In the rapping words of Craig David: "RE-EE-Lapse".
After everything we have been through together I am so sorry to break the following news to you all.
The leukaemia has reappeared in the bone marrow and I have only got weeks or months to live.
In the end I decided to have no further intensive treatment.
I had made up my mind a long time ago that if I was given this news I would stay healthy for as long as possible and enjoy spending time with my friends and family.
This might sound strange to some of you but after talking to my medical team today I am still confident I have made the right choice - the fact that it was my choice was also important.
I could have contracted an infection and died in circumstances beyond my control.
The facts of the matter were this strange, chronic version of the disease, has already resisted the following;
1. Two cycles of chemotherapy.
2. High dose chemotherapy and radiotherapy before the bone marrow transplant.
3. A new immune system from my donated cells which was supposed to hunt it out.
4. The drug Glivec which has transformed the treatment of classic chronic myeloid leukaemia.
My consultant said the chance of more chemotherapy leading to a long-term cure was perhaps around 20%.
If there were no side effects, and I could have had it over a couple of hours then gone home, I might have considered it.
As anyone who has undergone chemo for leukaemia will tell you it's horrible.
But more importantly, as it wipes out the bone marrow cells which create your immune system, you can't leave the ward until it has regenerated sufficiently. This can take up to three weeks.
Put simply, I've had enough.
I have thought if maybe I was older, Poppy and I had married and we had children, then maybe my thought process would be different.
As it stands my quality of life has been greatly reduced by my Graft versus Host Disease (GvHD) and I have never quite recovered from the bone marrow transplant.
My mind still wants to do all the things any 26-year-old can do - but I can't.
I am thinking a lot at the moment about my wonderful parents, sister Carrie and the rest of my family. Their support and loyalty throughout everything warranted a thoroughly better outcome.
They don't deserve any of this.
As for me I'm feeling OK. I've been preparing for this eventuality now for the best part of 18 months.
I've led a decent life, seen a lot of the world and been in a job I've enjoyed.
As for dying - how can anyone be scared of something that is going to happen to every single one of us?
The crux of the matter is that in the next couple of weeks I will become progressively ill as my bone marrow cells get increasingly out of control.
The most likely cause of death will be a nasty infection.
One of the saddest aspects for me is that I hoped Baldy's Blog would shine out as a beacon in the too often tragic world of blood cancers.
I honestly thought I had conquered the leukaemia, that I could manage the GvHD, get married and have children.
I really wanted that to be the end of this story and show that people can overcome this disease.
Well the message I want readers to take is that people regularly do. There are so many success stories for every person this doesn't work out for.
I have been EXCEPTIONALLY unlucky.
Anyway, there are a few more things I want to take care of so you've not heard the last of me yet.
Thank you again for every single word you have all posted. I've had some terrible times over the last year and a half and you have no idea just what comfort they have provided.
Adrian Sudbury has been a reporter for both the Huddersfield Express and Chronicle Series and the Huddersfield Examiner. In November 2006 the 25-year-old was promoted to digital journalist, effectively editing the new-look Examiner website.
Just two days into his new role he became seriously ill and called in sick. A week later he drove himself to A&E and was eventually diagnosed with leukaemia.
It was then identified that he actually has two distinct types of the disease running at the same time. According to the medical literature he is the only person in the world to have this condition. As such, it has not been possible to offer Adrian a prognosis.
Here he shares his experiences of the disease and his treatment.
Comments (454)
I think you're one of the bravest people I've ever heard of. God Bless you. You will be in my thoughts and prayers always.
Posted by Jim | May 14, 2008 8:04 PM
Posted on May 14, 2008 20:04
So very very sorry to hear the latest news.
You are a remarkably strong individual and I so wish that there was some treatment to help you.
Thinking of you and your family and I don't know what else to say.
Susan
Posted by Susan Leigh | May 14, 2008 8:17 PM
Posted on May 14, 2008 20:17
Oh Adrian
My heart hurts. my heart hurts
love and light
Annie
Posted by Annie | May 14, 2008 8:22 PM
Posted on May 14, 2008 20:22
Adrian,
I really don't have words to describe how simultaneously heartbroken I am for you and how joyous I am to have gotten the opportunity to know you in some small way.
Thank you for laying bare your struggles and emotions. Please know there are people all over the world hoping and praying that your next days and months are peaceful and beautiful.
My best to you, Devon
USA
Posted by Devon J. Carlson | May 14, 2008 8:44 PM
Posted on May 14, 2008 20:44
What a very difficult post to comment on, without sounding glib. All I can say is that I do hope that your "feeling well" times last longer than your "not feeling so well" times, if that is at all possible.
