyond. So many people would never do what you have done. So many people would have buried thier head in the sand, but you have used your days to the betterment of all of us. I just wanted you to know that both my husband and I joined the bone marrow registry here is the US because of you. So, if we save lives in the future it will be because of your work. God bless. Kym

Hi Adie

I have been following your blog for quite some time now, ever since a mutual friend of ours (Danny Holland) broke the sad news about your illness some 18 months ago.

Although I haven't seen you for some time now we did spend quite a number of childhood days hanging around the Moakes household in South Normanton (me being a neighbour of theirs) as well as sharing the pleasure of attending Freddy Gents although you were a couple of year groups ahead of me.

I find it difficult to muster any original words for you mate as everything that could be said about you and your journey and the way you have faced it have already been used. You are truly an inspirational person and a flag bearer for all sufferers of this terrible disease worldwide and even now you continue to hold your head high and back up every word you utter with that cracking sense of humour.

Few people in this world are presented with a situation in life to touch the hearts of many and to leave a legacy that will long outlive us all, but in the face of adversity you have managed to do this effortlessly Adie.

The media coverage you have drummed up recently to help spread awareness about this matter is unbelievable! When you stated 'Blaze of Glory', you damn well meant it!

Congrats on all the awards, you thoroughly deserve them!

I hope you are able to spend your last weeks enjoying yourself as much as possible, surrounded by the people who matter, who are undoubtedly so proud of what an amazing fella you are.

I pray you keep your chin up, keep smiling and continue refusing to take a step back.
I look forward to any future posts.
You are a real life hero my friend.

Sincerely
Dan

You continue to move me into places in my own perspective on life that I never knew existed. You are a champion. You are that glimmer of incredible human strength and virtue that is nearly impossible to catch a glimpse of in this world.

How amazing that someone thousands of miles across the world should find himself on my laptop, changing the way I think and feel in many ways. You will never, ever know how many lives you have touched and altered because of your bravery, your passion for life, your honesty about a devil of a disease. You don't deserve the lot you've been given, but you are making the very most of it for the sake of so many. You are, as I have said previously, a true superhero.

Godspeed, friend.

Thoughts and prayers are with you, your family and friends. You are amazing!

Tela

Hello, Adrian,

I've logged onto your blog as in my 6th form assemberly today two of my teachers, Andy Esselmont being one of them, told us about your story and it is very touching. He is going to show us the website in which we can sign upto this petition.

I think everything you have achieved is amazing and touching. You are a true inspiration and a hero to many.

When i am able too i shall give blood and sign up to hopefully, one day, give bone marrow.

I shall tell as many people as i can about the petition and i shall share your amazing story with my closest.

Best wishes are with you.


Caroline x

In just a few weeks you've changed the world, struggled with heartbreaking sadness and survived to dance another day, and shown the people in your life how much you love them (and let them show you how much they love you). You've been living every moment of your life - and so many of us don't get anywhere near this.

I understand why you wish you'd never had the phone call. Your decision to try the Dasatinib is extraordinarily courageous. Keep holding tight to the happiness you seem to have found in the last few weeks...

Pru x

It's so nice to still be hearing from you. I know you've been going through a lot and the fact that you still take care of your blog is inspiring.

I just wanted to let you know, I'm still thinking about you and wishing you the best. I have a 5 minute monologue I'm doing on the Stupid Cancer Show tonight. It will be linked to my blog later, so if you are looking for something ridiculous to listen to then come by and check it out. I can't promise I won't mess it up, though.

Thinking of you and wishing you healing.

Thinking of you..... I hope you get to feeling gentler soon
love and light - yup, more of it!
Annie

Hi Adrian

Congrats on yet another award - have u got a special shelf somewhere to display them all now lol?

I have kept up with all your posts and commented a couple of times on particular aspects when it has seemed to much for you to bear and has upset me more than it usually does.

I have left a donation and like everybody else - have to say times are hard, and i so wish i could have donated so much more but i know you will understand that every little helps!

I can understand the host of emotions Friday's phone call must have brought to you- my father in law has been in hospital for 3 weeks now with heart and kidney failure due to the strong chemo he had for cancer last year, which has eaten away at them. They too are walking a fine line trying to find a drug combination that will give him some quality of life if thats possible. If not is it worth prolonging the inevitable for him as like you he was a strong vital man who is now reduced to being mostly bed ridden hardly able to breath without help.

