Baldy's Blog

Hi Adrian. Listened to you on 5Live again yesterday and heard you mention the need for young males to sign up for the register. Other than posters in pubs(!) it struck me that football might be a way of reaching this group. I'm lucky (or should that be unlucky??) enough to be involved with Notts County FC and thought you might like to know that they will be running a piece highlighting the need for bone marrow donors on the Notts official website.

All the best to you, think everything there is to say has probably already been said by others, but you are one very special guy x

Dear Adrian,

I've emailed your story to a very well known dutch radio station and they would like to speak to you to raise awareness in Holland and tell your story. Could you please email your contact details.
I will forward them immediately.

Regards,
Elle Rowbottom

Dear Adrian

I have just discovered your blog following the publicity on BBC web site. I am right behind your campaign......not least because I have been there myself but I have been one of the fortunate ones - three years ago I was diagnosed with galloping CLL (Chronic Lymphocytic Leukaemia) for which there is no cure, but I am lucky enough to have a brother, who turned out to be a 100 per cent tissue match. He donated bone marrow (stem cells), I had a bone marrow (stem cell) transplant in November 2005 and I have been as right as rain ever since - back to normal. I really appreciate the importance of bone marrow matching from my own experience! The pictures on your blog bring it all back! I am very happy to tell my story (already have - I'm a journalist too) and if there is anything at all I can do to help your own awareness-raising campaign, please let me know. Hang on in there mate and keep smiling! Mike Durham, London

Hi Adrian, just a short note to congratulate you on the huge impact your campaign is having.
I have just signed up to start the process of finding out if I can become a bone marrow donor. And that's from someone whom doctors find it almost impossible to get any blood from as my veins are so darn thin! When I wanted to give blood years ago, the nurses actually sent me home saying it would be too painful for me but thanks anyway!? (true!)
I hope they won't do that again this time round.
I doubt you'll find the time to read all these comments people are leaving, and I find it hard to think of what to say and how to put it. You are, obviously, in a situation most of us can't relate to at all.
Think I'll leave it and just say this much: you've got amazing eyes!
;-)
much love!
~Alexandra.

Dear Adrian

I've been catching up with all your latest news. You are an inspiration to us all. Keep going, you have so much more to give in this world, you can't go anywhere yet!! or ever.

We are right behind you and hope a miracle comes soon.

All our best wishes

Sarah and crew xxxx

Good morning Adrian.
I just learned about your blog from a video on MSNBC. I am sorry... being a Californian, I am accustomed to saying: "That sucks," when coming across something bad, unjust, disappointing or even devastating. What you are going through truly does suck. Otherwise, I am left struggling with what to say next. Thank you for opening your door and letting the world see your life. I have learned something, and I have been changed by your choices, and your choices have been admirable; naturally, I wish your opportunities were different. Moment to moment, I can imagine your emotions and thoughts change, I know mine do. If there is ever a moment when you wonder 'who cares?' I care. I am sad, and my heart is making bargains with my mind, compelling me to pray and make wishes and offer you hope. I will hope and pray for you. Thank you Adrian, you have made my rather normal day an exceptional one and I appreciate that very much.

No fair no fair, how cute are you and wouldn't you just know I was in the market for a toyboy?! My timing has always been cr*p! ;-) You know what they say about a man with big hands....big gloves! I guess a big face means a big smile! I would imagine you won't have the time nor inclination now to read comments as you'll be too busy drinking, cutting the rug, sky-diving etc however just wanted to say add another one to your list - I have just registered my interest in becoming a bone marrow donor. The pebble that is your life is creating a tsunami but one that is needed and welcomed.
Godspeed Adrian
Nicki x

Hi Adrian. I saw a link for your blog on msnbc.com & felt compelled to take a look. Now, after reading a little bit about your situation, I'm going to look into becoming a bone marrow donor. I've only donated blood once, and it wasn't that great of an experience, but I think if I did that once, and I can sit through a tattoo, I can go through a simple procedure that could end up changing someone's life. I think it's wonderful that you are being proactive in your situation by sharing your ideas and setting goals to get more people to become donors. You are changing the world.

Christen
Wisconsin, USA

Dear Adrain,
You are a beautiful soul on a very important mission. We are all ONE and are behind you 100%. Keep Going on and your strength will come from your strong will to bring awareness to the world.
God loves you ALWAYS.

Much love,
Margaret

Dear Adrian,

Is there a possibility of an international bone marrow donor list?
I have been on one here in the USA for years and have been contacted once-but didn't match in the final test. Maybe that would save more lives-at least its a start.