Posted by Jessica | May 14, 2008 8:47 PM
Posted on May 14, 2008 20:47
My dear Adrian
Nothing I say will be any use - but we have been constantly thinking of you and your family through all of this. It is an absolutely rotten time you`ve had - you have been incredibly brave both with making this ultimate decision and with telling the world about it.
Live and enjoy your time with your family & friends.
Take Care, my friend.
Liz
Posted by Liz Boffey | May 14, 2008 9:23 PM
Posted on May 14, 2008 21:23
Dear Adrian
I can only say how utterly gutted I am, I must say that reading your BLOGS has been a very grounding experience we all get so wrapped up in the triviality of life and we forget just how fragile it actually is. I would just like to send support to you and your family. I can only imagine how you feel we all know we are going to die but to face it full on is a very scary prospect for even the most resolute of us and I think the maxime of living life a day at a time, at this time is not a frivolous remark but actaully very accurate. May I wish you peaceful and loving thoughts. And keep laughing and smiling, optimism is the only option we have. Dear Adrian you are unfortunately only human and we are ultimately frail creatures but you are exceptional non the less.
Posted by jaqui phillips | May 14, 2008 9:36 PM
Posted on May 14, 2008 21:36
Hi, Me again.
Forgot to say for someone I have never met you have had a profound affect on me, your honesty and frailty is quite moving and I can only think that you have been of great support to other people going through similiar life shattering experiences. It is totally unfair that someone so obviously vibrant should have a full stop on life presented to him and you are totally right to feel hard done by and pissed off at the hand you have been dealt. Keep your family close and let them show you just how much they love you.
Jaqui x
Posted by jaqui phillips | May 14, 2008 10:11 PM
Posted on May 14, 2008 22:11
Dear Adrian
I have never met you obviously but apart from my own 2 sons and daughter, you are the most wonderful young man I have ever had the fortune to blog to. Your personality shines through your writing which you deliver with a maturity beyond your years. The way you have described the medical and emotional events of the past 18 months has been with such clarity and humour, I think that you deserve every writing prize on offer. Many people have to face adversity in their lives but few do it with such dignity. Your parents, grandparents, sister and friends must be exceptionally proud and full of love for you.
I want to thank you because although I am a relatively new addition to your blog, I have found it a comfort to be able to put in words my own fears for my son's well being whilst being continuously strong in front of him and his siblings. It has been so easy to relate what you are going through to date and it has left me feeling less alone with it all.
I still cannot get my head around the reason that such lovely, healthy, bright young men should be prone to such a terrible illness.
I hope that you manage to achieve all the things that you want to do in the time ahead, including lots of love and laughter.
With love and hugs from one of many strangers whose lives you have touched,
Sally x
Posted by Sally | May 14, 2008 10:53 PM
Posted on May 14, 2008 22:53
Hi Adrian,
I hoped I wouldn't ever have to read the words you just posted.
I'm so sorry, you don't deserve this outcome. The fact that you made the decision to halt further treatment is important, and I understand it.
I hope you keep posting your thoughts and feelings for as long as possible, your blog has been and continues to be inspirational, humourous and refreshingly honest.
It's so hard to find the right words at the moment. I just wish I could give you a hug.
Catherine x
Posted by Catherine | May 14, 2008 10:54 PM
Posted on May 14, 2008 22:54
Adrian, I just want to say that I saw your feature on Calender tonight. I think you're one hell of a bloke. I am O resus negative if I can be any good to you I would walk barefoot on broken glass to donate for you. I have been through a lot of personal stuff this last few years but feel ashamed of how I have dealt with it when I think of your strength.I wish you the best of luck in your fight and ask you to remember that you are inspirational....to a lot of people out here. Be strong mate and good luck .....Mark
Posted by Mark | May 14, 2008 10:57 PM
Posted on May 14, 2008 22:57
I tried to wtite something and have deleted it and started again at least ten times. I'm sure many people are in the same situation, it is just too much to take in and make sense of.
Your strength and courage still amaze me, and I just hope I can hold it together to be the friend you deserve. Lets get some fun things planned.. Campervan is ready for it's maiden voyage.. roadtrip!
All the Hunter family send their love. xxx
Posted by Ben Hunter | May 14, 2008 10:58 PM
Posted on May 14, 2008 22:58
I am one of the strangers whose life you have touched. I am new to reading your blog (saw it first in the Daily Mail) and I have to say how very very sorry I am to hear this news. You have been so strong and brave throughout all of this. I really wish there was some treatment that could help you at this time. Words fail me..... I just wanted to let you know that I am thinking of you and your family.