I don't know the answer for either of you but i hope that either medical advances -or you yourself will decide which path to take and what feels right for you. As for my dear father in law only time will tell if they can give him back a part of his life.

My fingers are crossed for you both and again i send love and light for the dark days ahead.

Andrea
x

I'm so sorry that you are feeling so terrible, I really hate the thought of you suffering. Hope that the blood/platelets will make you feel like a new man! Also that this headache is a temporary thing - I wish you could have some of my energy alas I don't really have much to spare down to something called bone idleness ;)

I jest but I really do feel for you right now and I wish there was something we could do to make things better for you. I am so sorry that your family have to see this, I can't begin to imagine how they must feel. I have two little boys and the thought of them being in the same situation as yourself is absolutely terrifying.

I think you have definitely affected people more than you realise, and we are definitely all in this with you now. I am sure I am not the only one lying awake at night wondering how you are doing and how your family is coping!

Very odd example but I am TERRIFIED of dentists and I managed to get through root canal treatment by thinking of what you have so bravely been putting up with since you were first diagnosed. I was still quaking from head to toe though (but I didn't run, at least). What a complete and utter wuss!

I will ask my other half to let me spend some (more) of his dosh to sponsor Ben and Ollie even though I skinted him this month after obviously eating too many sweets! What a fantastic thing they are doing, I hope they smash their targets (I have a feeling they will thanks to you)!

Glad you are keeping us posted, I hope they have pumped you full of A+ and you feel far faaaaaaaaaaaaaaaar better this evening.
Caroline x

My prayers are still with you, all the way over in the USA. You are loved by many!

You have done a marvellous thing by raising the awareness of bone marrow donation. What fantastic work.

I hope you feel better after the hospital.

You're a real inspiration,

Jenny xx

Hey Adrian, its breakin my heart seeing how your condition is becoming harder to deal with for you. I wish I knew you so that I could say how proud I am of you, or make you your favourate tea or somethin!!! Any how all most of us can do is wish you and your family well and promise to do what your asking, which I am. Take care mate. Lisa x (Liverpool)

Hi Adrian

Good to hear from you as always.

Keep on going, it`s the only way & next seasons` football fixture list out - we must make a date for The Alex v Forest.It`ll give you something to aim for!

Best Wishes to you & your family

Liz

Hello Adrian from your colleagues here at Trinity Mirror Southern's Hounslow office, once dubbed 'the ashtray of London' by a long departed publisher.
It sounds a bit odd to say we've really 'enjoyed' your blog because, obviously, if all was fine in your world it wouldn't exist!
I hope the crappy headaches lift, you've got enough on your plate(lets) without needing the H&S screen assessor to come round and measure you while you try to blog.
Seriously, you are a top bloke and, apart from providing people with an amazing insight into your condition, you have done something for which all of us in the regional press must thank you.
Journalists always lurk (what a word) down the bottom of any list of professionals the public trust or admire.
Us local paper people can turn ourselves inside out over this - because we know we are just like everyone else.
We have families, worries, bills to pay, people and issues we care about. Life happens to us as well, as you've shown.
The readers of this blog can see that you are both ordinary as well as truly amazing.
My very best wishes as you continue your journey online and in this life.
Janice, editor Chronicles and Informers, West london.

I hope you're feeling a lot better by now and have received some sort of hospital treatment today.

You're so right when you say we're all in this together (in a Baldy's Blog virtual community type of way!)- make no apology for that though! You're universally loved and admired and whilst I can't begin to imagine how you actually feel, I really do feel for you and your family - and all your friends.

My thoughts tend to drift in your direction throughout the day; how are you? Are you well enough to enjoy a drink with your mates? I hope the weather's good for you wherever you are etc. This along with the heavier, more soul searching questions we all ask about your situation.

Also I find myself checking your blog at least twice a day now and I must admit, my heart did lurch when I read the previous post about the new course of treatment. I do tend to anxiously await the next installment in the hope of good news - everyone says it, but you have an enormous amount of people willing you on, praying and hoping that things will take a turn for the better and God knows, you deserve it!