My thoughts are with you always. Fight on!
Love from the states.
Laura

Dear Adrian-
I just had my six-month check-up after treatment for breast cancer, and everything looks good so far. I just wanted to say that you are a wonderful inspiration to everyone. I am a social worker and I work with cancer patients. I will keep you in my thoughts and prayers.
Julie

Dear Adrian,

May God Bless you in your struggle against the cancer. I will pray for you. I know that sometimes life is very unfair. Stick with God and He will take care of you however things may be. Acts 2:38 is a promise of better things.

Take care my friend,
Mike West
U.S.A

Dear Adrian,

I must say that your story is very touching and also very eye opening with regards to the bone marrow donors needed around the world. My prayers are definitely with you.

I would like to however encourage you and hopefully give you a new found hope that perhaps you have not had before and this hope is in the form of a "gift". One that has been the best gift that I have received or will ever hope to receive. One that can give you assurance of your future to come. If you are interested then please read below. Perhaps you will receive the same gift as I have and the countless numbers of those from generations past and yet to come.

Sincerely,
BG

A Gift For You

A “wise” man once said, “Life is like a box of chocolates; you never know what you’re going to get!” You know, he was right. You just never know what you’re going to get in life. But there’s more to our existence than just this life on earth. What about eternity? We can all afford to make mistakes in this life, but when it comes to our eternal destination, none of us can afford to be wrong! So how do you know where you’ll spend eternity? You can find out by asking yourself if you have kept God’s moral Law, the Ten Commandments: Have you ever told a lie? (White lies, half truths, and exaggerations are still lies.) Have you ever stolen anything? (The value is irrelevant.) Have you ever taken God’s name in vain? That’s called blasphemy. Have you ever looked at another person with lustful desires? Jesus said, “Anyone who looks at a woman lustfully has already committed adultery with her in his heart” (Matthew 5:28). If you have done these things, then God sees you as a lying, thieving, blasphemous, adulterer-at-heart. What will you say on Judgment Day? Your conscience confirms that you are guilty. If you are found guilty of breaking God’s Laws, your punishment will be eternity in Hell. Does that concern you? It should. There is good news, though! God became man in the person of Jesus Christ, who came to this earth to suffer and take God’s wrath for your sin upon Himself. He suffered and died on a cross, taking your punishment. You broke God’s Law, and Jesus paid your fine! That’s God’s gift to you! You cannot earn a gift—you can only accept it with gratitude. In order to accept this gift, God commands you to repent (turn from your sins) and place your faith in Jesus Christ alone to save you. Please do that today; you may not have tomorrow. When you do, your eternal destination will be certain—Heaven. Nothing could be sweeter! For more information, please visit www.TheGoodPersonTest.net

hey Adrian,

have you tried any organic herbal supplements or bamboo shoots? I know this may sound crazy, but I've heard that some cancer patients were able to go into remission by taking certain foods, although their disease may be different.

My infant daughter has ALL and is currently receiving chemotherapy, it's been tough and I hope that there is something I can do. I will keep you in prayer.

Keep up the good work,
best wishes

John

Dear Adrian,
I heard about your blog on the news and felt a burden to reach out to you.
You are very couragous! We all need to get the word out there that we can do something to help those with cancer. My thoughts and prayers are with you.
I don't know where you are exactly in your life, but I just wanted to give you a verse that is so important to me... John 3:16. It says, "For God so loved the world that He gave his only begotten son. That whosoever believes in Him, will not perish, but have everlasting life." This is the hope that I have. I have no worries for tomorrow, because I know whatever happens in my life, I will one day be with Him.
This is my prayer for you, and I pray that you will, if you haven't already, accept Jesus as your Saviour. It's not too late.
God bless!

Hello Adrian,
I know it is extremely unlikely that you will even glance at my comment, as you have so much information screaming in at you via this blog, I'm sure, on a daily basis, but I just wanted to reach out and say hello. Just having heard your story first yesterday on the bbc website, I have been thinking of you constantly since. It seems in the last while, you have been through hell and back, have been through the very thing that many people - including myself - fear more than anything else: illness. And you have shined the whole way.

It may sound terse, but you are truly an inspiration to me. I will be holding you in my heart over the coming weeks and months, and wishing you all strength and hope. Know that I, like so many strangers, would jump on a plane (or train, or bicycle) in a moment, no matter the cost, to sit with you, tell you a joke, or buy you a beer or 6, if it would make you feel better, even for a moment.

Take care, Adrian, and know we are all praying for you.

Annabanana

Hello Adrian,

I happened upon you by accident, but I had to write and tell you that what you are doing is going to save lives. I can't think of a better thing for one human to do for another. I have tremendous admiration and respect for you. Thank you for showing us the goodness that we humans are capable of. You inspire us.

