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A plea for more bone marrow donors

I have one last little mission before I die.

I'm determined to try and educate more people about what it is like to be a bone marrow donor.

There are still 7,000 people - children and adults in the UK alone - who are waiting to find a match.

Without your help they have no hope.

At least I was given a chance.

The problem is people think it is some horrific procedure and I want to show as many people as possible that it is not like that.

Apparently, the Germans have one of the world's best marrow registers. All they do is educate their sixth form students about why it's important to donate blood, bone marrow and how you do it.

Why can't we do that here?

This is a video showing how around 75% of all bone marrow donation is carried out these days.

If you want to get on one of the donor registers all you have to do is ask about it next time you give blood.

The National Blood Service provides a bone marrow register.

Alternatively, you could get in touch with the Anthony Nolan Trust.

They can send out a special blood testing kit which you can take with you to your GP.

You then post your sample back to the trust.

Specialists can tell from your blood whether you are a potential tissue match for someone or not. Your details are then entered onto one of the databases.

The two organisations work together so you only need to be on one.

If you were a match for someone who needed a transplant, and you still wanted to help, you would be given a number of injections of a naturally occurring hormone called Granulocyte Colony Stimulating Factor (G-CSF), four days prior to the donation.

This stimulates your bone marrow to increase blood cell production. For example, when you are ill, GCSF stimulates the marrow to make more white blood cells to fight off infection.

The injections are safe and the only side effect I experienced when I was given some on the ward was a slight ache in my bones.

A donor is then brought into hospital and hooked up to a machine called a cell separator.

As you can see from the above video a needle is put in one arm and the blood goes into the machine. The stem cells are separated by centrifugation and flow into a bag. The other parts of the blood are then returned back to the donor through a different needle.

The whole process takes around four hours.

Current research shows that these types of stem cells are the best for curing leukaemia.

However, for some conditions such as aplastic anaemia, stem cells direct from the bone marrow are more desirable.

To get these cells a bone marrow harvest is performed. This can require a two-night stay in hospital.

When I have a bone marrow sample I have to lie on my side in the foetal position. I am given a local anaesthetic and a needle is inserted into the bony bits at the back of my pelvis.

This video is not the same as a harvest but it gives you the gist.

A donor is given a general anaesthetic and the same procedure is carried out but at multiple sites. There is no bone-breaking or spine jeopardising - that is not to say it wouldn't be a bit sore in the morning!

None of these procedures are anything to be taken lightly and do represent a big commitment.

The databases are expensive to maintain so they only want people on there who are determined to help.

Donors have the final say about which method they prefer.

Ideally, it is best to be OK with both. That way if someone is unable to extract enough bone marrow cells, another option for the recipient is possible.

On a personal note I used to give blood but I never joined a bone marrow register because I thought the procedure could leave you paralysed.

That, as I hope you can see, could not be further from the truth.

I'd just like to add that we live in a world that for all its good is riddled with problems and selfishness.

Joining a register is one of the true acts of altruism and human kindness.

Who knows, you may end up saving someone else on the other side of the planet.

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Comments (420)

Adrian

I had a SCT 6+ months ago, my sister was my donor. I concur with everything you have said. It is a fairly painless proceedure. One visit to the hospital for a medical, a battery of blood tests and then a morning hooked up to the separator. My sister was absolutely fine, mostly tired from a long morning in an unfamiliar place and thirsty from not drinking. If you need a wee.......it is a bed pan........it is a palaver to unhook and resterilise everything. But that aside, it is easy and oh so worthwhile. I don't think anyone really realises how relatively easy and important it is. I was actually on the Anthony Nolan list before I was diagnosed.

If I can help at all with any publicity or anything please don't hesitate to let me know. I know that donors from ethnic and religious minorities are always particularly sought after.

Susan

I'm so glad you posted this video. If my brother can donate, I think anybody can. He's a bit queasy.

I'm going to post this video on my blog tomorrow.

Liz Boffey:

Hi Adrian

Excellent speech,well done-now it would be great if everyone that comments on this blog would seriously consider being a donor-think of all those people out there who are crying out for a chance of life.
It is such a relatively straight forward procedure as Adrian has outlined-please more donors are needed urgently.