Carole
Posted by Carole Bradford | May 14, 2008 11:09 PM
Posted on May 14, 2008 23:09
Hello Adrian,
Sorry to hear the latest news but thanks for having the courage to share your thoughts. You have every right to make the choices you are making and I, like many others, can fully understand how you have arrived at this point. All the very best for whatever the future holds and be assured that I shall be wishing you peace of mind and sincerely hope you can enjoy the rest of your life.Baldy's Blog has already been a shining beacon so believe me you have already helped many people.Best wishes Adrian and regards to your loving, caring family. Diane.
Posted by Diane Rowbottom | May 14, 2008 11:19 PM
Posted on May 14, 2008 23:19
AD,
Like many of your friends and family I am still trying to come to terms with this latest news. I guess I wanted to let you know I was thinking about you and this way I get to re-type this message again and again until I figure out what to say (and believe me I have).
I’ve always admired your strength and determination throughout this journey. Despite being dealt such a bad hand you’ve managed to use your amazing talent to help dispel some of the myths about your disease. Like many others I’ve found myself sitting at the computer laughing at one chapter before crying at another. I think you are a truly remarkable individual and a role model to so many people. I know from reading the many comments you get that you have given hope to so many people who have found themselves in a similar position.
For them reading this blog who don’t know AD personally, I can assure you that you are the unlucky ones. It would seem that it has being decided that you will have to live the rest of your life without meeting one of life’s true hero’s. For them that know AD then you know exactly what I’m talking about.
Well, I’m sure this is not worded as well as the blog itself but as I fight back the tears I have one thing left to ask you AD. When are we going ski diving?
Gav x
Posted by Gavin Dick | May 14, 2008 11:25 PM
Posted on May 14, 2008 23:25
I have been reading your blog, since I heard of you in the Daily Mail. I am so sorry to hear of your devastating news, and can't begin to imagine how you and your family must be feeling. Your positive attitude and encouragement to other cancer sufferers is amazing. As a christian I have been praying for you, in the knowledge that prayer and faith has worked for others. Please check out the story of Mary Self from Rhiwbina church in Cardiff, I believe she is still on BT internet for her web address. As a fellow cancer sufferer, although not to the same degree, I want to thank you for your courage and your honesty. My thoughts and prayers are with you and your family at this time.
Posted by Andrea Lewis | May 14, 2008 11:39 PM
Posted on May 14, 2008 23:39
Adrian
I thought I had issues and problems in my life! You really have made me take stock and realise what is important and what is not. Best wishes to yourself, your friends and family. You are an inspiration.
Posted by Nick Boyes | May 14, 2008 11:48 PM
Posted on May 14, 2008 23:48
hi Adrian,
You obviously dont know me(but it could be arranged,haha)
Me and my mum have been following your blog since the beginning and tonight after finding out your latest news are real pissed off to say the least!
my mum was diagnosed with CML in may 2000, she had a BMT in 2001 and she can relate alot to the infections and set backs that you have also encounted on the road to normality and is still working on it(but she was abit of a freak before she got it...it happens to the best of us)!!!!!
The only advice we can offer not that we're professionals or owt, is u can't keep a good man down!
We all have challenges in life,my mums and yours being the same challenge, ''fight the fu**er!!! ha!
They say your chances would be 20% if you continue treatment, then as my grandad has always taught us ''grasp the nettle'' (im sure u dont need that explaining but take what you can when u can..go for it my son,ha!
look at it like this; you have ten balls( not you personally!) 8 are black and 2 are red...how do u know if you dont take the chance that you could grab a red un!
another 1 of my grandad's sayings,bless him, is ALWAYS have a positive mental attitude! and reading your blog, its carried you this far, why not further?
dont give up the fight! you have got the personality, the brains and the looks(apart from the flapjack one, ohh, id like to thankyou too, i can never eat it again!) the family and friends behind you!!!
hope to read in the future of your further treatment and ''GREAT SUCCESS''!
with our very best wishes,
Lauren and my mum Kerry!
xx
Posted by lauren | May 14, 2008 11:49 PM
Posted on May 14, 2008 23:49
I'm sorry mate. That's all I can really say.
Sorry. And I hope you find peace in the coming months.
My thought's are with you.
R
Posted by Richard | May 15, 2008 12:12 AM
Posted on May 15, 2008 00:12
Your blog did reach it's goal for being a shining hope for others. Living whatever time we have is the point of life. You have shown us that.
I'm so sorry about your news. I wish you peace and as many hours of happiness as possible.