Tom

ADRIAN:
I CANT EVEN BEGIN TO KNOW HOW YOU FEEL BUT WHAT I CAN SAY IS THAT "THIS IS ALL WE GOT" JUST THIS 1 CHANCE AND YOU MY FRIEND HAVE ALL THE REASON IN THE WORLD TO BE HERE JUST LIKE US I HAVE JUST RECENTLY BEGUN TO READ YOUR BLOG AND I WANT TO BE ONE OF THOSE "YOU " REMEMBER DONT GIVE UP DONT GIVE IN JUST KEEP TRYING ~ ALL TYHE WORLD IS A STAGE AND WE ARE BUT THE PLAYERS SO " PLAY DONT STOP TIL YOURE GOOD " AND KNOW PEOPLE LOVE YOU AND ARE HERE TO HELP KEEP IN TOUCH AND IM HERE IF YOU NEED SOMEONE ALL MY PRAYERS & LOVE ~SHARTA

I hope that this comment finds you in good spirits. I just want you to know that even though I do not know you, I still value and cherish your life. Thank you for being so strong and being what I call true inspiration because no matter what, you are going to keep on keeping on. You are in my thoughts. Stay Strong.

Love to Live Life,
Mischelle Martyn

Hello Adrian,

I just saw a story about you on the news and must say that I was moved. As a healthcare provider, I have the honor of caring for people in your situation quite often. All of them touch my heart, but your story has moved me deeply. You are literally changing the face of the disease that you have been fighting. The awareness your life has brought will never fade. My thoughts and prayers are with you Adrian.

All my best,
Kellie

Dear Adrian,

Let me just start our by saying that I have always loved the name: Adrian. It's such a powerful name, but sweet sounding. :-)

I just saw your video on msn.com and I must be honest with you after I saw your words that you have been "EXCEPTIONALLY UNLucky" I said to myself- "My God, that is true. How could God allow this to happen to someone. Imagine knowing that your final day is soon to come." And I got extremely teary eyed. But then I honestly smiled and thought but you are lucky, just look at how beautiful and full your final days have become. I know this may sound stupid of me to say, but Adrian you are an inspiration, a strength, a hero, a sign of hope and love [etc] for other people. I know this is horrible to just imagine and yet you're living it, but God is using you as a message to all of us. I know it's unfair, but you are a messager and I applaud you for being such a great one! You are honestly and truly a remarkable person and for some reason your purpose in this world was to show all of us just that. You have battled something that is so much stronger than you and yet won the fight. Yes won the fight, because you are amazing and such a grand of a person with resistance to evil, integrity in living in a productive and successful manner, confidence, [etc].

Adrian, I truly command you for being such a force of strength and love as you are. And God has truly blessed you, you have the power which you are using to change the world.

xo much love and respect,
Carina
USA

Dear Adrian,

Let me just start our by saying that I have always loved the name: Adrian. It's such a powerful name, but sweet sounding. :-)

I just saw your video on msn.com and I must be honest with you after I saw your words that you have been "EXCEPTIONALLY UNLucky" I said to myself- "My God, that is true. How could God allow this to happen to someone. Imagine knowing that your final day is soon to come." And I got extremely teary eyed. But then I honestly smiled and thought but you are lucky, just look at how beautiful and full your final days have become. I know this may sound stupid of me to say, but Adrian you are an inspiration, a strength, a hero, a sign of hope and love [etc] for other people. I know this is horrible to just imagine and yet you're living it, but God is using you as a message to all of us. You are honestly and truly a remarkable person and for some reason your purpose in this world was to show all of us just that. You have battled something that is so much stronger than you and yet won the fight. Yes won the fight, because you are amazing and such a grand of a person with resistance to evil, integrity in living in a productive and successful manner, confidence, [etc].

Adrian, I truly command you for being such a force of strength and love as you are. And God has truly blessed you, you have the power which you are using to change the world.

xo much love and respect,
Carina
USA

Dear Adrian, My name is Echo. I read a news paper article in the Dallas Morning New paper Dallas,Texas, USA yesterday about a man who had cancer. He started taking Marine Phytoplankton. His cancerous tumor was inside of his intestines. He said everyday he mixed a teaspoon of Phytoplankton into a glass of water and drank it twice a day. He said that was the only change he had done in his diet, he didn't do anything different. And within three weeks the bleeding in his stools and the pain went away by 80 percent. His Dr.'s were amazed. Kelly Barrows says he believes Marine Phytoplankton saved his life. He said he strongly recommends anyone having cancer of any kind to try this.

Dear Adrian,

I found your blog while on MSN. You are exceptionally couragous! I was having a rough day and you have put it back in percpective. Thank you for sharing your story with us. You have touched us all and made us all aware of your situation and the situation of countless other.