Liz

Liz Boffey:

PS Adrian

I think your first sentence said it all. We all owe it to you,Adrian, to support you in this way.

Liz

jaqui phillips:

Hi Adrian

Duely noted and taken on board will be giving some serious thought to this. What a fantastic bunch of people you have managed to make contact with via your Blog I hope their love and support are helping you each day.

Jaq x

Jessica:

I have been on the bone marrow donor list for over 10 years, after getting the required bloods taken at one of my normal blood donor sessions. I am amazed that with the amount of people needing a bone marrow donation, that I have never been a near or perfect match. I'm guessing from this, that it is not easy to match people and the more there are on the register, the more chances there are that people would be matched.
I would be more than pleased to give up some bone marrow, as I have my blood for the last 30 years (excluding when pregnant).
I agree with Adrian, more people are needed.

elaine Tunnicliffe:

I have lost count of how many times I have written and then deleted a response following the awful news of your relapse.Words simply cannot express how sad I am that it has come to this.You are the most extraordinarily persausive and compelling young man who will go on being an inspiration to others all over the world.
Following this most recent entry I will say that it will be my absolute pleasure to become a bone marrow donor,and I am only sorry that I have not done it before now.
My thoughts and very best wishes are with you.
Elaine, New York

Katie:

I just want to suuport Adrian's request. To anyone who reads the blog, I want to say that going on the register is SO unbelievably easy. Adrian can testify I am the world's biggest wimp when it comes to needles - I have a serious phobia. But when Adrian needed his transplant I decided to join the register as it brought home just how important it was - if you're not on there and you're someone's only hope, how would they ever find you without such a register?
Given the needle fear, even sending the blood sample off could have been a hurdle for me. But when you know you are doing something for such a good cause it makes you look at the bigger picture. I told myself to stop being a pansy - what's a little fear or a needle when you could be giving someone a chance of life? Even if a bone marrow donation was a traumatic procedure - which it's not as Adrian has said - I personally would do it anyway if it meant giving someone fantastic like Sudders a glimmer of hope. My point is that if I can manage it, pretty much most people can. So please, please consider it.

PS. To Adrian - I promise to keep on the education and awareness drive mate, for good. x

Jordo:

If a needle went amiss, would the nurse say 'my fists have your blood on them' ?!!? :D

Shades, gimme a text or something, I've tried ringing you a few time but can't get hold of you, I dunno if you're on a new number or not?

I'd like to make a little visit if that's ok with you? I'll bring you some punts for your coin collection *titter*

Denise:

Adrian

I (like so many others I'll bet) was devastated by your news yesterday. In a shitty selfish world, you have become so important as a beacon of what people can be like at their very best.

I heard your story through the Mail and as it is clearly really important to you to get the message out about bone marrow donations, have you contacted them again to update them on your illness?

I am and will be praying for you and your family, that you will have the best times together that could ever be possible and that somehow through all of this, you will know the 'Peace that passes understanding' You are clealy loved by so many people - what a legacy for someone to leave behind, in addition to what you are doing for folk needing transplants.

Please don't give up yet.

Love, hugs and prayers

Denise

Olie D'Albertanson:

i just wanted to say that AD is and always will be a true inspiration to me and the impact he has had on people's lives just through being himself is incredible. The nicest, most caring person i have ever had the pleasure of living with, playing football with and sharing my life with.

I speak with the big man (AD, not God) practically every day and it is always a conversation that i enjoy, even if the subject matter isn't always the most uplifting. AD has the most amazing way of dealing with this crap and he hs made it as painless as possible for everyone who has ever known him. The dignity he has kept with him throughout should be a lesson to everyone not to moan about stupid, insignificant things - put things in perspective.

I look forward to seeing you again this weekend mate and this time i promise not to bring a carrier bag full of Alka Seltzer.

You will help people forever because of your selfless campaigning, and for that you are a Saint.

Olie

Adrain,

I think what your doing is amazing. I lost my sister Ashley to a very aggressive form of breast cancer in January, she was 37. In the end she sliped away peacefully and quickly. It was the hardest thing I've had to do, watch her die, even harder than watching my mum fade away in a home from alzheimers. My Dad has had it tough.