I hope these latest drugs do have an impact on the Leukaemia - but equally that in doing so they enable you to maintain a reasonable quality of life as opposed to bringing about more nasty side effects.

...Anyway, something I certainly can do is to help support two great blokes and two great charities - and I have done. Well, how could I refuse with that rather lovely picture of them there!! It's good to hear the campaign is gathering pace too - at the end of the week I am going to see my local MP, who is keen to support you, to discuss what we can do to encourage more bone marrow donors in our area (as well as promoting the aims of your petiton).

I'll keep thinking...and willing...and praying! All my love and best wishes

Charlotte xx

I heard you on the TV and I was really touched by your story. God has really put it on my heart to message you.

I have no idea what to say to you, and I can't begin to imagine what you're going through. But I know someone who does know what you are feeling because he suffered the way you are suffering now, understands your pain and who will be there when you've simply had enough.

I am not sure what you believe, but all over the world people are being healed completely by Jesus. I hope you don't mind me saying this but I believe that God has a plan and a purpose for your life, and he is more than capable of healing you. There is a place* near me that has seen terminally ill people with just months to live, totally healed - if you wanted I would be more than happy to drive you there for prayer, just ask!

You seem like a really nice person and I admire your strength and determination. If you have never thought about Jesus I urge you to because he is real and he will hear your prayers.

I know people think how can there be a God when there is so much suffering in the world, but man made the world the way it is, not God. God only allows it because he has a purpose, and you can see that even out of your horrible situation has come an abundance of love and compassion from hundreds of people! (Romans 8:28)

Our life on this earth is short, but Jesus promises us forgiveness for choosing to live without him and eternity in a place where there is no pain or suffering, and it's ours if we just ask and believe. “And everyone who calls on the name of the LORD will be saved.� (Joel 2:32, Acts 2:21, Romans 10:13). So anyway I will continue to pray for you, please feel free to message me if you want. *(http://www.renewalcc.com/mop)

Adrian,

You are courageously lighting up other peoples' futures through your own dark times. I read your blog and you amaze me. Peace to you.

hi fella

as ive said before
stay strong keep going
keep going
baz an dawn...

You are correct indeed about the headaches being caused by the Dasatinib. The good news is that they seem to be temporary, so hopefully you'll get some relief soon.

You are an A-List person! I hope the Dasatinib starts kicking some leukemia cells butt. It's been a wonder drug for many and could be for you too!

Thinking of you in the USA.

Hi Adrian,
Thanks for your emails last week. It was great to hear from you in person. I am starting the campaign ball rolling here in Scotland. I have spoken to my cousin who is MP for East Lothian and I have just emailed my MSP for Midlothian. Hopefully we can continue your amazing work here north of the border.
Look after yourself

Take care
Stephanie

Hope you got that hospital treatment to help you feel a bit better.

Best wishes

Hi Adrian,
You are so right, you are not alone on this fight.I read you everyday and my heart and thoughts are with you all the time.like many many people that you even imagine that are reading you and sending you all their love.
Of course I am helping your friends.I wish you have a good night.piece in your heart.
Andrea

Thank you so much Adrian, for having the gift and courage of sharing with us your thoughts, humour, opinions on life and death, and all the sadness leukaemia brings to you.
I hope you can agree that I put your weblog on the Haematology Website of the Antwerp University Hospital: http://hematologieantwerpen.skynetblogs.be
It's of great value to patients and family, and even much more, to our medical and nursing team!
All the best!! Take care...
Ann
Haematologist, Belgium

You are an inspiration.
Sending love to you and your family.

hi adrian, i have been following your blog for the last 3 months, this is the first time i have made an entry, i have struggled to put into words how i feel about you and your cruel illness. i am so sorry to hear that you are not feeling well. my heart breaks every time i think about you. you are so brave and have amazing strength. i can't even begin to imagine how you must be feeling. i wish there could be a miracle that could take your cancer away, i would give anything for you to be cured. you should be so proud of what you have achieved, every time i mention you to someone they have heard of you and what you are trying to achieve, thats something you should be extremely proud of, i think your campaign has made a real difference and i am sure that many young lives will be saved as a result of your efforts . i am going to huddersfield on wednesday with some friends to sign up as a donors, and my friends and family who can't make it are still going to sign up and i am still spreading the word!!