I hope this finds you in good spirits. I will keep you and your loved ones in my prayers.

God Bless!

Nicole

Dear Adrian,
You are doing a great service to the humanity.
I wish I could help you in some way. Please see the site :
http://www.lifepositive.com/body/body-holistic/cancer-cure/new-cancer-drugs.asp
It talks about an Indian Ayurvedic (Indian medicine) doctor who treats for various forms of Leukemia. His name is "Vaidya Balendu Prakash". (Vaidya is the Sanskrit word for 'doctor'). I personally know many of the patients that he successfully. He treated my father 10 years back. For more details, please do a search in the internet.
Please do talk that Doctor, right away and check whether he can help you.
Please don't ignore my mail.
I am leaving my telephone number here... if you want to talk to me, please give me a call.
Thanks,
Madhu Shanmughan
Gateshead, Tyne&Wear
UK
Phone: 0 792 1712 184

Adrian, I stumbled upon your story via the BBC website and have been engrossed in your blog since then. I'm not sure I can say much more than the fantastic comments that you have already had but hope you can see that the message is getting out there so you are achieving your goal. You are one helluva fella and your strength, humour and honesty shine through. I immediately felt that I wanted to join the register but unfortunately I have one of the medical exclusions. However, I'm not going to forget about it all that easily and will instead commit to raise awareness. You have been to the big guy but I'll also contact my local MP and ask her to back the campaign too.
I hope you have some precious time with your family and friends but I also hope you are now at peace with yourself and when the time comes you will know you have made a difference. A big difference.
Take care, Jo x

Adrian,

I just saw your story on MSN. I'm very sorry for everything that you are going through. When I was 25 I was diagnosed with Hodgkin's Disease. During my treatments the staff at the hospital sat my wife and I down and told her right in front of me that there was a good chance that I wasn't going to make it through. I was screaming in my head, "What the F#$@!! I'm sitting right here!!" That was eight years ago. I've survived both the cancer, and a divorce. I was never supposed to have any more kids and I had two more, I wasn't ever supposed to be able to run or bike like I used to, and I'm running a half marathon on June 1st. NEVER GIVE UP!! You are an inspiration to so many. Stay strong, and know that no matter how much it hurts, and no matter how helpless you feel that there are people who love you.

Thank you for updating us all. I believe Adrian must be the most loved, inspirational man on the planet at the moment. I think the world is monumentally moved by his character and fight for such a good cause while going through such an ordeal. It's amazing to read about the effect his appeals are having and how many people he's touching the whole world wide. A true star.

JUST WANTED TO WRITE & TELL YOU THAT I AM THINKING & PRAYING FOR YOU. I WAS DIAGNOSED WITH HODGKINS LYMPHOMA IN MAY 2003 & HAD TO HAVE A STEM CELL TRANSPLANT IN FEBRUARY 2005 AFTER CHEMOTHERAPY FAILED TO KILL THE CANCER. I WAS ONE ON THE LUCKY ONES, THE DOCTOR'S WERE ABLE TO USE MY STEM CELLS TO DO THE TRANSPLANT. I DIDN'T HAVE TO SUFFER WITH THE PROBLEMS ASSOCIATED WITH A DONAR/GRAFT TRANSPLANT. I MET SEVERAL PEOPLE WHO HAD TO HAVE DONOR STEM CELLS FOR THEIR TRANSPLANT & SAW THE PROBLEMS ASSOCIATED WITH THEM. I AM VERY MUCH IN AGREEMENT WITH STEM CELL RESEARCH & CORD BLOOD RETENTION. I THINK THAT MORE RESEARCH NEEDS TO BE DONE ON THIS SUBJECT SO THAT MORE LIVES CAN BE SAVED. UNTIL SOMEONE IN THE GOVERNMENT IS FACED WITH THIS PROBLEM THEN I'M NOT SURE THEY UNDERSTAND HOW HELPLESS YOU FEEL WHEN YOU KNOW THAT MAYBE YOU COULD BE SAVED BY SOMEONE ELSE'S STEM CELLS OR THE RESEARCH FROM STEM CELLS. MORE PEOPLED NEED TO BE TESTED FOR BLOOD TYPE & PUT ON THE NATIONAL BONE MARROW REGISTRY. THE DONATION OF STEM CELLS & BONE MARROW IS MUCH EASIER & LESS PAINFUL THAN IT USE TO BE. I HAD TO TAKE GROWTH HORMONE SHOTS TO STIMULATE THE PRODUCTION OF NEW STEM CELLS. ONCE THE NEW STEM CELLS BEGAN TO GROW I WAS PLACED ON A MACHINE THAT CIRCULATED THE BLOOD OUT OF THE BODY INTO THE MACHINE, SEPARATING THE STEM CELLS FROM THE BLOOD & THEN THE BLOOD CIRCULATED BACK INTO MY BODY. THIS WAS A VERY PAINLESS PROCESS. I WISH I COULD HELP SOMEONE IN THIS WAY, BUT WITH THE CANCER I HAVE HAD & CHEMOTHERAPY I HAVE TAKEN I WOULD NOT BE ABLE TO DO THIS. ANOTHER THING MORE PEOPLE SHOULD DO IS BECOME ORGAN DONORS. THE HOSPITAL HOSPITALITY HOUSE WE STAYED IN WHILE THE STEM CELLS WERE BEING COLLECTED & WAITING FOR THE TRANSPLANT TO BEGIN THERE WERE SEVEAL PEOPLE THERE THAT NEEDED LIVER TRANSPLANTS. ONE MAN HAD BEEN THERE 18 MONTHS WAITING FOR A LIVER AND HIS TIME WAS RUNNING OUT. THIS IS A TERRIBLE THING TO SEE.