I think about her everyday and when i read stories like this it makes me very sad. But what i want you to know from my experience your family and friends will always love you and think about you everyday! My memories will always be strong, i wont ever forget her and i see her in my two young neices everyday as well.

Keep the faith and tell people about your story, poeple need to be awakened to the fact we do need more bone marrow and blood donors, and that cancer can happen to anyone! We must all do our best to help.

Johnny

Jo Morris:

i'm on the register,
i actually look forward to the day i get a call,
when my bro was diagnosed i wasn't a suitable tissue type for him, and still feel i let him down,
but joining the anthony nolan register is helping me cope in the sense that i may save somebody else's life.
i too have set about trying to recruit more donors.
adrian you are such a star! i agree with Olie above infact you are a saint! reading your blog has helped me in some difficult times, and eased my understanding of what my bro went thru.
in fact lets all write to her maj and get this fella knighted!!!! xx

Susie:

Off to give blood in a couple of hours - I think I put my name on the bone marrow register a couple of years back but I'm going to double check.

x

Emma Dickens:

Hi Adrian

Everyone at Sheffield Hospitals Charitable Trust, and the communications team at the Teaching Hospitals, have been incredibly moved and saddened by your recent posts. And of course your latest devastating news. I wanted to say, on behalf of everyone I work with that we are thinking of you and your family, and that you are an inspiration (an over-used phrase but in this case I think entirely suitable).

On a personal level, I wanted to make you a promise, that I will definitely be signing up to be a bone marrow donor, and encouraging others to do so.

Emma
x

Jo:

Hi adrian, i read your touching story in the daily mail today and i just wanted to say its an eye opener for everyone! my dad is 50 and currently battling with cancer and was told on my birthday that it was terminal! i think you are a very strong person and its sad that people like yourself and my dad are have life threatening illnesses! would love to hear from you! will look into bone marrow donars..take care

Jo

Neil Holmes:

Adrian after following this blog for the last six months i cant believe how everything has changed, your so strong.

I now promise you I will become a donor.

regards - neil

Jill:

Hi Adrian,

Just heard you on Five Live and your courage and down-to-earthness in the face of this dreadful news just blew me away.
I've often considered registering for the donor register. After hearing you speak, I'm going to do it right now.
My very best wishes to you and your family.

Jill

Olie D'Albertanson:

Here you go buddy - here are a few texts that have come in since your interview - what an amazing interview.

You are an absolute bastard though as you have set me off at my desk again and now i can't see what i'm typing - love for always,

Olie x


Victoria how did you speak to adrian without crying. James.

Wow ! Wow. I don't have the words to say how I feel listening to the young man.

Please ask everyone who was going to buy Cherie Blairs book to donate the money to leukaemia research. Darren in Brighton

Sitting here in tears - how humbling! Puts all into perspective. Nicky

I am 16 and cannot yet donate blood or bone marrow. I had already planned to donate blood but bone marrow had never occured to me. Now i will and i hopeothers do to! Hannah

I recently fractured my heel and thought it was a major problem for me put your last guest has put this into perpective. Hero is a word used too frequent ly but 'Baldy' is one. Simon Ossett.

Victoria. How can a dying man be so unselfish and caring. Ben. B'ham

I want to give this guy a huge hug words cant describe how moving listening. Respect

There would be more bone marrow donors if there wasn't a ludicrous upper age limit on donation!! Spencer in cambridge

When you listen to that young man you now know now that there is no god

I am in fuckin tears of admiration for this wonderful example of selflessness

Silbee:

This, I will do, for you...

Hi Adrian

I just heard your interview on Five Live, and wanted to let you know that I'm signing up to a donor register right now. Your attitude and strength are incredible. You have my thoughts and best wishes.

Robin

Nigel Davidson:

Hi Adrian

I've just listened to you on Radio 5. I have heard you on Radio 5 previously and I was so sad to hear your most recent news.

I dare say there's very little new that anyone can say in such circumstances. Although, my admiration for your spirit I cannot put into words and your idea to simply 'enjoy' your remaining time is excellent. 2 fingers to the disease and if you're going down, you're going down smiling, eating, drinking and sky-diving!

Good luck with your chat with Poppy. Also very sad news to hear that you had split up, although it's not for us to judge that situation.