Posted by Baldylocks | May 15, 2008 1:25 AM
Posted on May 15, 2008 01:25
Hi Adrian, I am gutted to read your last few posts. I too, had been hoping for the outcome you yourself had hoped for.
I completely understand your choice re no more chemo. To feel utterly crap from the chemo would be such a waste. Now is the time for living. For enjoying. For big belly laughs. For spending time with people you love and finding something brilliant in each day.
Don't know if you've ever heard of Ian Gawler from the Gawler Foundation here in Australia? He was diagnosed with advanced bone cancer thirty odd years ago and given weeks to live. Through a combination of juices, organic vege diet, meditation he is alive today. I went to his foundation only a couple of months after I was diagnosed and did the ten day live in course. For me, it was a turning point and one where I started to take responsibility for my own health decisions and not just relying on the drs to advise what I needed to do.
Remember, right here and now you're alive. Make the most of it and don't give up until all options are exhausted. You've a fine, strong spirit and one that has drawn so many people to you. Take care and big hug, Steph
Posted by Stephanie Parry | May 15, 2008 3:05 AM
Posted on May 15, 2008 03:05
Adrian- I have been following you for more than a year, and throughout a dark period in my life you were and are one of the most amazing and inspirational people imaginable. It is so rare for one person to touch so many in a real, tangible way like you have. I imagine you would have preferred to live a "normal", anonymous existence rather than deal with the crap that came your way. But the fact is you were dealt this hand and you have played it with honour, good humour and courage. You are a brother, son, husband, father and friend to many throughout the world. Thank you for reaching out and helping so many people, especially at your darkest times. I wish you sunshine and love Adrian.
Amanda x
Posted by Amanda OZ | May 15, 2008 3:36 AM
Posted on May 15, 2008 03:36
Hi Adrian,
All I can think of to say is a huge THANKS to you for your honesty and courage in sharing your story with us. Information about the devastating impact of blood cancers on peoples' lives, especially young lives like yours has reached a new wide audience thanks to your blog.
Looking forward to reading your future instalments.
Adrian I am lost for words...
Sending love to you and your family.
Clare
Posted by clare | May 15, 2008 3:37 AM
Posted on May 15, 2008 03:37
I have been reading your blog for a long time but never commented before. And at this moment words fail me as to what to say. I will simply say thank you for sharing your experiences, both good and bad, with a style filled with wisdom, humor and grace. You will be in my thoughts.
Posted by Mark Spencer | May 15, 2008 5:12 AM
Posted on May 15, 2008 05:12
Hey adrian,
my name's beth and i live in dubai, in the united arab emirates. Sara Wright, my english teacher knows your dad. She told us today, we just want you to know that we are so proud of you. Your a kind, caring man and i look up to you. You wouldn't believe how many people cried today, you make me feel so selfish to know how selfless you are. Good luck- i hope all goes well for you. We are here for you.
xxxxxxxxxxxxxxxxxxxxxxxxx
Posted by beth | May 15, 2008 6:37 AM
Posted on May 15, 2008 06:37
Thank youu for this im so proud of you i think your so brave and selfless, your a ture hero to me and alot of people i no, i really dont no how or what to say to you but thank you,
i really relized alot reading this from you
i feel like i will change and become alot alot less selfish to people around me im going to tel my famioly that i lovee themm now
Thankkyouu
hayley xxx
Posted by Hayley | May 15, 2008 6:44 AM
Posted on May 15, 2008 06:44
There is nothing that can be said, but i will steal the lines of someone else's poem to say what i feel.
'My Candle burns at both ends, it will not last the night.
But ah my foes and oh my friends it gives a lovely light'
Have fun and enjoy every last minute. xxx
Posted by George | May 15, 2008 8:41 AM
Posted on May 15, 2008 08:41
Dear Adrian, you are an inspiration to us all,the way you have written about yourself and your battle with this terrible disease has shown your strength, courage and brilliant sense of humour, you have touched us all. Wishing you time to have some fun and be with your family and friends.
Nickix
Posted by Nicki | May 15, 2008 8:53 AM
Posted on May 15, 2008 08:53
Never think for a moment that your blog is not a "shining beacon" because the outcome is not a victory over cancer. Your blog is a trumpeting of your life, ability to fight and a method of enlightening communication hundreds are touched by and will continue to be so. It's ability to be a beacon was never dependent on a particular outcome..it has always been so.
i shared your situation/blog with my Year 10 class today, you will be hearing from them. Their response? Two fold ..complete respect for you...how selfish they are.
They are going home today (various parts of Dubai) to make sure their family knows how much they love them (their words and ideas not mine) They have vowed to be nicer to each other and to recognise what is actually important in life.