I WOULD LIKE TO WISH YOU THE BEST FOR WHATEVER TIME YOU HAVE LEFT. EVEN THOUGH MY CANCER IS IN REMISSION I STILL LIVE LIFE ONE DAY AT A TIME BECAUSE AS EVERYONE KNOWS GOD NEVER PROMISED US THE NEXT BREATH WE BREATHE, WE ARE ALL LIVING ON BORROWED TIME. GOD BLESS YOU.

Adrian,

Thank you for sharing your beautiful, crazy, scary story with the world. I have a friend who is also facing GvHD in a very serious way. She has also documented her beautiful and courageous battle. She constantly inspires me with her grace, candor, and fierce strength. You too have inspired me and wishing you good spirits, beautiful dreams, and all the physical and spiritual strength you need to keep fighting and smiling!
Check her out:
http://www.freewebs.com/jenniferwilley/index.htm
Jenn
USA

Thanks for the update.

Adrian is such an inspiration to the rest of us and is making such a difference by working so hard to make people aware of bone marrow donation.

Debsx

Adrian,

I am not sure if this is the right time or place for me to say and share so many thoughts with you, so I will keep it very brief. I came across your story just hours ago, but it strikes deep and is profoundly inspirational.

I was diagnosed with leukemia (acute, not chronic) about five years ago and was exceptionally lucky, divinely blessed, to be more precise, to go into remission early and stay there until now. I did lose three friends I had met in the hospital to other forms of cancer, and have another friend right now going through a bone marrow transplant for AML0.

The amazing accomplishments that you have recorded in a few months are those that are typically not made in the lifetimes of most people, including yours truly. Your story will be a catalyst to every single good deed that I may perform in the years that I have left, so from the deepest recesses in my heart, thank you.

I would like to join some of the earlier posters here to beseech you not to stop exploring every venue for healing, including those that are termed "alternate" or "new age". From direct experience I know that some of these helped me sail through my chemotherapy protocol with minimal fuss.

Having said this, I will respect and honor any decision that you take, and cherish my acquaintance with Baldy's Blog forever.

Be well, my friend.
With prayers and love,
Hari

PS. Apart from leukemia, we have a journalistic background in common. I live in Syracuse, New York at the moment, and in case you get to read this and would like to call: my number is 1-315-2143150.

Adrian,

I saw the video of your story on MSN but couldn't watch it at work. However, I found your blog and have spent most of my work day reading the entire thing. I know there is nothing I can say that will change anything, so all I can say is Thank you. You are an extremely courageous person throughout everything you have been through and I thank you for starting this blog and letting strangers into your life in such a hard time.

You are a huge inspiration and you will forever be in my heart.

Erynn
USA

Hi Adrian, what can I say ? I have read your articles and seen the news, you are a fantastic role model to us all. I was Dx with AML M0 in Oct 2006 6 months of hellish chemo.I never want to go through that again,No more Hicky lines, fevers, sores so bad in your mouth that you cannot even drink. All that you have said is so true. No Bone Marrow match so living on the edge every day. I am still just about in remmision, but for how long God Knows. I just wish people did understand that being a Marrow donor saves lives and it is painless. just like giving blood. I was a bone marrow donor for the Anthony Nolan Appeal, never called , but fate has funny ways , I now need a donor and the only name on the list that matches is my own .
I live in Midlands Uk and cannot fault the treatment, they just need that extra help with more Donors, I , like you firmly believe we should be pushing for this , not for my life but for future people,
Thanks again and I wish you the best, I just know how you feel as My time is limited also....dreaded Fbc next week >???? is it back ?? oh god I pray it is not.