I myself have had a period of severe illness about 10 years ago, although it wasn't a cancer or leukaemia illness, more related to the immune system, but I do deal with it every day of my life and only those close to me know this. I was married last year to my wife Lucie, she's amazing. She suffers from a serious spinal condition that needs another operation to cure, in the meantime she's heavily medicated, but she still holds down her job as a teacher and I have such admiration for her. The morphine she takes has caused a heart problem which needs a procedure next week to rectify and I know she's terrified of this, but I also know she'll be ok. Her mum died from a rare kidney cancer about 7 years ago. I didn't met her, although I feel I know her from all the amazing stories Lucie has told me. That's because the truly special people in this world are never forgotten even after they leave us and I know this will be the case with you. What an inspiration to everyone. In a world where we have all our priorities out of whack, you're one of those special shining lights.

And here's me thinking Carlisle United losing to that bl**dy Leeds United last night in the league 1 play-offs was the end of the world! Nevermind, automatic promotion next season!

Wishing you all the very best and hoping you do manage to enjoy the following weeks as much as you can.

Nigel & Lucie in Belfast & Carlisle

Jan Aspinall:

Hi Adrian,
Just wanted to let you know that I will be thinking of you and your family at this sad time. My daughter Stephanie was diagnosed with Leukaemia at 4 months old. She had three rounds of chemo and a bone marrow transplant but unfortunately she relapsed and died when she was 9. She was very brave as I am sure you will be. We tried to make the most of the time she had left before she died. Enjoy what you have left and dont worry about your mum and dad, I am sure they will be very proud of you as I was and they will get through it remembering the good things about you and all that you have done. I have been on the register for 15 years and hope many more people will follow after your story. Be strong
Adrian.
Jan

Dawn:

Dear Adrian
I have been on the register for 20 years and have been called up three times but never been a close enough match. I can never understand why more people do not join, after all what better thing could a person ever do than potentially save anothers life?
Your honesty, courage and bravery throughout your battle has been truly inspirational, you do not deserve the outcome you are facing,I really hope that you are able to enjoy your remaining time with your friends and loved ones, my very best wishes and thoughts are with you.
Dawn

Laura:

Hi Adrian,
I lost my Grandad to leukaemia nearly 10 years ago..
I am doing a course in web design at the moment.. if those skills can be any use in your campaign.. or there is anything I can do to help in your campaign to raise awareness, I would love to do it both in memory of my Grandad and because I have been so touched and inspired by your blog.
I had never considered being a bone marrow donor before.. my Grandad never got the chance to have one and it was never mentioned as a treatment for him.. but I will now, I promise you :)
Love,
Laura
X

Derek Miller:

Hi Adrian

Thats my sample kit on the way and thanks to your blog and respect for you I have got another 29 folk regestering for the kit - not that I will end there cos everyone I know will be getting told to get there arse in gear and get the kit and get registered! I have not stopped thinking about you in the last 24hrs or telling your story to everyone I have seen today so I can assure you that thanks to you the register WILL grow. I hope and pray that one day I will get a call to say I can be a doner and I will tell them when ever that happens that its thanks to you!

Keep strong and I hope your having a ball!!

Cheers

Derek

Jen:

In Canada you can donate through Canadian Blood services http://www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/onematch?OpenDocument&CloseMenu

It's free, and there are just too damned many people dying from lack of donors.

Bill:

Hi Adrian,
Yesterday, I was at a friend's funeral. He'd died suddenly and without any warning whatsoever; it was a complete bolt from the blue.
At times like that we're all reminded that it will be our turn sometime but most of us don't allow ourselves to think about it. I heard you and admire you and I hope you will fulfill dreams and enjoy the love of family and friends to the full.
I do want to pass on something for you to think about in your quiet times. Check out Romans Ch 3 verses 20 - 26 (In the Authorised Version of the Bible - the one with 'Thee' and 'Thou'.) I don't want to offend you, God bless you.
All the best Adrian,
Bill.