You see the effect you are having.. thousands of miles away??? That's your beacon!!!!Shine on!
Sara.
Posted by sara | May 15, 2008 8:53 AM
Posted on May 15, 2008 08:53
What a wonderfully brave man your are. You have been EXCEPTIONALLY unlucky! However I do think that although you wanted this piece to be the happy ending we had all routed for you are going to be one of these men who will never know what they achieved by writing this blog. You have made your choice and this was right for you so you have made the right choice. You only have to read the blogs to know that you will never be unsupported in the decisions you make. Your courage and inspiration will go on for anyone who has had the privilege of getting to know you or who like me has read your blogs. I am not sure how you manage it but your dignity is something to be held up on a plinth. Best of luck I know that sounds stupid and enjoy whatever is left to the best of your ability. You will have placed a light in most people’s life that will never be extinguished.
Henny
Posted by Henny | May 15, 2008 8:53 AM
Posted on May 15, 2008 08:53
Adrian - really sad to read this, reading your Blog has been a very humbling expereince, and one that has had an impact on my own outlook of CML. There is nothing a virtual stranger like myself can say in these circumstances, except if you need anythign just let me know.
Rob at http://cmlblog.spaces.live.com
Posted by rob | May 15, 2008 9:29 AM
Posted on May 15, 2008 09:29
I hoped I'd never read a blog post like the one above as much as you hoped you'd never write it. I can't explain how sorry I am to hear it.
Big hugs Adrian, I'm sure you made the right decision about treatment. Enjoy the time with friends & family and keep making everyone smile, like you always do :-)
Cath xx
Posted by Cath | May 15, 2008 9:42 AM
Posted on May 15, 2008 09:42
Hi Adrian
Can I just say thanks for sharing your highs and lows with us. I've often thought of you when I have been fussing over some minor problem in life and remembered that despite, your situation, you have still had the power and skill with words to make me and many more laugh out loud. You're a good journalist and a good bloke. Rob.
Posted by Rob Irvine | May 15, 2008 10:20 AM
Posted on May 15, 2008 10:20
Dear Adrian
I was so nervous when I logged onto your blog today - I was hoping for good news.
How can life be so cruel to really good people and seem to be kind for really bad people?
All I can think of (and I am not a religous person at all) is that some people are angels walking on earth to teach others how to be. When their job is done they go back to where they came.
You are an angel Adrian and you have certainly done your job here on earth by showing so many of us how to have true courage, hope and love. You truly are inspirational.
My thoughts and love are sent to you and your family.
I am also hoping for a miracle to happen.
Kerry XXX
Posted by Kerry | May 15, 2008 10:22 AM
Posted on May 15, 2008 10:22
adrian,
i dont know what to say really, i'm gutted totally. i was so sure you were going to beat this.
make the most of your time, do something crazy!! i dont know run naked thru town if you're up for it! thats what i would do!
speaking from personal experience,knowing things are coming to end can help family and friends. you get to say the things you want to, to those you love.
you will be in my thoughts,
i hope we will still hear from you
best wishes
Jo xx
Posted by Jo Morris | May 15, 2008 10:50 AM
Posted on May 15, 2008 10:50
I first read about you in the Daily Mail and have been reading your blog ever since. Thank you so much for sharing your experiences with us, and it just makes you realise how much we take our health for granted. I will be praying so hard for you, i just think you are so amazing. Vicky
Posted by Vicky | May 15, 2008 12:16 PM
Posted on May 15, 2008 12:16
Adrian
Today when i got up i thought to myself i will need to log on and see how things are. I just cant believe the news. My heart and thoughts go to you and your family. I can understand your desion on no more and like us all we hope we can understand why - how can we unless we have been through this horribe thing? I only wish I had known about your blog before it was in the Daily Mail as I would have loved to have given you more words of support. I hope and hope that you have a fun time over the next while and fill every day with love and laugh with your friends and family. Your simply wounderful and a insperation to every person you have touched in your life. Another thing is THANK YOU for this blog and giving us an understanding on this horrible subject. As I said in my first message i will be regestering to be a doner for bone marrow and I started to arrange this now. Keep strong and have FUN.
Cheers
Derek (someone you dont know but have touched)
Posted by Derek Miller | May 15, 2008 12:18 PM
Posted on May 15, 2008 12:18
Hi Adrian
I just want to say how much you have enriched my life both through meeting you in Namibia and reading your blog.
Remember all the good times we shared and the fun we had during those months. We all achieved so much, but you have gone on to so much more.
I wish with all my heart that you could continue your travels and get married and have children.