Andy age 50 .

Dear Adrian,

I am already on the bone marrow register but encourage friends and family too. Good luck with the campaign and best wishes.

Also, have a look at this week's National Enquirer (May 26, 2008) pages 44 and 45, especially the part about ginger.

Again the best of luck to you and what a wonderful guy you are.

Hi Adrian, I happened to stumble onto your blog and it hits very close to home. My husband has been battleing cll since 2001. He had a related doner (his brother) and was doing well until a family member got into his truck with him and didn't tell him he had a cold. He spent 8 days in the hospital and when he got home he got bit by two ticks. The doctors tested him and found nothing wrong. When the antibiotics wore off from the pneumonia, he had a seizure driving down the highway. He managed to pull over and put the truck in park. Lucky for us, we weren't far from the hospital and got him there asap. He was flight for life to Denver where he spent 10 days and they still couldn't figure out what happened. They sent him home and when the drugs wore off, his chest swelled up where the ticks had bit him. He was in a coma for the first 3 days in Denver. It affected his graft and it's been a roller coaster ride. He's had 4 mini transplants in the last year and he is finally doing better. He almost gave up in December when he got a herpes infection from the chemo he was getting. It killed all of the fresh cells he got last Aug. So in Feb. he had more cells and a few more chemo treatemts. His counts are looking great and the lumps are going down without treatment. So hopefully, the cells are working. He has gvhd in his stomach and liver. He is 54 yrs old and the most amazing man I've ever known. He's never felt sorry for himself and I can't imagine my life without him. I am praying that things will turn around for you and you will have a chance to live for a long time. I like to think that this was given to Bill so that the Drs. can learn from him and help others. I would hate to think he went through this for nothing. Hang in there, keep your spirits up, and never loose your sense of humor. I will will keep you in my prayers. You are a very special young man and deserve every chance to beat this awful illness. Sincerly, Toni

Hello!

Just discovered your site and wow you are such an inspiration to people out there! I cannot even begin to understand what must be going through your mind at the moment.

I have added you to my brave fighters site. A site I set up to make it easier for others to find people walking similar journeys and to create awareness and to enable people to continue inspiring others.

I would love to feature you on the front page - if you are happy, please include a jpg image and a relevant paragraph. This will link back to your site.

You are in my prayers and thoughts!!!

Lea White (mum of Bianca)
http://whitesinnz.blogspot.com
http://bravefighters.synthasite.com

Just wanted to say that I think you achieved your goal of being a national journalist - you've even reached being an international journalist. Great job and thanks so much for sharing!

Adrian,
I just wanted you to know that I saw your story on the new this AM here in Phoenix, AZ USA. I have read all of your blogs today and I just want you to know how touched I am. I have a 12 year old stepdaughter that was DX with ALL almost a year ago last June. Having read what you have been going through has made me understand a little more about what she might be feeling that she does not share with us. I just want to thank you for that.
My prayers are with you and your family during this very difficult time. I wish you all the peace in the world.
Also her father and I both registered for the marrow donor list last October.
H

Hi Adrian
Congratulations on your amazing success at spreading the word. You are fantastic!
Glad to see that Notts county are supporting your efforts. Have already written to Forest to see if they are going to do the same! After all you have supported them through their rough days!
Enjoy your time that is precious and I hope that you have the strength to have some fun.

Do you think that a mobile Unit for donors would help? I am sure that there are enough people who would be willing to raise the money for it.
Lots of Love to Carrie and family
Jamie xxxxxxxxxx

Dear Adrian,

I just wanted to start off saying im very sorry this had to happend to a person such as your self, live is very cruel some times, i just came back from donating Marrow this realy touched me your story is one i will never forget it, neither you if it comes to the grim truth, in saying so id hope that u would say on earth longer you have tought the world that its not about just giving up stayin down and stop living life its about fighting it and you did this and in the makeing you one person starting to change the world opening the eye's of the people to the light

i just have one more thing to say its a sayin i use alot here goes

Tis Better to die on your feet, Then live on your knees

i hope this make you think about trying to fight for your life more then just giving up dont forget giving up is for the weak and with what u have done so far, i have to say u r one of the strongest person i have ever seen

If you want to talk to me at all when you r feeling down add me to your MSN and ill talk to u its

DMANDude123@live.com

and with this i leave u for now, please keep posting more info as it comes to you till the very end

your EFriend Daniel E. Castro

There is an international donor registry - The "Caitlyn Raymond International Registry" -bone marrow and cord blood donor registry. http://www.crir.org/registerdonor.php or just www.crir.org.

The Anthony Nolan Registry is one of the many banks that this international registry uses.. So no matter where in the world you are - register and it will benefit people everywhere!