Paul Robbie:

Inspiration,that is the first word that springs to mind!
I give blood and about 4 years ago asked if i could give for the bone marrow register. The response from the nurse involved amazed me. She saw it as an extra chore to her already busy day!!!! Beggars belief i know but those who should know better need to be prepared too.
Good luck and i hope at the very least you succeed in following Germany's lead and educate from an early age how easy it can be to register.

Clare:

Hi Adrian
Just found your site and realised you're a fellow Sheffield-er! Dare I ask - Super Owls or Blades?? Been reading your blogs and have to say what an inspiration you are! I've been on the marrow donor list for about 10 years but never been asked to donate. I agree with you and all the postings on here - everyone should be inspired by your story enough to want to go and do something good for general human-kind and get themselves on the register. I imagine already you've made a difference to this. Be proud of what you have achieved. What an amazing, fun sounding set of mates and family you have (and a GREAT gran!!). Be strong matey - thinking of you. Clare x

sidrah:

i really hope you get better soon

Azim:

Hi, I was driving in my car today when I heard you on the radio. I thought to myself this is a good man. And I thought to myself, has this man found any answers to what awaits him when he dies?

Now I am sure you have, but I have a question I ask, with the utmost sincerity and respect, have you thought about a question that God has put forward in the Quran, i.e. ‘did you create yourself or were you yourself created?

I am not sure if you have ever looked at Islam? But what I would say is, if its even just to rule it out, give it a go. You maybe surprised. In the Quran, God, makes clear what is the purpose of life, and provides evidence why one should believe the Quran is the final revelation to mankind. (Listen: http://english.islamway.com/bindex.php?section=scholarlessons&scholar_id=7)

I send you this message as I think you’re a great guy and it would be great if you could leave this world in a way that ensures you enter paradise, and able to testify that you fulfilled the purpose of life, as God has made clear what this is;

“And I (God) created not the spirit-kind and mankind, except they should worship Me (Alone).” (Quran, Chapter 51, Verse 56)

Nicki:


Consider your mission well on it's way, you have brought the subject of bone marrow donation to the front of everyone's mind and if like me they have all checked out the websites and taken the next step to become a donor then your mission is a successful one.....

Nickix

annie:

Your wonderful blogs have been helping me understand what a friend is going through. He has refractory AML and, unlike you, finds it difficult to open up - typical male! I have come to rely on you to tell me how he's really feeling.
But the purpose of this email is to put in a word for cord blood storage. Cord blood transplants are increasingly being used when there is no bone marrow donor available, but so few new mums seem to know they have the chance to save a life at the same time as giving birth.
Stem cells derived from the umbilical cord - which is normally thrown away after delivery of the baby - can be used to treat leukemias and other blood malignancies. All the mother has to do is donate the cord to the NHS cord blood bank. Log on to www.cord.blood.co.uk to find out more.
Thinking of you with gratitude and admiration - oh, and you're a dream of a writer.

Glenn Gale:

Mate just seen you on TV tonight, my hart goes out to yer, i will deff go for tests to see if i can donate. Just be happy now buddy !!!

Jo Sanders:

Hi again...

I shall help all I can to spread the word!!! Recently have signed up to give blood due to sister and her AML, so I shall go do this too!! I actually thought it was more of a scary procedure...so you have already won this lady over!! I shall post link on my myspace to spread the word
Well done Adrian...Keep smiling
Love Jo
xxx

Sally:

Hi Adrian
I mentioned before that my daughter, Natalie is at Nottingham Uni. I just thought I would let you know that they had people there this term promoting bone marrow donation (don't know if it was Anthony Nolan) but loads of her friends signed up knowing about her brother being ill. With you mentioning about what they do in Germany, maybe somebody has already caught on to the idea of promoting it at Uni level?
Your'e doing a great job already!

Sally

Sarah:

Hi Adrian,
I'm not really sure what to say or whether I can into words how courageous and amazing I think you are. After seeing your latest blog I can honestly say that you have inspired me. Both to join the bone marrow register (which I am now in the process of doing) and encourage others to do the same (I've since emailed everyone I know) as well as become a better person in life.

I know it probably doesn't mean much, but you really have touched my life.