I am so proud to have known you, even for a short time.
My thoughts will always be with you
Anne xx
Posted by Anne | May 15, 2008 12:24 PM
Posted on May 15, 2008 12:24
Damn. I hoped that I'd never have to read that post.
Baldy's Blog will still be a shining beacon- not only for your incredible bravery and consistently informative and moving writing about your experiences, but because it's important for people to read about all aspects of cancer. Making your own choice about your treatment in no way negates anything that you have written about or suffered- it's an example of a special kind of courage and peace with your own decisions.
I wish you love and laughter with family and friends, and thank you for sharing so much of your journey with us.
Posted by jen | May 15, 2008 12:37 PM
Posted on May 15, 2008 12:37
Adrian,
I just wanted you to know how reading your blog has put life in perspective for me..
Never again will I feel irritated by bad drivers, delays on the tube, bad days at work...
It is the important things that matter.. spending time with friends and family and making sure they know you love them. Making the most of the precious time you have..
Your blog, be assured, does shine out like a beacon. Your outstanding courage and dignity in the face of such adversity are an inspiration both to me and to many others.. that is your gift to us.. and a very precious one. You have touched the lives of many, even those who have not been fortunate enough to meet you personally.
I was praying that the outcome would be different for you and I was actually in tears as I read your blog. I agree very much with an earlier post. There is a quote I wanted to share "We are each of us angels with only one wing, and we can only fly by embracing one another." ~Luciano de Crescenzo- You have certainly, through sharing your experiences been helping others to fly and now it is our turn to show you love and support when you need it.
Love and prayers,
Laura
X
Posted by Laura | May 15, 2008 12:54 PM
Posted on May 15, 2008 12:54
Adrian,
What can I say that already hasn't been said?
What an inspiration you truly are.
You deserve all the plaudits and praise you get. Above all, your bravery is astounding.
Stay strong and good luck. There's so many people thinking about you, Adrian.
Gavin.
Posted by Gavin | May 15, 2008 1:14 PM
Posted on May 15, 2008 13:14
Go do something that your heart desires...go enjoy all that surrounds you!
My thoughts are with you and yours...
Jo
xxx
Posted by joanne sanders | May 15, 2008 1:31 PM
Posted on May 15, 2008 13:31
Really sorry to hear your news. You have been a true inspiration to many people. Enjoy your time with your family and friends.
Posted by Maureen | May 15, 2008 1:37 PM
Posted on May 15, 2008 13:37
Dearest Adrian
We're so very very sorry to hear of your sad news, life is so very cruel and unfair, you are a truely remarkable person. As you, Adrian the person and also in the way you have conducted yourself and coped with this horrible illness.
We first met you way back, I think it was in 1992, when you were dressed up in your 'tails' for your Uncle J & Auty P's wedding. You were a 'ray of sunshine then, and you still are. You always will be.
We all, as a family think the world of you and you are in our thoughts and prayers every day.
May your time with family and friends be full of love, laughter and comfort.
Take care and God Bless
Let's pray for a miracle....
Lots and lots of love to you, Carrie, Mum, Dad,
Grandma, Grandad, J, P & H.
XXXXXXX
Lynda, Garry and James
Posted by Lynda Hebblethwaite | May 15, 2008 1:53 PM
Posted on May 15, 2008 13:53
words fail me at this time, love to you dear adrian and your family. pamela xxx
Posted by pamela | May 15, 2008 2:07 PM
Posted on May 15, 2008 14:07
Adrian,
Sorry to hear your news. We're all thinking of you and think you've shown an incredible amount of bravery through your illness and in choosing to write about your experience.
If there is anything we can do please let us know.
Serena
Press Office, Leukaemia Research
Posted by Serena | May 15, 2008 2:23 PM
Posted on May 15, 2008 14:23
hello baldy i just wanna say how how much u have opened my eyes even more to the world out side i only saw your story last nite on calender and was amazed at ur utter stenth and bravery uy r one of a kind and i hope something will work out for you soon we are thinking of you robyn (rotherham)xx
Posted by robyn | May 15, 2008 2:29 PM
Posted on May 15, 2008 14:29
I don't even know you, but I'm sat at my desk at work crying. I am so sorry.
Posted by Steve | May 15, 2008 2:30 PM
Posted on May 15, 2008 14:30
I have every reason to believe that you will make the most of the time you have left, be it weeks or months, or who knows maybe even a little bit longer. Hugs xxx
Posted by Roobeedoo | May 15, 2008 2:48 PM
Posted on May 15, 2008 14:48
Dearest Adrian,
So sorry to hear your news. We really thought you'd beaten the beast. You deserve so much more.... we're heartbroken for you, and your family.