From this site you can reach all affiliated donor banks around the world, you can get the contact information from there and the name of the organizations.

Adrian has started a wonderful wave of awareness - I hope to help in any way to keep it going.

love and light
Annie
Steven's mom
http://livingwithcml.blogspot.com

I came upon your site via MSN Messenger while talking to a friend. I had a grandfather that had leukemia since 2001, and needless to say he passed around 2006, but it was because of his heart (luckily)? Anybody that has fought and survived even ONCE through leukemia, or any other illness for that matter, is very inspirational to me. I read some of your blogs, and it was saddening to see that the end isn't necessarily the happiest. I pray for you and your family, and I wish you the best in all you do in your time. God bless you, and all the things you have done to open others' eyes.

Hi Adrian,

Your blog was highlighted on msn.com this morning and I have spent the better part of the evening catching up on all your archives. Thanks for sharing your journey.

I think you are a very brave and inspiring person. And I hope your campaign to raise awareness about the importance of stem cell donation is a success.

You will be in my thoughts and prayers.

Heidi
USA

Adrian, your awareness campaign has just rocketed and is just gaining momentum every second.....be proud,very proud ...and bloody well done mate!

Have emailed all I know so hopefully the list grows!

Love Nickix

Hi, Adrian-

I came across your story and have spent the past several hours learning more about becoming a bone marrow donor. I'll discuss it with my husband, and if he's ok with it, I'll begin the registration process -- all thanks to you.

Blessings,
Rosemary in Kansas

Dear Adrian

I just read about you on the bbc newssite. I immediatley called the red cross in my city and asked to become a bonemarrow donator. They will send me the form and if all goes well I will be in the register. Thanks to your great work. Keep going strong. You are an angel!

Cheers

Joost Vandeputte

AD

If you’d asked me ten years ago to choose someone from Frederick Gent School’s “Class of ‘97” who’d one day end up meeting the Prime Minister, it would definitely have been you. I’m so sorry that it was in such tragic circumstances.

I have to say that I am astonished by your drive, generosity and thought for others. Had I been given a few weeks or months to live I’d be the most selfish, angry, bitter person in the world, hell-bent on self-destruction. For that reason I have an indescribable amount of respect for you.

For you to still be so successfully raising awareness on a GLOBAL scale is beyond belief. I truly mean it when I say I have been and will continue to be inspired by your words and actions.

Here’s to football at break-time, watching 50p ‘blue movies’ at Ben’s, quoting Alan Partridge on the ‘Littlebus’, getting you thrown out of that Science lesson, shot putting on sports day (“clean palm, dirty neck”), stickmen pictures of a certain teachers, blond curtains, your terrible drawings in Art (sorry mate but you were rubbish), Danny Holland’s late-tackle on Mr Ferguson, pitch and toss, Clamp Lamp Amp MP p and so on.

“Don’t mess with 7S”

Goodall

I just wanted to say that I saw your interview on the BBC and was inspired by your courage. I have just signed up and hope to be registered as a bone marrow donor.

Keep strong.

My name is Robert Lewis, from Denver CO.

I work with a top naturopathic doctor here in the U.S. Together we have helped many people to get over some very significant illnesses, including high blood pressure, high cholesterol, diabetes, and leukemia.

One such person was a young man named Jamon, in Virginia. When we started working with him, he was 23 years old, and dying of leukemia. I had known his parents before he was even born.

Jamon had been given 3 months to live. When I proposed to work with him, his parents were extremely skeptical, which is understandable. They had been taking the traditional medical route with his leukemia, but because they are Jehovah's Witnesses, would not take blood transfusions or marrow transplants. Many of their friends tried to suggest different supplements and treatments, and none of them ever worked. So they were tired of spending money and getting their hopes up, just to see no positive outcomes.

I begged them to let me help, because I had been friends with Jamon since he was born, and I cared about him as a family friend. This was deeper than just being a client. I didn't want him to die either.

After a couple of hours of explanation on why it would work, they reluctantly agreed to get some of the product I suggested, as well as to put Jamon on a very strict dietary regimen, with his permission, of course.

The first week, after his doctor's appointment, they called me scared, because his blood count had dropped to about 2.6, after starting the regimen. They had lots of doubt and didn't know if they should continue with what we were doing. I reassured them that we were doing the right thing, and that he should continue, explaining that Jamon's body was experiencing a healing crisis, but that this was completely normal. Very reluctantly, they agreed to continue. Now that I think about it, I am truly impressed with the bravery exhibited by them and by Jamon, who actually had already started to feel better, even with the blood count down.

The second week, they called again, but this time they were ecstatic, because the blood count had gone back up to 3. Jamon's spirits were very high, but his parents were now starting to believe that the miracle was possible. At least we were back where we started.