I'll be thinking of you. xx

ALAN BROWN:

hi adrian having heard you on the radio today you sound just like my sister in law deb she to has cancer with just a short time to live but it does not stop her enjoying life has much as she can, never stops laughing, lately she had to sort out her own funeral has her husband up and left her and her 3 kids, seems she and you have come to terms with death as you say with inner peace she has her mother with not long to live with cancer too . like you and your family we will be giving as much time and fun to Deb her mom as we can one thing we wont forget about deb is her infectious laugh which can be herd miles away ,we will miss deb and her mom but will always remember the great times we had hope you get to final Alan@sue

mik:

Hang in there brave boy!
We will all join you and what a party eh?
I admire your'e no fear aproach and that is the best way to be.
Live your time to the best you can,enjoy things you like till you decide your'e happy enough.Go to sleep when your'e too tired.
It's not the end of the world!
The end of a life in this world maybe?
The beginning of a new life beyond our knowledge?
Vicars,priests,scientists, none of them are sure of anything!
Only thing for sure is the fact the human mind cannot comprehend space and it's beginning or end?
Must be something we don't understand even with our computers and things.
I do understand what you are feeling though and have to comment 'lifes a bitch'
Enjoy every day you can!!!
See you later........ X Mik in darlington

Lesley:

Adrian,
I have just seen the article in the Mirror and discovered your blog!
I think your attitude, spirit and honesty is incredible!!
Ill be encouraging everyone I know to join the register and to read your blog!!

Enjoy everyday and take care!!

xxxx

Sylvia:

Hi Adrian
This is my first ever blog entry. I have been reading your blog since it began, after reading about you in the Examiner. I was so sad to read your two most recent entries and the comments in reply have left me in tears. Your bravery is so inspiring! I'm not able for medical and age reasons to become a donor, but I have forwarded the link to your blog to everyone I know, to try encourage them to become donors.
Now go and make the most of your life with your family and friends.
Hugs and kisses!
Sylvia xxx

sarah:

ive just been sat here reading these blogs after seein u on calendar!!!
i must admit ive never given blood or done the bone marrow thing, but at this moment afer reading all this i am considering doing it.
i just wanted 2say that i think ur incredible and a real inspiration 2every1. I work at a hospital and i see on a daily basis lives torn apart by diseases and illnesses that the children suffer from (kids ward) yet reading this blog has made me realise that i cud help sum1, by donating. A life could be saved if i was brave enuf 2take my a*se out there and donate, my fear of needles doesnt compare at all to the pain and suffering of ppl all over the world. so i would just like 2take this chance 2 say thank u for giving me the well needed kick up the backside!! i wish u the very best in all that u do, just by reading this blog u have in a way changed my life and hopefully sum1 elses. Thank you xxx

Lenka Kretikova:

I have read your story in newspapers about 10 minutes ago and I have to say that it deeply touched me. I just had to log on read your blog. Even though you have so many messages of support I just had to write one too.

What you have done is just great - you dedicated your time and energy to make people understand how much person can suffer through cancer treatment and what to do to help. I know you probably cannot answer everyone personally but I want you to know my thoughts and prayers are with you. I want to say how much I feel for you but words just fail me.

Love

Lenka, London

Luan Sharp:

Hi Adrian, I'm so sorry to hear your recent news. However due to reading about you and your fight with leukemia this has prompted me to enquire about becoming a Bone Marrow Donor. I'm not sure whether I can help due to being diagnosed with hypothyroidism but have still put my name forward in the hope that I can still help to save someone's life.

Thank you so much for putting my mind at ease about the bone marrow donation procedure. I have to admit that I'm not too hot with needles but have had to get used to regular blood tests and was one of the people who thought donating bone marrow would hurt a lot.

I wish you all the best and hope that your message gets through to more people like me.

Luan x

jane-mary:

Adrain

The news is a bummer.

I have been on the list since it was started but never been called. (early 70s) I think I am too old to be called now.

Small service is true service while it lasts;
Of friends, however humble,scorn not one:
The daisy, by the shadow that it casts,
Protects the lingering dew-drop from the sun

William Wordsworth..written to a child in a book he gave her.

If only we could all live by those tender words.