We've known you since 1992, I remember my first thought of you was that you were a 'ray of sunshine', but I were wrong, you are so much more, you are a beacon of light, your light and inspiration shines out for everyone to see.
Hope your time if filled with love, laughter and comfort.
Our thoughts, prayers and love is with you always.
Thinking and praying too your Carrie, your Mum, Dad, Grandma & Grandad, J P & H.
Lynda, Gaz and Jay
XXXX
Posted by Anonymous | May 15, 2008 2:49 PM
Posted on May 15, 2008 14:49
Hi Adrian
Words cannot describe how I felt when I got the phonecall from P yesterday. We've all wept buckets. Your blog has been read avidly by all of us and been an absolute inspiration. You truly don't deserve the outcome you have.
Thinking of you, and all the family with all our love.
Hilary, Rod and James XXX
Posted by Hilary Tucker | May 15, 2008 3:13 PM
Posted on May 15, 2008 15:13
Hi Adrian
I haven't been on your blog before but I have followed your story in the Examiner. I am absolutely devastated at this latest turn of events, and I have to say you are the bravest person I know. I hope whatever time you have left is as pain free as possible, and that you and your family can enjoy each other as best you can. My heart feels very heavy after reading this news, and you are in my thoughts.
I wish you all the best for the coming weeks, and hope that you can find peace in the end.
Lots of love, Joanna
Posted by Joanna | May 15, 2008 3:31 PM
Posted on May 15, 2008 15:31
Hi Adrian,
We have never met, and I have only just been pointed in the direction of your very poignant blog.
I have read back several entries, and I think I can identify with most of the emotions that you have described. I am a lymphoma patient, and like you have been through the cycle of chemo, transplants, hope, disappointment, treatment, transplant etc with the last transplant from a donor (which was when I started writing my blog 2 1/2 years ago.) It hasn't been plain sailing since then, but that isn't really important, although the tales of GvHd are all too familiar!
It is a roller-coaster of a journey - a bit like running down a path to a cliff edge - hoping that the path will turn away just in time. In your case, its not so much a path as a pretty undefined track, as I think your conditions have gone into new territory.
You have been very frank in your blog, and about your decisions for further treatment. All I can say it that I admire your bravery and honesty and I hope that whatever length of life is left to you is as fulfilling as it can be under the circumstances.
My thoughts are wih you and your family.
Posted by Peter | May 15, 2008 3:40 PM
Posted on May 15, 2008 15:40
Gutted to hear the news. I have never written before but have followed you all along your journey.
My sister Karen was only 23 years old when she died one year after being diagnosed with CML. Like you she was a bright, beautiful and articulate person who had everything to live for. Reading your blog has in some strange sense enabled me to almost re-live a part of our last year together which of course had its tough times but we also shared some of the most beautiful times together.
It will be ten years this September that she died and I cannot believe that it has been so long. However her soul is still so obviously with us and not a day goes by when she is not remembered. Just because we cannot physically see, touch, hear or smell the person they are still as much part of our lives as they have always been. Infact I am sure Karen has had a much stronger influence on me than if she was still here as I have been working for the Anthony Nolan Trust for the last nine years!
You are an amazing person. I never had the privilige of meeting you but you have certainly touched my life and I know I do not speak alone. We will always remember you and keep you in a special place in our hearts.
Enjoy the time you have with your family and friends. Keep smiling in the knoweldge you have always done the very best you can.
Debby
x
Posted by Debby Jepps | May 15, 2008 4:27 PM
Posted on May 15, 2008 16:27
Adrian,
I'm so sorry to hear your sad news.
I hope it's some comfort to you to know how much you've touched the lives of so many people.
When my wife Donna was going through chemo, radiotherapy and then a bone marrow transplant last year I used to print your blog for her to read. It was such a great help for her to know that all the emotions and physical effects weren't unique to her. You were able in your words to voice many of her feelings and help us both through a difficult time. I can't thank you enough for that.
I'll never forget the moment the Doctor told us Donnas treatment hadn't worked and can only hope you didn't have to go through that on your own.
There's little anyone can say really. I'm sure there will be dark days ahead but the love of your family and friends will be a great support.
Best wishes Adrian and thanks again.
Greg x
Posted by Greg Iredale | May 15, 2008 4:47 PM
Posted on May 15, 2008 16:47
Hey Baldy,
I also have CML and had rotten luck with Gleevic. I switched to Sprycel and am doing much better. There are other second generation drugs that can replace Gleevic and perhaps give better results. I wish you wouldn't stop fighting. I hate to see CML win. You never know what could happen to enrich your life, something or someone may come along in the near future. Please don't give up.