my love, thoughts and prayers are with you and your loved ones xx

L.fox, barnsley xx

Hi Adrian, I am one of many that tried to offer you encouragement on Fri. from OH-usa
As I mentioned I have been on many chemos for my CML, and one of them was "Sprycel"or as you say-Dasatinib, and eventhough it ended up failing, it still really bought me valuable time until I could get into the next "clinical trial" ....the headaches were temporary for me,but they were bad,I remember that very well,and my heart goes out to you for that.
Especially with your other conditions,I can't imagine how you must be coping.
I will tell you that for myself, the only med that would touch it was Ibuprofen-800mg,
not oxycodone, or even morphine, but with your blood the way it is that maybe a challenge for your system, since NSAIDS can thin the blood.
After it initially lost its affect, the drug-co.(Bristol-meyer squibb) ok'd the doc
increasing the dose and wouldn't you know it,
it helped again for awhile, but then after some more time the cancer resisted again.
The drug I am currently on here in the states is called "Tasigna" or "Nilotinib"
So far it is controlling my counts and giving me some good quality of "Life" some of the time anyways...but nowhere near a remission.
My wife wanted me to pass this website onto you or for your family and caregivers too.. newcmldrug.com hope it helps.
Anything we could help with eventhough many miles, just ask... You give me great encouragement and strength.
And I must be honest.. I do have alot of hope for you with your battle, so if you got it left in ya, know we are here for you.
But whatever you decide I know that no one understands fully all you have endured, except yourself and our Creator.
With alot of Love and concern..one of your fellow cancer soldiers .......Joel in Oh.USA

Dear Adrian

I came upon your story and blog by chance when trawling the Anthony Nolan Trust website. I was doing this in an attempt to find someone to contact at the charity to help us trace the astonishing and wonderful man who donated bone marrow to my husband seven years ago, enabling him to recover from his AML/MDS and enjoy his children, his family and friends and his life.

We have raised funds for the Trust in the years since Iain's illness, but you have made me aware that there is much more I must do.

It is a monstrous injustice that you are in this position and suffering so. I wish you well, and God speed on the next stage of your journey.

With very best wishes

Morrell family

Dear Adrian,
Life has given you such a hard path to walk through, and there is no one else can replace you. We all will reach the end of our lives, no matter how short it is, we all should learn to live the most of it....and you are doing it! Please be proud of yourself.

I hope the pain and discomfort doesn't bring you down too much. Take good care of yourself. You are in my thoughts from time to time, and I do hope you are happy for what you have been doing for others.

All the best
Elin

Adrian,

Your actions are amazing. You are amazing. i agree with so many of the comments that other people have posted on your blog. It makes me feel inadequate writing such a short message to you, when i have read so much about your life. But i have done so because i would like you to know that you are in my thoughts, and to thank you for educating me (and so many others!) about the important things in life.

Dave.

Hello Adrian,

Just wanted to send you my very best wishes. Your an amazing human being - brave and truly inspirational.
Keeping you in my thoughts.
Look after yourself.
Julie x

Keep your chin up, you're doing an amazing and worthwhile job which is going to save lives.

Take care,
Love
Vicola

Hi Adrian,

You are a brilliant man. Your blog continues to inspire people and your tireless campaigning is incredible. So many people are going to benefit from the effort you have put into education on bone marrow donation.

I am so sorry that you are feeling so unwell. I am thinking of you and sending lots of love. Thank you so much for writing this blog and for sharing your experiences.

Kate xx

just a note so say what 2 great friends you have and i was very happy to sponsor them both as always love to you and best wishes to your family x

Hi Adrian,

I am from India, this is the first time I am hearing about you.I do not know how to explain what I am feeling reading about you.

Just want to let you know that there is someone far from your country, thinking about you and praying for you and family.

Dont ever lose hope...keep going.

With lots of love.

Shiney

Hi I no of the chemo angels in the USA but want to no if there is a simalar one in the UK that I can join

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About this Entry

This page contains a single entry by Adrian Sudbury published on June 16, 2008 9:47 AM.

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