When told that his estranged wife wouldnt be in court,due to a medical procedure he muttered * another pedicure* hahahahah

An American in London was bursting for a pee and found a narrow lane. Just as he was about to perform a policeman tapped him on the shoulder and said Sir you can't do that here come with me.......and led him to a very smart garden. The Yank asked if his kindness was called english hospitality .......NO ITS THE FRENCH Embassy. tee hee

oh well, all I can say is enjoy what you have left of this bitch of a life.

Alison Collington:

Hi Adrian the brave
When I heard you yesterday I was struck by how similiar you are to my nephew who sadly died of Leukaemia in November 2006 aged 16 years old http://lemonjelly.moonfruit.com/. He urged us all to do good to help others in his situation and did all he could to protect us from the misery of his illness. We are still inspired by his spirit and love of life. I ran the London Marathon in his honour this year(never having run in my life however I trained for 16 months) my family and loads of his friends have taken part in fundraising events and still do. He received a bone marrow transplant at Bristol which failed partly because they were not able to find a perfect match. When I heard you yesterday I have now decided to contact Anthony Nolan and arrange for a clinic in Berkshire as I am sure I can persuade many people to sign up to the register. Sending you much love and admiration Alisonx

Tony Lockwood:

Hi Adrian, I heard your piece with Victoria Darbyshire yesterday morning. You made me feel so ashamed that at half my age you are already creating a bigger impact in your life than I have ever made the effort to do in mine. Go for everything you can in the time you have left - I shall be thinking of you every day and hope you feel mine and thousands of others' quiet support.

I will register as a bone marrow donor today online if I can; otherwise on Monday.

All love,

Tony and family

Henny:

My appointment is on Monday so will let you know how it goes. Just to let cheer you up a little a joke. Got to have time for some fun huh!

In a crowded city at a crowded bus stop, a beautiful blonde was waiting for the bus. She was decked out in a tight leather mini skirt with matching tight leather boots and jacket. As the bus rolled up and it became her turn to get on, she became aware that her skirt was too tight to allow her leg to come up to the height of the first step on the bus.

Slightly embarrassed and with a quick smile to the bus driver she reached behind her and unzipped her skirt a little thinking that this would give her enough slack to raise her leg. Again, she tried to make the step onto the bus only to discover she still couldn't. So, a little more embarrassed she once again reached behind her and unzipped her skirt a little more and for a second time attempted the step and once again, much to her chagrin she could not raise her leg because of the tight skirt. So, with a coy little smile to the driver she again unzipped the offending skirt to give a little more slack and again was unable to make the step.

About this time the big Texan that was behind her in the line picked her up easily from the waist and placed her lightly on the step of the bus. Well, she went ballistic and turned on the would-be hero screeching at him, "How dare you touch my body!! I don't even know who you are!"

At this the Texan drawled, "Well, ma'am, normally I would agree with you but after you unzipped my fly three times, I kinda figured that we was friends."

Nigel Clarke:

Hi Adrian

I lisened to you on radio the other day, i was driving and had to pull over, you touched my heart, you are a credit to your family,friends and everyone who is going through what you are going through.

I have along with my partner decided to go for bone marrow donation in the hope it may help someone one day. Thank you for opening our eyes to this.

Now go and have some fun with all who care for you, you will always be in our thoughts

Nigel,Elaine,Sadie,Faith,Joseph & Reece

A guy called Friend:

Dear Adrian you have nothing to loose, please check Health Protocol or The Beck Protocol by Robert C.Beck, D.Sc!!!!! You must!!!! Also you can watch this to make up your mind:http://www.atomicmovies.com/movie-Dr-Robert-C-Beck--The-cure-for-aids-and-cancer.html

Darryl:

Hi Adrian.

Id just like to say what an inspiration you are to me, my friends and my family.

I will seriously be looking into donating bone marrow in the near future, it's the least i could do.

Just remember - because of you many people from this blog will take bone marrow donations more seriously and even donate it themselves. You've made a difference to countless lives, and in that respect Baldy's Blog is a huge success.

Cheers mate.

Pauline:

Hi Adrian, this is my first ever blog and it is really just for you. I would like to give you some encouragement and hope. There is a healing outpouring occuring in Lakeland, Florida, USA. It started on 2nd April and is still goung on. People are being healed from all over the world from 'incurable diseases'. God is bigger that anything, nothing is impossible with God. Why don't you have a look and see for yourself. Check out www.freshfire.ca or www.ignitedchurch.com or www.god.tv or if you have sky tv :channel 760 at 7-11pm tonight (Saturday)or next week Mon to Fri: times vary from 7-11pm or 7.30-11.30pm.
I am praying for you.