The third week, his blood count jumped another half point, to 3.6. Amazingly, his medical team were not impressed, reiterating the fact that he would soon die without a blood transfusion or marrow transplant. At this point, Jamon and his parents made a dramatic decision to secretly cut out his medications, because at this point they hadn't worked. They were expensive, and hadn't cured him. What was the point of taking them, they reasoned.

In the next few weeks, his blood count steadily rose, without letup, the doctors still voicing their skepticism. One doctor told him that he would not be impressed unless his blood count got over 6. All the meanwhile, his doctors were under the impression that he was taking his meds, and kept wondering how he wasn't running out and wasn't in need of refills.

Finally his blood count got to about 9, and Jamon was feeling strong enough to travel to New York to visit some of his friends. When he got back, his blood count had dropped. No one could figure out why. When I questioned him thoroughly, I found that, while although taking his supplements, he had gotten off of his strict dietary routine. This was because so many were inviting him to dinner, and he was eating pretty much what he wanted. I basically scolded him, and told him never to allow this to happen again. He agreed and went back to his routine. His blood count started climbing again.

His mother called me when his doctor told him that his blood count had reached 11. She was so effusively grateful. She thanked me for giving her her son back. This was in September of 2006. We had started working with him in January of 2006. He was supposed to be dead by April 2006. Jamon had beaten leukemia.

A STRANGE TWIST OF FATE

In December of 2006, I was sitting at the Kingdom Hall of Jehovah's Witnesses in Denver, CO, when the announcement was made that Jamon Alexander had passed away. I remember it like it was yesterday. (The Alexanders had moved to Virginia from Denver some years previously, and so everyone knew them.) Obviously I was shocked beyond belief. I felt that I had failed them. I assumed that it must be leukemia-related, but I wasn't able to contact them because they had secluded themselves. The family in Denver assumed that it was the leukemia that had come back and taken Jamon also.

It was finally about two months later that his mother came to visit Denver. I was scared when I saw her, because she had never spoken to me after his death. I assumed that she was going to punch me because I hadn't saved her son. She gave me the biggest hug, and apologized for not calling. I asked her what had happened. She told me that the doctors said that Jamon didn't die of leukemia. He didn't have leukemia when he died. The two issues were completely unrelated. He died because somehow, his intestinal tract had gotten physically twisted in his body, and had created a logjam of feces that started to slowly poison him. This occurred in November 2006, and Jamon had complained of stomach cramps. They took him to the doctor, and the doctor just gave him some pain meds and that was it. They never asked him about the last time he had had a bowel movement.

The autopsy showed that he hadn't had a bowel movement in about 2 to 3 weeks before his death.

His mother thanked me for the saving effort. She wishes that Jamon would have told somebody about his inability to go to the bathroom. A very simple surgery could have physically solved the problem. He would still be alive today, in perfect health.

Liam, please contact me. A story about Adrian's death would be poignant and heroic, considering what he's trying to accomplish in his final days. However, a story about his survival would even be better. HE DOESN'T HAVE TO DIE. HE JUST NEEDS TO BE EDUCATED ON WHAT IS REALLY HAPPENING WITH HIS BODY, AND HOW THE BODY CAN CURE ITSELF IF GIVEN THE PROPER TOOLS, AND MAKE A DECISION TO HANDLE IT.

He has already made a decision to discontinue his medical treatments. This is not a medical treatment. This is the natural route. I know we can help him. Please contact me.

Robert Lewis
(281)224-8446
Robert@RaynMaykr.com
www.RaynMaykr.com

Adrian

Well done on your fantastic campaigning you are doing more than most of us will ever achieve in our lifetimes.

Your story has touched the hearts of so many people (and been very good for tissue sales too!). The selfless action you're taking will make a real difference to so many people in the future. I think the whole of Huddersfield is or should be immensly proud of you.

Thinking of you, take care.

Maxine x

Adrian,

Just discovered your blog today and wanted to say how wonderful it is, entertaining and emotional both at once, a great achievement.

Raising awareness is a great thing and you've certainly done that, well done mate.

I'm an aspiring journo myself and can see you really love your job and are supported by colleagues as well as friends and family.

A very brave, determined and admirable guy.

Here's one more person thinking of you and wishing you all the best.

Jonny

God Bless you. In our thoughts and prayers.

Adrian,

I wanted to say how much I admire your courage. Unfortunately I am too old to go on the register but I wish you all the luck in the world with your campaign. I have 2 sons around the same age as you and my thoughts are with you and your family and friends as I cannot imagine what you and they must be feeling at this time. You are a very brave young man God bless. Lesley Px