Lisa
Posted by Lisa in Iowa | May 15, 2008 5:13 PM
Posted on May 15, 2008 17:13
Adrian
I am so so sorry to hear your latest news. After all you have been through you do not deserve this outcome.
Take comfort from your family and all the thousands of people you have reached through your blog who are still praying for a miracle.
Thank you for being an inspiration to fellow cancer sufferers and you will continue to do so.
Elaine xxx
Posted by Elaine | May 15, 2008 5:15 PM
Posted on May 15, 2008 17:15
im so sad to hear of your news. ive kept up with your story via the Examiner. it can be a cruel world
i really hope you enjoy your time left with your family and friends in comfort. My heart is with you.
x
Posted by Laura J | May 15, 2008 5:15 PM
Posted on May 15, 2008 17:15
Adrian,
I cannot add anything that hasn't already been said but if I could cut off my arm to save a bloke like you, I would.
Posted by Phil | May 15, 2008 5:27 PM
Posted on May 15, 2008 17:27
Hi AD
I've only written on your blog a couple of times and that was to shamelessly plug my marathon run for the Anthony Nolan Trust. I'm one of the lucky ones to know you personally have been able to pick up the phone or meet up with you and talk to you directly. What I want people to know is that AD's bravery, humour and incredible passion for life is not just a temporary thing for this blog. It is there every second that he is awake. It is, and always has been totally infectious. It is impossible to come away from a phone call or meeting without laughing and covering every subject possible from world politics to liverpool fashion trends.
It was an honour to ask you to be my Best Man and I am simply devastated that it looks like you will not be able to make it. However in true AD style I can't wait for the video speech - don't forget to leave pauses for the punch lines!!
As everyone from Liverpool University knows, you are 'the one and only'
Looking forward to spending some time together.
Philx
Posted by Phil Driver | May 15, 2008 5:41 PM
Posted on May 15, 2008 17:41
Hey AD.
I have spent a long time today considering what to write but lacking divine inspiration or the way of Dylan, Young or David with a word, I am going to stop procrastinating and get on with it.
First of all, leaving aside the time you left Jamiroquai playing on repeat in your room at halls for a whole day while I was (for once) revising, you are one of the most fantastic, genuine people I've ever had the pleasure of meeting.
Secondly, whatever your thoughts on the matter, the good wishes of so many people, be it family, friends or complete strangers, are with you as a result of your immense effort in sharing your rollercoaster of a story.
The illness itself may have been the hook in getting people to read this but all of those good wishes are down to peoples' respect and love for the strength of your personality, your (verging on brutal) honesty and the very essence of your humorous spirit. Craig David indeed.
Finally, and without wishing to extend into hyperbole, you have left an indelible mark on the hearts of so many people with this blog and the way you have conducted yourself throughout. You should be justifiably proud of that; it's more than most can hope to achieve in a lifetime.
I just want you to know that you're nothing short of an inspiration to all, and to me in particular mate. Please enjoy what you have left and here's to hoping it's much more than you expect.
All my love
Ant
Posted by Ant | May 15, 2008 6:08 PM
Posted on May 15, 2008 18:08
I've been reading your blog for a while now but have never posted a reply. This entry has me in tears. I am so moved that after receiving such awful news, you're still so strong and brave. I think you're amazing and I really admire you and just felt compelled to say so.
I'm so sorry x
Posted by Mel | May 15, 2008 9:55 PM
Posted on May 15, 2008 21:55
hi Adrian,
I am so sorry. What an amazing person and insiration to many of us. My thoughts are with you love Karen xxx
Posted by karen | May 15, 2008 10:25 PM
Posted on May 15, 2008 22:25
Adrian
My mum told me to look at this site, she works for Blue crest caterhire- I think your Dad spoke to her recently...
I really wanted to read your story so far...
after I wiped the tears away I just wanted to say you will be an inspiration to a lot of people and you have made me look at my own life in a very different way.
I know I have never met you but I am sending you lots of positivness!!!If there ever was such a word!
Donna
Posted by Donna | May 15, 2008 10:52 PM
Posted on May 15, 2008 22:52
Hi again
Been thinking about you ever since reading your news. Been thinking about you again when I read the news in the Examiner today. I feel so, very sorry in fact worse than sorry. I don't think I can find the words to express how sad I feel without getting carried away with emotions and words. Like you, I spend a lot of my time writing, so I'm always searching for the 'right words'. This time, words fail me.
However, I just want to say that I think you've touched people in a