Hey...
Your website IS the bright spot of inspiration and hope.

I have an idea. We are having a bone marrow drive here in Houston at the beginning of June. How about you put on a mask and gloves and hop a flight over. It will make for a great story and lots of fun.

I have CML too. I'm on Dasatinib and minus a pesky deletion in my DNA it's working well for the moment. I don't have a donor match, so... you can tell this is an important issue for me too.

Please check out the 'www.badtothebonemarrowride.com' (I think that's it) and try to make it. I'll sort out a place for you to stay and we can cart you around to see the sights of Texas (NASA, etc. etc. etc.)

The whole relationship difficulty for those of us who are single and leukemic... SUCKS! But, at least we have each other right?

Come on, be an ambassador, we will get you on the news in the fourth largest city in AMERICA!!! And, perhaps we can squeeze you into an appointment at MD Anderson too. Who knows, they may have a cocktail that will bounce that funky DNA back in shape. It's a crazy idea, but what the heck. Bring a family member too if you want. We need someone to take our photos as we are silly on TV!!!

Hope you have a good laugh and I really hope you think about this adventure of a lifetime.

Lots of love and hugs,
Rhonda

barbara:

I saw you on Calendar again, last night, Adrian and I was so sorry to hear your latest news. I have looked into being a bone marrow donor but, unfortunately, I am far too old! You are such a brave young man and my thoughts are with you as well as all my respect.
Good luck.
Barbara

Sue Castle:

Hello Adrian
We have had much experience of illness in our family but no-one can have any real idea of how anyone else is feeling. I am a nurse and worked nights for many years. I often felt I could hear the patients' minds racing in the middle of the night. I would go and talk with them. It was heart-wrenching.
I wish I had a magic wand to wave over you. Please do not feel alone with your illness, we are all with you.

Sue xx

Michelle Peters:

AD,

It was fantastic seeing you in Liverpool (albeit briefly). You walked past our table as I was telling Big Dave about your blog. Coincidence or what?

Just wanted to let you know that the Wrexham clan are all thinking of you and sending you much love.

Michelle
xxx

Jean:


You are in my thoughts Adrian,
love and hugs Jean xxx

mark wells:

Do you have an email address i can mail you at?
mark

shanelle williams:

Have read and read your blogs. You are a total inspiration to all and so courageous. If the donor register accepts 50 year olds then I will definately apply. Will relay your message to all I know. Love SAJ x

k:

Dear Adrian

I’ve read your blog in the Daily Mirror on Friday and had to keep fighting back tears cause I was at work. I felt as if I could hold Leukaemia and all the other diseases in the world and beat them to dust and I would let you beat them too for what they has done to you and your family.
My dear, I hope this letter will not leave you upset, and if so, I’m very sorry to have upset you. Adrian, you have been hearing all these reports form your doctors about what these diseases are doing to your body but today I want to tell you something different. I’m not saying that what the doctors are saying about how long you have to live is wrong but what I’m saying is that the bible says in St. Matthew 19 v 29 “But Jesus beheld them, and said unto them, with men this is impossible; but with God all things are possible.” King James Version. That includes you as well. I believe with God you can see not only your children but also your grand children grow up.

The bible says in Jeremiah 29v11 “For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end.” KJV. My son, ask God to forgive you of all your sins and to heal you completely from every disease in your body. In Jeremiah 33 v 3 “ Call unto me, and I will answer thee, and shew thee great and mighty things, which thou knowest not.” KJV.

Find a King James Version or New King James Version bible and read what the good LORD is saying about you and the plans and purposes he has for your life.

Adrian, if you allow me to write again I will send you more scriptures to show you that there is hope in God the Father for you. I’m praying for you to live.

God bless you
K

Claire Green:

I'm sigining up to donate now.

Thank you for for all that you have written, you are truly inspirational.

As many people have already said - your legacy will live on as I for one know I will not forget all that I have read.

My thoughts are with you and your family

Claire xo